Overview
What is Support Organization For Trisomy 1813 - Soft Inc?
Support Organization for Trisomy 1813 - Soft Inc is a nonprofit organization dedicated to supporting and offering comfort to families affected by Trisomy 18/13. Their primary mission involves providing understanding and encouragement to these families. They also organize educational conferences and seminars, delivering medical information related to Trisomy 18/13 to both families and professionals. By doing so, they aim to create a more informed and supportive community for individuals with Trisomy 18/13.
What are the reviews and ratings of this charity?
Charity Navigator Rating: Not Available
Support Organization For Trisomy 18/13 - Soft Inc has received positive feedback from users on Great Nonprofits. Many reviews highlight the organization's extensive experience, with over 30 years dedicated to supporting families facing the challenges of trisomy conditions. Users commend the organization for providing hope and resources during difficult times, emphasizing its role in fostering a supportive community.
Reviewers, including a board member and a long-time volunteer, express high satisfaction with the services offered, noting that the organization is a vital resource for families. They appreciate the wealth of information available, from medical literature to support groups, and recommend participation in annual conferences for enhanced community connection and support.
While the reviews are overwhelmingly positive, there is no formal rating from Charity Navigator to assess financial health or accountability. However, the strong testimonials reflect the organization's commitment to serving families and providing essential support for both expectant parents and those caring for living survivors.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Support Organization For Trisomy 1813 - Soft Inc legitimate?
Support Organization For Trisomy 1813 - Soft Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Support Organization For Trisomy 1813 - Soft Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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What is the mission statement of Support Organization For Trisomy 1813 - Soft Inc?
The Support Organization for Trisomy 1813 - Soft Inc, in its mission, aims to offer support, understanding, and encouragement to families who have individuals with Trisomy 18/13. They accomplish this by organizing conferences and seminars, serving as a platform to disseminate medical information about Trisomy 18/13 to both families and healthcare professionals. The organization's objectives include providing a supportive environment and facilitating the sharing of experiences and knowledge, thereby promoting understanding and acceptance of individuals with Trisomy 18/13 within their communities.
Who is the CEO of Support Organization For Trisomy 1813 - Soft Inc?
Dave Vanherreweghe is the President of Support Organization For Trisomy 1813 - Soft Inc.
What is the revenue of Support Organization For Trisomy 1813 - Soft Inc?
Support Organization For Trisomy 1813 - Soft Inc's revenue in 2023 was $148,862.
Who are the executives of Support Organization For Trisomy 1813 - Soft Inc and what are their salaries?
Here are 20 key members and their salaries:
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Where can I find the form 990 for Support Organization For Trisomy 1813 - Soft Inc?
Support Organization For Trisomy 1813 - Soft Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Mission Statement of Support Organization For Trisomy 1813 - Soft Inc
Support Organization for Trisomy 1813 - Soft Inc is dedicated to offering assistance, empathy, and motivation to families with loved ones diagnosed with Trisomy 18/13. Beyond providing emotional support, the organization also conducts educational seminars and conferences, sharing medical information on Trisomy 18/13 with both families and healthcare professionals. By doing so, Support Organization for Trisomy 1813 - Soft Inc aims to enrich the lives of those affected by this genetic disorder, fostering a community of understanding and empowerment.
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Impact
October, 2024
Support Organization For Trisomy 1813 - Soft Inc plays a crucial role in enhancing the lives of families impacted by Trisomy 18/13. Through its dedicated efforts, it offers essential support, understanding, and encouragement to those navigating the complexities associated with these conditions. The organization provides valuable resources, fostering a sense of community among families who face similar challenges.
By organizing conferences and seminars, SOFT Inc facilitates the exchange of vital medical information, ensuring that families and healthcare professionals are well-informed about Trisomy 18/13. This educational initiative not only empowers families with knowledge but also helps promote best practices among medical professionals, potentially improving care for affected individuals.
Overall, SOFT Inc serves as a beacon of hope and a vital resource for families, helping them cope with the emotional and practical aspects of living with Trisomy 18/13 while advocating for better understanding and awareness of these rare conditions in the broader community.
This information is meant to be a general summary of Support Organization For Trisomy 1813 - Soft Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $7,423
- Program Service Revenue: $4,930
- Gross Receipts: $148,862
Assets and Liabilities:
- Total Assets: $574,986
- Total Liabilities: $0
- Net Assets: $574,986
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conferences and Seminars
Revenue
$4,930
Organization Details
Principal Officer
Dave Vanherreweghe
Main Address
2982 SOUTH UNION ST, ROCHESTER, NY, 14624
NTEE Category
Code: G20 - Disease
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