Overview
What is Amyotrophic Lateral Sclerosis Association?
The Amyotrophic Lateral Sclerosis Association, Florida Chapter, is a dedicated nonprofit organization based in Tampa, Florida. Their primary mission is to enhance the lives of individuals living with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. They achieve this by providing a variety of services and programs, such as partnering with 12 multidisciplinary ALS clinics across the state, offering case management, social work services, referrals, assessments, and government/veteran benefits/insurance advocacy. The chapter also organizes virtual support and resource groups, provides loaned medical equipment, offers specialty home health coordination, and distributes monetary grants for respite care and various financial needs. Additionally, they fund a medical futures scholarship and host an annual symposium for patients, caregivers, and supporters. With a team of 33 dedicated employees, the Amyotrophic Lateral Sclerosis Association, Florida Chapter, is committed to improving the lives of those affected by ALS, raising program funds, and participating in advocacy efforts.
Official website here: www.als.org/florida
What are the reviews and ratings of this charity?
Charity Navigator rates the Amyotrophic Lateral Sclerosis Association at 98%, earning it a Four-Star out of Four Star rating, which indicates exceptional financial health and transparency. The organization has demonstrated outstanding accountability and financial management, reflected in its perfect score of 100 in this area. With a fully independent board of 13 members and strong oversight protocols in place, the ALS Association showcases a commitment to ethical governance.
The charity allocates a significant portion of its expenses—85.32%—toward its programs, which is a positive indicator of its focus on mission effectiveness. Additionally, its fundraising efficiency is commendable, with only $0.09 spent to raise each dollar. These financial metrics suggest that the ALS Association is effectively channeling resources into initiatives that support individuals and families impacted by amyotrophic lateral sclerosis.
However, the organization received a Culture & Community Score of 75, which, while still respectable, may suggest some room for improvement in community engagement and inclusivity strategies. The Equity Strategies Score of 75 out of 100 also indicates potential areas for growth in addressing equity within its programs. Overall, the Amyotrophic Lateral Sclerosis Association stands out for its financial integrity and programmatic focus while acknowledging opportunities for enhancing community and equity initiatives.
This AI summary has been generated from information found on Charity Navigator.
Is Amyotrophic Lateral Sclerosis Association legitimate?
Amyotrophic Lateral Sclerosis Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Amyotrophic Lateral Sclerosis Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $126,209
Professional Fundraising Fees: $0
Other Salaries and Wages: $935,879
For more financial information, click here
Official website here: www.als.org/florida
What is the mission statement of Amyotrophic Lateral Sclerosis Association?
The Amyotrophic Lateral Sclerosis Association's mission is centered around improving the lives of individuals living with ALS. They aim to discover treatments and a potential cure for the disease, while simultaneously providing support, advocacy, and empowerment to those affected by ALS. The association serves as a reliable resource for patients and healthcare providers, offering various services such as case management, social work, referrals, and benefits/insurance advocacy. They also provide virtual support groups, loan medical equipment, and offer financial assistance for respite care, home modifications, and other necessary expenses. Additionally, the organization funds scholarships and hosts educational events to raise awareness and provide valuable information to the ALS community.
Official website here: www.als.org/florida
Who is the CEO of Amyotrophic Lateral Sclerosis Association?
Ray Carson is the Chairman of Amyotrophic Lateral Sclerosis Association. The CEO's salary of Amyotrophic Lateral Sclerosis Association is $163,308 and their total compensation is $168,708.
Official website here: www.als.org/florida
What is the revenue of Amyotrophic Lateral Sclerosis Association?
Amyotrophic Lateral Sclerosis Association's revenue in 2023 was $3,983,976.
Official website here: www.als.org/florida
Who are the executives of Amyotrophic Lateral Sclerosis Association and what are their salaries?
The average compensation at Amyotrophic Lateral Sclerosis Association during 2023 was $32,184. There are 33 employees and 500 volunteers at Amyotrophic Lateral Sclerosis Association.
Here are 15 key members and their salaries (Amyotrophic Lateral Sclerosis Association's CEO's salary is $163,308 and their total compensation is $168,708):
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- Compensation: $163,308
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- Other: $5,400
Official website here: www.als.org/florida
Where can I find the form 990 for Amyotrophic Lateral Sclerosis Association?
Amyotrophic Lateral Sclerosis Association's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.als.org/florida
Learn more at the official website: www.als.org/florida
Mission Statement of Amyotrophic Lateral Sclerosis Association
The Amyotrophic Lateral Sclerosis Association (ALS Association) is dedicated to improving the lives of individuals living with ALS, while simultaneously raising funds and participating in advocacy efforts. Their mission is twofold: firstly, to discover treatments and ultimately find a cure for ALS; and secondly, to serve, advocate for, and empower those affected by ALS, enabling them to live their lives to the fullest.
The association's commitment to this mission is evident in the wide range of services and programs they provide to support people with ALS. In Florida alone, they served 1,779 patients in fiscal year 2023. Their efforts encompass various initiatives such as partnering with multidisciplinary ALS clinics across the state, providing in-kind staff support, and organizing 2030 clinic visits. They also operate a network of care services staff who help patients, families, and caregivers navigate the challenges of ALS, offering assistance in managing the physical, social, emotional, and financial effects of the disease.
Furthermore, the ALS Association Florida Chapter offers virtual support groups, lends medical equipment and assistive technology, and provides financial assistance through monetary grants, ensuring patients have access to essential resources. They also sponsor scholarships and host symposiums, offering educational opportunities for patients, caregivers, and supporters. These initiatives reflect the association's unwavering mission to improve the lives of those affected by ALS, while working tirelessly towards the discovery of a cure.
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Impact
July, 2024
The Amyotrophic Lateral Sclerosis Association, through its Florida chapter, is making a significant impact on the lives of people living with ALS. They provided care services to 1,779 patients in fiscal year 2023, offering a wide range of programs to help individuals and families affected by Lou Gehrig's disease. Their efforts include partnering with multidisciplinary ALS clinics, offering virtual support groups, providing loaned medical equipment, coordinating specialty home health services, and granting financial assistance for various needs such as respite care, home modifications, and transportation.
Additionally, the association runs the Rick and Sherry Murray Medical Futures Scholarship Fund, offering scholarships to students. They also organize events like the One Hope and Help Symposium, which provides informative sessions for patients, caregivers, and supporters of people with ALS. The impact of their work is evident in the support, care, and resources they provide to enhance the quality of life for those living with ALS in Florida.
This information is meant to be a general summary of Amyotrophic Lateral Sclerosis Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $252,604
- Gross Receipts: $4,817,334
Assets and Liabilities:
- Total Assets: $2,179,124
- Total Liabilities: $401,939
- Net Assets: $1,777,185
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Organization Details
Founding Year
1987
Phone
(813) 637-9000Principal Officer
Ray Carson
Main Address
501 E KENNEDY BLVD 1400, TAMPA, FL, 33602
Website
www.als.org/floridaNTEE Category
Code: G50 - Disease
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