Overview
What is National Pku News?
National Pku News is a nonprofit organization based in Montclair, New Jersey. With a small team of two individuals, its primary mission is to disseminate valuable information about Phenylketonuria (PKU) to both patients and their families, as well as professionals involved in its treatment. They achieve this through various digital platforms, including HowMuchPHE.org, CookForLove.org, and the Go Low Pro app. These services enable users to manage their restrictive diets effectively, catering to a user base that ranges from 2,000 paying subscribers to 10,000 registered users on CookForLove.org, and 1,000 users of the Go Low Pro app. Overall, National Pku News serves as a vital resource for individuals and healthcare professionals dealing with PKU.
Official website here: www.pkunews.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 76% (Three-Star out of Four Star rating)
National Pku News has received a rating of 76%, indicating a solid performance in accountability and finance. The organization boasts a fully independent board, with all ten members meeting the criteria. Their financial management appears stable, with a low liabilities to assets ratio and a commendable program expense ratio, indicating that the majority of their funds are directed towards their mission.
However, there are notable areas for improvement. The organization lacks critical policies such as a conflict of interest policy, a whistleblower policy, and a document retention and destruction policy, which are essential for ensuring transparency and accountability. These omissions highlight potential vulnerabilities in governance, which could impact stakeholders' trust.
Overall, while National Pku News demonstrates strong financial health and board independence, the absence of key governance policies suggests that the organization needs to enhance its operational framework to ensure comprehensive accountability.
This AI summary has been generated from information found on Charity Navigator.
Is National Pku News legitimate?
National Pku News is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Pku News submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $111,591
Professional Fundraising Fees: $0
Other Salaries and Wages: $81,649
For more financial information, click here
Official website here: www.pkunews.org
What is the mission statement of National Pku News?
National Pku News is dedicated to spreading vital information regarding Phenylketonuria (PKU) to both affected individuals and their families, as well as professionals involved in its treatment. Their primary mission is to serve as a reliable source of knowledge and support, disseminating information about PKU through various platforms such as websites and applications. These resources include HowMuchPhe.org, CookForLove.org, and the Go Low Pro app, which cater to managing restrictive diets. The user base varies, with around 2,000 paying subscribers on HowMuchPhe, 10,000 registered users on CookForLove, and 1,000 users of the Go Low Pro app.
Official website here: www.pkunews.org
Who is the CEO of National Pku News?
Sarah Chamberlin is the Executive Dir. of National Pku News.
Official website here: www.pkunews.org
What is the revenue of National Pku News?
National Pku News's revenue in 2022 was $844,372.
Official website here: www.pkunews.org
Who are the executives of National Pku News and what are their salaries?
The average compensation at National Pku News during 2022 was $96,620. There are 2 employees at National Pku News.
Here are 11 key members and their salaries:
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Official website here: www.pkunews.org
Where can I find the form 990 for National Pku News?
National Pku News's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pkunews.org
Learn more at the official website: www.pkunews.org
Mission Statement of National Pku News
National Pku News, a prominent organization, is committed to spreading vital information about Phenylketonuria (PKU) to patients, their families, and professionals involved in its treatment. The primary objective of this organization is to serve as a reliable source of information, bridging the gap between medical professionals and the PKU community. By doing so, National Pku News aims to support individuals managing this condition and those dedicated to its treatment.
To achieve its mission, National Pku News offers a variety of resources, including websites and applications. These tools, such as HowMuchPhe.org, CookForLove.org, and the Go Low Pro App, cater to different segments of the PKU community. HowMuchPhe.org, for instance, provides a platform for paying subscribers to manage their restrictive diets, while CookForLove.org offers free registration for users, providing access to a wide range of recipes and meal plans. Lastly, the Go Low Pro App is specifically designed to cater to the needs of those managing their PKU diet through this mobile application. Collectively, these services cater to a user base of approximately 2,000 paying subscribers, 10,000 registered users on CookForLove.org, and 1,000 users of the Go Low Pro App. In essence, National Pku News plays a crucial role in supporting and educating the PKU community, ensuring they have the necessary resources to manage their condition effectively.
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Impact
July, 2024
National PKU News has had a significant impact by providing essential information and support to patients and their families affected by Phenylketonuria (PKU). Through its various platforms such as HowMuchPhe.org, CookForLove.org, and the Go Low Pro app, the organization enables community members to effectively manage their restrictive diets, leading to improved health outcomes and quality of life.
The services offered by National PKU News have attracted a diverse user base, with approximately 2,000 paying subscribers on HowMuchPhe.org, 10,000 users registered for free accounts on CookForLove.org, and 1,000 users of the Go Low Pro app. This widespread reach indicates the organization's impact in reaching and assisting a significant number of individuals dealing with PKU.
By disseminating crucial information, providing tools for diet management, and fostering a supportive community, National PKU News plays a vital role in enhancing the well-being of those affected by PKU. The organization's efforts contribute to raising awareness, improving treatment outcomes, and ultimately making a positive difference in the lives of patients and families impacted by this genetic disorder.
This information is meant to be a general summary of National Pku News. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $589
- Program Service Revenue: $123,071
- Gross Receipts: $844,372
Assets and Liabilities:
- Total Assets: $1,267,796
- Total Liabilities: $55,929
- Net Assets: $1,211,867
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
RESOURCE MATERIALS
Revenue
$21,447
SUBSCRIPTIONS AND SUPPORT
Revenue
$101,624
Organization Details
Founding Year
1989
Phone
(973) 619-9160Principal Officer
Sarah Chamberlin
Main Address
PO BOX 43552, MONTCLAIR, NJ, 07043
Website
www.pkunews.orgNTEE Category
Code: G80 - Disease
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