Overview
What is Celiac Disease Foundation?
The Celiac Disease Foundation is a nonprofit organization dedicated to advancing research, advocacy, and education related to celiac disease and gluten sensitivity. Based in Woodland Hills, California, the foundation collaborates with researchers and clinicians to improve our understanding of the disease and its treatments, with a strong focus on patient engagement in the research process. Through various funding programs, the foundation has supported over $1 million in celiac disease research and medical conference grants since 2019, leading to advancements in our knowledge of the disease. The foundation also offers resources to the media, healthcare providers, and the celiac patient community, promoting clinical trials and serving as an advocate for federal recognition of celiac disease. Internationally, the foundation works with the Association of European Coeliac Societies to advocate for celiac disease initiatives worldwide. The foundation's educational efforts include tools and technologies, such as its widely-trafficked website, Celiac.org, and peer-to-peer fundraising programs, empowering individuals to raise awareness and support celiac disease research, advocacy, and education.
Official website here: www.celiac.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Stars)
The Celiac Disease Foundation (CDF) has achieved a stellar 100% rating on Charity Navigator, reflecting its strong commitment to transparency, accountability, and effective program delivery. The organization scores exceptionally high in areas like financial management, program expenses, and feedback collection, indicating robust governance and a focus on maximizing impact for the Celiac community.
User feedback highlights CDF's role as an invaluable resource for individuals navigating celiac disease, with many praising its informative website and annual symposiums that provide essential support and safe gluten-free food options. Clients have expressed gratitude for the organization’s assistance during times when medical understanding and resources were scarce, reinforcing CDF’s reputation as a trusted source in the field.
However, some criticism has emerged regarding potential conflicts of interest due to funding from General Mills, particularly concerns about the nutritional quality of its gluten-free products. A reviewer noted that this relationship could mislead the community into believing that certain processed foods are healthy, thus raising ethical questions about the foundation's advocacy role. This feedback suggests a need for CDF to address these concerns while continuing to prioritize the health and well-being of individuals with celiac disease.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Celiac Disease Foundation legitimate?
Celiac Disease Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Celiac Disease Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $420,433
Professional Fundraising Fees: $0
Other Salaries and Wages: $510,064
For more financial information, click here
Official website here: www.celiac.org
What is the mission statement of Celiac Disease Foundation?
The Celiac Disease Foundation is committed to driving diagnosis, treatment, and a cure for celiac disease through research, education, and advocacy. Their mission is to enhance the quality of life for individuals affected by celiac disease and non-celiac wheat/gluten sensitivity. They accomplish this by advancing celiac disease research, collaborating with experts and clinicians, and focusing on patient engagement in the research process. The foundation has funded over $1 million in celiac disease research and medical conference grants since 2019. They also support and publicize the research activities of their medical advisory board, promote clinical trials, and serve as a resource for scientific information. The foundation expands their patient registry, ICURECELIAC, providing researchers worldwide with data to accelerate research and ultimately cure celiac disease. They also have an IQUALIFYCELIAC platform for patient-driven clinical trial screening, lowering the cost of patient recruitment and speeding eligible patients into trials and studies. Through advocacy, the foundation has worked for federal recognition of celiac disease as a prevalent, underdiagnosed genetic autoimmune disease, leading to increased NIH funding for celiac disease research.
Official website here: www.celiac.org
Who is the CEO of Celiac Disease Foundation?
Marilyn Grunzweig Geller is the Executive; Governance of Celiac Disease Foundation. The CEO's salary of Celiac Disease Foundation is $251,095 and their total compensation is $268,720.
Official website here: www.celiac.org
What is the revenue of Celiac Disease Foundation?
Celiac Disease Foundation's revenue in 2022 was $3,118,626.
Official website here: www.celiac.org
Who are the executives of Celiac Disease Foundation and what are their salaries?
The average compensation at Celiac Disease Foundation during 2022 was $84,591. There are 11 employees and 14 volunteers at Celiac Disease Foundation.
Here are 16 key members and their salaries (Celiac Disease Foundation's CEO's salary is $251,095 and their total compensation is $268,720):
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Official website here: www.celiac.org
Where can I find the form 990 for Celiac Disease Foundation?
Celiac Disease Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.celiac.org
Learn more at the official website: www.celiac.org
Mission Statement of Celiac Disease Foundation
The Celiac Disease Foundation, a renowned organization, is dedicated to driving diagnoses, treatments, and a potential cure for celiac disease and non-celiac wheat/gluten sensitivity. Their mission is accomplished through research, education, and advocacy, aiming to significantly improve the quality of life for all individuals affected by these conditions.
The foundation actively advances celiac disease research by collaborating with researchers and clinicians, with a focus on enhancing patient engagement in the research process. Since 2019, the organization has funded over a million dollars in celiac disease research and medical conference grants, contributing to a better understanding of the disease and its impacts. The foundation supports and promotes the research activities of its esteemed Medical Advisory Board, works with biopharmaceutical companies to accelerate therapy development, and encourages clinical trials. Additionally, it serves as a reliable source of scientific information for the media and the celiac patient community.
The foundation's extensive research grant award program funds projects at leading academic medical centers across the nation, aiming to advance knowledge about the causes, progression, and consequences of celiac disease. The foundation also manages the iQualifyCeliac platform, the first patient-driven clinical trial screening program for celiac disease, which helps lower patient recruitment costs and expedite eligible patients into trials and studies, accelerating treatment developments and eventual cures.
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Impact
July, 2024
The Celiac Disease Foundation drives diagnosis, treatment, and a cure through research, advocacy, and education to improve the quality of life for all people affected by celiac disease and non-celiac wheat/gluten sensitivity. Their impact includes driving celiac disease research by funding over $1,000,000 in research and medical conference grants from 2019-2022. They collaborate with researchers and clinicians to advance understanding and treatments for celiac disease, with a focus on improving patient engagement in the research process. Additionally, they advocate for federal recognition of celiac disease and have successfully influenced NIH funding specific to celiac disease research. Their education initiatives provide innovative tools and technologies for celiac disease education, reaching a global audience through their website and social media channels. Through their efforts, the Celiac Disease Foundation is making significant strides in advancing research, advocacy, and education in the field of celiac disease.
This information is meant to be a general summary of Celiac Disease Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $27,932
- Program Service Revenue: $1,600,725
- Gross Receipts: $3,123,135
Assets and Liabilities:
- Total Assets: $4,468,403
- Total Liabilities: $595,648
- Net Assets: $3,872,755
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM INCOME
Revenue
$1,227,517
SPONSORSHIPS
Revenue
$373,208
Organization Details
Founding Year
1990
Phone
(818) 716-1513Principal Officer
Marilyn Grunzweig Geller
Main Address
20350 VENTURA BLVD 240, WOODLAND HILLS, CA, 913642469
Website
www.celiac.orgNTEE Category
Code: G46Z - Disease
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