Overview
What is International Pemphigus Pemphigoid Foundation?
The International Pemphigus Pemphigoid Foundation, established in Roseville, California, is a dedicated nonprofit organization. Its primary mission revolves around providing medical information, fostering awareness, driving research, and extending support to individuals affected by pemphigus and pemphigoid, recognized as an orphan disease. The foundation offers a multitude of services to its patient community, including a Peer Coach program, educational webinars, local and regional support groups, a 'Find a Doctor' map, annual patient conferences, and a wealth of educational resources. These initiatives aim to empower patients and help them lead active, fulfilling lives. The foundation's reach extends beyond just information and support, fostering a sense of community among those affected by the condition.
Official website here: www.pemphigus.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 83% (Three-Star out of Four Stars)
The International Pemphigus Pemphigoid Foundation (IPPF) has garnered a commendable rating of 83%, indicating a solid performance in accountability and finance, as well as a strong culture and community aspect. The organization exhibits high standards of governance with 100% of its board members being independent, and it has demonstrated excellence in conflict of interest policy, whistleblower policy, and document retention practices. Its program expense ratio of 74.20% suggests that a significant portion of its funding is directed towards its mission-related activities.
User feedback highlights the positive impact of IPPF on individuals affected by pemphigus and pemphigoid. Many clients express gratitude for the support and resources provided, particularly through peer coaching and connections to medical professionals. Reviews point out the emotional support and informative resources that have assisted patients and families during challenging times, emphasizing the organization's role in fostering a sense of community.
However, while the feedback is overwhelmingly positive, it is essential to consider that individual experiences may vary. The organization seems to excel in providing guidance and support to patients, yet some users have noted the lengthy diagnostic process faced by many, indicating that awareness and timely diagnosis remain areas for continued improvement. Overall, IPPF is recognized for its valuable contributions to those dealing with rare autoimmune blistering diseases.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about International Pemphigus Pemphigoid Foundation?
90% of 52 reviewers on Facebook recommend the International Pemphigus Pemphigoid Foundation. Here is a summary of their reviews:
Many individuals express appreciation for this foundation's role in raising awareness about pemphigus and pemphigoid diseases. Reviewers commend the charity for facilitating connections among those affected, enabling them to share their experiences and support one another effectively. Additionally, the peer health coaches receive positive mentions, highlighting their helpfulness even for those who haven't yet interacted with them.
Overall, the sentiment reflects a strong approval of the resources and community provided, with users feeling that the foundation plays a crucial part in enhancing understanding and support for those dealing with these conditions.
This AI summary has been generated from reviews found on Facebook.
Is International Pemphigus Pemphigoid Foundation legitimate?
International Pemphigus Pemphigoid Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Pemphigus Pemphigoid Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $275,192
For more financial information, click here
Official website here: www.pemphigus.org
What is the mission statement of International Pemphigus Pemphigoid Foundation?
The International Pemphigus Pemphigoid Foundation's mission revolves around providing medical information, raising awareness, conducting research, and offering patient support for an orphan disease. In essence, they strive to assist individuals living with this condition by providing a range of free services. These include a Peer Coach program, educational webinars, local and regional support groups, a doctor referral service, annual patient education conferences, and various educational resources. Their aim is to help patients lead active and productive lives while connecting them with the wider pemphigus and pemphigoid community.
Official website here: www.pemphigus.org
Who is the CEO of International Pemphigus Pemphigoid Foundation?
Carolyn Fota is the President of International Pemphigus Pemphigoid Foundation.
Official website here: www.pemphigus.org
What is the revenue of International Pemphigus Pemphigoid Foundation?
International Pemphigus Pemphigoid Foundation's revenue in 2022 was $558,222.
Official website here: www.pemphigus.org
Who are the executives of International Pemphigus Pemphigoid Foundation and what are their salaries?
The average compensation at International Pemphigus Pemphigoid Foundation during 2022 was $34,399. There are 8 employees and 50 volunteers at International Pemphigus Pemphigoid Foundation.
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Official website here: www.pemphigus.org
Where can I find the form 990 for International Pemphigus Pemphigoid Foundation?
International Pemphigus Pemphigoid Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pemphigus.org
Learn more at the official website: www.pemphigus.org
Mission Statement of International Pemphigus Pemphigoid Foundation
The International Pemphigus Pemphigoid Foundation, abbreviated as IPPF, is dedicated to providing medical information, raising awareness, and supporting research for individuals suffering from an orphan disease. This nonprofit organization's mission is centered around providing patient support, aiming to help those affected live active and productive lives.
To accomplish its mission, the IPPF offers a range of services. One of their key initiatives is patient support, which includes programs such as the Peer Coach program, Patient Education Webinars, and local and regional support groups. These resources provide a platform for patients to connect with each other, sharing experiences and offering emotional support. The IPPF also offers a Find a Doctor map, allowing patients to locate healthcare professionals with expertise in pemphigus and pemphigoid (P/P) diseases.
Another important aspect of the IPPF's mission is patient education. They organize annual Patient Education Conferences and provide educational resources to help patients better understand their condition. Additionally, the IPPF hosts Patient Education Webinars, offering a convenient and accessible way for patients to learn from medical experts. By providing these educational resources, the IPPF empowers patients to take an active role in managing their health.
In summary, the International Pemphigus Pemphigoid Foundation is a nonprofit organization committed to supporting individuals living with an orphan disease. Through medical information, awareness, research, and patient support, the IPPF aims to help patients live an active, productive life. Their services include peer coaching, patient education webinars, support groups, a find a doctor map, and annual patient education conferences.
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Impact
July, 2024
The International Pemphigus Pemphigoid Foundation plays a crucial role in providing medical information, awareness, research, and patient support for individuals affected by pemphigus and pemphigoid, which are considered orphan diseases. Through various initiatives such as the Peer Coach program, Patient Education Webinars, local and regional support groups, Find a Doctor map, annual Patient Education Conferences, and educational resources, the IPPF helps patients live active and productive lives while fostering a sense of community among those affected by these conditions. Its impact is evident in the support and resources it provides to individuals grappling with pemphigus and pemphigoid, ultimately enhancing their quality of life and well-being.
This information is meant to be a general summary of International Pemphigus Pemphigoid Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $123
- Gross Receipts: $558,222
Assets and Liabilities:
- Total Assets: $602,948
- Total Liabilities: $4,657
- Net Assets: $598,291
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Organization Details
Founding Year
1994
Phone
(770) 714-4684Principal Officer
Carolyn Fota
Main Address
915 Highland Pointe Dr Ste 250, Roseville, CA, 95678
Website
www.pemphigus.orgNTEE Category
Code: E60 - Health
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