Overview
What is Hydrocephalus Association?
The Hydrocephalus Association (HA) is a committed nonprofit organization located in Bethesda, Maryland. Their primary goal is to discover a cure for hydrocephalus and improve the lives of those affected by this condition. HA achieves this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research. Their initiatives include HAPPIER, HANDS, Hydrocephalus Clinical Research Network (HCRN), and Adult Hydrocephalus Clinical Research Network (AHCRN). HAPPIER provides a platform for patients and caregivers to engage in research, while HANDS supports basic and translational research. The pediatric-focused HCRN and adult-focused AHCRN offer the necessary structure and expertise to test new technologies and clinical therapies with the highest clinical standards, creating a pipeline from bench to bedside. With a workforce of 23 individuals, HA is dedicated to turning research findings into real-world solutions for hydrocephalus patients.
Official website here: www.hydroassoc.org
What are the reviews and ratings of this charity?
Charity Navigator Rating 100%
The Hydrocephalus Association has achieved a Four-Star out of Four Star rating on Charity Navigator, reflecting its strong commitment to accountability and financial management, with perfect scores in several key areas. The organization has a notably high program expense ratio, indicating that a significant portion of its budget is directed toward its mission rather than administrative costs. Furthermore, the organization boasts an entirely independent board, which is crucial for maintaining transparency and trustworthiness.
User feedback highlights the Hydrocephalus Association's invaluable support for individuals affected by hydrocephalus. Many reviews emphasize the organization's educational resources, community-building efforts, and advocacy initiatives, which are praised for improving the quality of life for those living with the condition. Reviews consistently commend the staff's accessibility and dedication, fostering a supportive environment for families navigating the challenges of hydrocephalus.
While the organization showcases numerous strengths, including robust research initiatives and exceptional community engagement, there appears to be no significant limitations mentioned in the feedback. This overall positive sentiment collectively presents the Hydrocephalus Association as a vital resource for affected individuals and their families, driving hope and progress in the field of hydrocephalus.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Hydrocephalus Association legitimate?
Hydrocephalus Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hydrocephalus Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $661,844
Professional Fundraising Fees: $0
Other Salaries and Wages: $873,787
For more financial information, click here
Official website here: www.hydroassoc.org
What is the mission statement of Hydrocephalus Association?
The Hydrocephalus Association aims to find a cure for hydrocephalus and enhance the lives of those affected by the condition. They plan to accomplish this objective by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research for the prevention, treatment, and cure of hydrocephalus. The organization continues to support high-quality research through initiatives like the Hydrocephalus Association Patient Powered Interactive Engagement Registry (HAPPIER), the Hydrocephalus Network for Discovery Science (HANDS), the Hydrocephalus Clinical Research Network (HCRN), and the Adult Hydrocephalus Clinical Research Network (AHCRN). HAPPIER offers patients and caregivers the chance to engage in research while providing researchers with crucial data. HANDS facilitates connections, technology, and tools for innovative basic and translational research, while the pediatric-focused HCRN and adult-focused AHCRN provide the necessary structure and expertise to thoroughly test new technologies and clinical therapies with the highest clinical standards, creating a pipeline from the bench to the bedside.
Official website here: www.hydroassoc.org
Who is the CEO of Hydrocephalus Association?
Diana Gray is the Chair of Hydrocephalus Association. The CEO's salary of Hydrocephalus Association is $216,015 and their total compensation is $237,463.
Official website here: www.hydroassoc.org
What is the revenue of Hydrocephalus Association?
Hydrocephalus Association's revenue in 2022 was $4,148,543.
Official website here: www.hydroassoc.org
Who are the executives of Hydrocephalus Association and what are their salaries?
The average compensation at Hydrocephalus Association during 2022 was $66,767. There are 23 employees and 1700 volunteers at Hydrocephalus Association.
Here are 25 key members and their salaries (Hydrocephalus Association's CEO's salary is $216,015 and their total compensation is $237,463):
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Official website here: www.hydroassoc.org
Where can I find the form 990 for Hydrocephalus Association?
Hydrocephalus Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.hydroassoc.org
Learn more at the official website: www.hydroassoc.org
Mission Statement of Hydrocephalus Association
The Hydrocephalus Association, a dedicated organization, aims to find a cure for hydrocephalus and improve the lives of those affected by this condition. They plan to achieve this objective by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research. This research is aimed at preventing, treating, and ultimately curing hydrocephalus.
To execute this mission, the Hydrocephalus Association supports various research initiatives. One such initiative is the Hydrocephalus Association Patient Powered Interactive Engagement Registry (HAPPIER), which provides patients and caregivers the opportunity to engage in research while providing researchers with critical data. Another initiative is the Hydrocephalus Network for Discovery Science (HANDS), which provides the necessary connections, technology, and tools to spur and support innovative basic and translational research. The Hydrocephalus Clinical Research Network (HCRN) and the Adult Hydrocephalus Clinical Research Network (AHCRN) provide the structure and expertise necessary to efficiently and thoroughly test new technologies and clinical therapies with the highest clinical standards. By linking basic, translational, and clinical researchers, the Hydrocephalus Association has created a pipeline to move research from the bench to the bedside.
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Impact
July, 2024
The Hydrocephalus Association's impact lies in its dedication to finding a cure for hydrocephalus and improving the lives of those affected by the condition. Through initiatives such as the HA Patient Powered Interactive Engagement Registry (HAPPIER), HA Network for Discovery Science (HANDS), Hydrocephalus Clinical Research Network (HCRN), and Adult HCRN (AHCRN), the organization supports high-quality, high-impact research in collaboration with patients, caregivers, researchers, and industry partners. By linking basic, translational, and clinical researchers, the Hydrocephalus Association creates a pipeline to move research from the bench to the bedside, aiming to prevent, treat, and ultimately cure hydrocephalus.
This information is meant to be a general summary of Hydrocephalus Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $48,407
- Gross Receipts: $4,347,634
Assets and Liabilities:
- Total Assets: $4,516,368
- Total Liabilities: $852,119
- Net Assets: $3,664,249
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Organization Details
Founding Year
1986
Phone
(301) 202-3811Principal Officer
Diana Gray
Main Address
4340 EAST WEST HIGHWAY 905, BETHESDA, MD, 20814
Website
www.hydroassoc.orgNTEE Category
Code: G48Z - Disease
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