Overview
What is National Tuberous Sclerosis Association?
The National Tuberous Sclerosis Association, commonly known as TSC Alliance, is a nonprofit organization situated in Silver Spring, Maryland. With a staff of 27 individuals, their primary mission is to find a cure for Tuberous Sclerosis Complex (TSC) while improving the lives of those affected. They are dedicated to this cause through extensive research programs, though further details can be found in Schedule O. Their activities are centered around finding a solution for TSC, thereby enhancing the quality of life for those impacted by the condition.
Official website here: www.tscalliance.org
What are the reviews and ratings of this charity?
**Charity : Charity Navigator Rating 96% (Four-Star out of Four Stars)**tar)**
The National Tuberous Sclerosis Association (NTSA) has received a commendable Four-Star rating from Charity Navigator, reflecting its strong commitment to accountability and financial management. With a perfect score in the Accountability & Finance category, the organization demonstrates robust governance practices, including an independent board and comprehensive policies that safeguard its assets. The NTSA's financial health is underscored by a program expense ratio of over 79%, indicating a significant dedication to direct program services for individuals affected by tuberous sclerosis.
In terms of impact and measurement, the NTSA scores an impressive 86%. While the organization shows strengths in program planning and data reporting, there is room for improvement in data collection and analysis. Nevertheless, its high scores across leadership, community culture, and adaptability illustrate the organization's effective and responsive management as it works toward its mission of improving the quality of life for those impacted by tuberous sclerosis complex.
User reviews from GreatNonprofits could not be fetched, but the NTSA's strategic goals, which include accelerating research and empowering constituents, suggest a forward-thinking approach that resonates well with the community it serves. Overall, the organization is positioned as a leader in the nonprofit sector dedicated to those living with tuberous sclerosis, and its rating reflects its operational effectiveness and commitment to its mission.
This AI summary has been generated from information found on Charity Navigator.
Is National Tuberous Sclerosis Association legitimate?
National Tuberous Sclerosis Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Tuberous Sclerosis Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $726,880
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,744,717
For more financial information, click here
Official website here: www.tscalliance.org
What is the mission statement of National Tuberous Sclerosis Association?
The National Tuberous Sclerosis Association, often referred to as TSC Alliance, is committed to finding a cure for Tuberous Sclerosis Complex and enhancing the lives of those affected by it. Their mission is to dedicate resources towards research, with detailed information available in their scheduled programs. The organization's ultimate goal is to improve the quality of life for individuals living with Tuberous Sclerosis Complex. They strive to serve as a reliable source of support for these individuals and their families, providing them with necessary information, resources, and emotional assistance. The TSC Alliance also collaborates with various entities to advance understanding, advocacy, and care for individuals affected by Tuberous Sclerosis Complex.
Official website here: www.tscalliance.org
Who is the CEO of National Tuberous Sclerosis Association?
Kari L Rosbeck is the Chair of National Tuberous Sclerosis Association. The CEO's salary of National Tuberous Sclerosis Association is $217,716 and their total compensation is $249,382.
Official website here: www.tscalliance.org
What is the revenue of National Tuberous Sclerosis Association?
National Tuberous Sclerosis Association's revenue in 2022 was $8,909,542.
Official website here: www.tscalliance.org
Who are the executives of National Tuberous Sclerosis Association and what are their salaries?
The average compensation at National Tuberous Sclerosis Association during 2022 was $91,541. There are 27 employees and 2534 volunteers at National Tuberous Sclerosis Association.
Here are 39 key members and their salaries (National Tuberous Sclerosis Association's CEO's salary is $217,716 and their total compensation is $249,382):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $217,716
- Related: $2,756
- Other: $28,910
- Compensation: $146,692
- Related: $11,324
- Other: $9,841
- Compensation: $80,583
- Related: $4,241
- Other: $8,795
- Compensation: $233,206
- Related: $0
- Other: $26,309
- Compensation: $164,261
- Related: $0
- Other: $27,214
- Compensation: $122,204
- Related: $0
- Other: $23,858
- Compensation: $133,868
- Related: $0
- Other: $4,136
- Compensation: $114,370
- Related: $0
- Other: $25,298
- Compensation: $111,519
- Related: $0
- Other: $13,976
Official website here: www.tscalliance.org
Where can I find the form 990 for National Tuberous Sclerosis Association?
National Tuberous Sclerosis Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.tscalliance.org
Learn more at the official website: www.tscalliance.org
Mission Statement of National Tuberous Sclerosis Association
The National Tuberous Sclerosis Association, often referred to as TSC Alliance, is committed to finding a cure for Tuberous Sclerosis Complex (TSC) while enhancing the lives of those affected by this condition. Their mission is centered around two primary objectives: conducting research programs to uncover potential cures for TSC and providing support to improve the quality of life for individuals living with this complex disorder. The association's dedication to finding a cure and improving lives is a testament to their unwavering commitment towards making a significant impact in the TSC community.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
The National Tuberous Sclerosis Association's impact is focused on finding a cure for tuberous sclerosis complex while also improving the lives of those affected by the disease. Through their research programs and dedicated efforts, they strive to advance the understanding and treatment of tuberous sclerosis complex, ultimately aiming to enhance the quality of life for individuals living with this condition. Their mission underscores a commitment to both scientific progress and the well-being of patients, making a significant difference in the fight against this disease.
This information is meant to be a general summary of National Tuberous Sclerosis Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $2,636
- Program Service Revenue: $2,720,317
- Gross Receipts: $9,035,766
Assets and Liabilities:
- Total Assets: $14,827,937
- Total Liabilities: $2,373,091
- Net Assets: $12,454,846
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONTRACT REVENUE
Revenue
$1,906,672
CONFERENCE REVENUE
Revenue
$813,645
Organization Details
Founding Year
1975
Phone
(301) 562-9890Principal Officer
Kari L Rosbeck
Main Address
8737 COLLESVILLE ROAD 400, SILVER SPRING, MD, 20910
Website
www.tscalliance.orgNTEE Category
Code: G030 - Disease
If you are a representative of National Tuberous Sclerosis Association and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.