Overview
What is Foundation For Ichthyosis And Related Skin Types Inc?
The Foundation For Ichthyosis And Related Skin Types Inc, commonly referred to as FIRST, is a nonprofit organization based in Lansdale, Pennsylvania. Their primary mission is to enhance the lives of individuals and families impacted by ichthyosis and related skin types. To achieve this, FIRST conducts educational programs and events, such as patient support forums, and disseminates essential information about these conditions through their website and knowledgeable staff. They maintain an active social media presence and facilitate group discussions. FIRST is dedicated to providing accurate, unbiased information on the latest advancements in research, diagnosis, and management of these genetic conditions, offering critical support to those affected and their caregivers. With a team of three employees, they strive to seek cures and improve the quality of life for those affected by ichthyosis and related skin types.
Official website here: www.firstskinfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%
The Foundation for Ichthyosis and Related Skin Types Inc (FIRST) has received a remarkable Four-Star out of Four Star rating from Charity Navigator, reflecting its exemplary accountability and finance practices. The organization achieved a perfect score of 100% in this category, which is significant as it indicates a high level of transparency and sound financial management. Key strengths include a fully independent board, well-maintained financial oversight, and comprehensive policies that ensure accountability.
User feedback highlights the vital role FIRST plays for families affected by ichthyosis. Clients express appreciation for the organization's extensive resources and support, which provide critical information and comfort during challenging times. Reviews mention how FIRST has been instrumental in guiding families through the complexities of managing this rare condition, offering not only emotional support but also practical assistance in navigating medical challenges.
While the ratings and reviews are overwhelmingly positive, they do not detail any specific limitations or areas for improvement. The organization's strong financial standing and the personal experiences shared by clients suggest that FIRST is a reliable and impactful resource for those affected by ichthyosis.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Foundation For Ichthyosis And Related Skin Types Inc legitimate?
Foundation For Ichthyosis And Related Skin Types Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Foundation For Ichthyosis And Related Skin Types Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $170,719
Professional Fundraising Fees: $0
Other Salaries and Wages: $126,392
For more financial information, click here
Official website here: www.firstskinfoundation.org
What is the mission statement of Foundation For Ichthyosis And Related Skin Types Inc?
The Foundation For Ichthyosis And Related Skin Types Inc is committed to enhancing the lives of individuals and families affected by ichthyosis and related skin types. Their mission is twofold: to improve lives and seek cures for these conditions. They achieve this by providing educational resources, fostering connections, and offering critical information to their members and the general public. This is done through patient support forums, an informative website, and accessible phone support. The organization also maintains an active social media presence, promoting group discussions and offering a platform for individuals to share their experiences. Furthermore, the Foundation presents unbiased, up-to-date information on research, diagnosis, and management of these genetic conditions, providing vital support to those affected and their caregivers.
Official website here: www.firstskinfoundation.org
Who is the CEO of Foundation For Ichthyosis And Related Skin Types Inc?
Christopher Boynton is the Chief Exec. of Foundation For Ichthyosis And Related Skin Types Inc.
Official website here: www.firstskinfoundation.org
What is the revenue of Foundation For Ichthyosis And Related Skin Types Inc?
Foundation For Ichthyosis And Related Skin Types Inc's revenue in 2022 was $708,551.
Official website here: www.firstskinfoundation.org
Who are the executives of Foundation For Ichthyosis And Related Skin Types Inc and what are their salaries?
The average compensation at Foundation For Ichthyosis And Related Skin Types Inc during 2022 was $99,037. There are 3 employees and 80 volunteers at Foundation For Ichthyosis And Related Skin Types Inc.
Here are 15 key members and their salaries:
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Official website here: www.firstskinfoundation.org
Where can I find the form 990 for Foundation For Ichthyosis And Related Skin Types Inc?
Foundation For Ichthyosis And Related Skin Types Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.firstskinfoundation.org
Learn more at the official website: www.firstskinfoundation.org
Mission Statement of Foundation For Ichthyosis And Related Skin Types Inc
The Foundation for Ichthyosis and Related Skin Types Inc is committed to improving the lives and seeking cures for individuals affected by ichthyosis and related skin types. In pursuit of this mission, the foundation works tirelessly to educate, inspire, and connect families and individuals affected by these conditions. Through patient support forums, the organization provides critical information to its members and the general public, ensuring that everyone has access to accurate, non-biased data on the latest research, diagnosis, and management of these genetic conditions.
The foundation's activities extend beyond mere information dissemination. It maintains an active social media presence, facilitating group discussions and fostering a sense of community among those affected by ichthyosis and related skin types. Moreover, the foundation's knowledgeable staff is always available to answer calls and queries, offering guidance and support to those in need. In a nutshell, the Foundation for Ichthyosis and Related Skin Types Inc is dedicated to making a positive impact on the lives of those affected by these conditions, providing them with the resources, support, and information they need to navigate their journey with confidence and hope.
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Impact
July, 2024
Foundation For Ichthyosis And Related Skin Types Inc has a significant impact on improving the lives of individuals affected by ichthyosis and related skin types. The organization educates, inspires, and connects families and individuals facing these genetic conditions. By hosting patient support forums, providing critical information through their website and knowledgeable staff, and maintaining an active social media presence, they offer valuable support and resources to those in need.
Additionally, the Foundation For Ichthyosis And Related Skin Types Inc ensures that accurate, non-biased information on the latest research, diagnosis, and management of ichthyosis and related skin types is available to both their members and the general public. This access to up-to-date information is crucial in helping individuals and caregivers effectively navigate these conditions.
Overall, the Foundation For Ichthyosis And Related Skin Types Inc plays a vital role in providing support, education, and resources to those affected by ichthyosis and related skin types, ultimately working towards improving their quality of life and advancing research towards finding cures for these conditions.
This information is meant to be a general summary of Foundation For Ichthyosis And Related Skin Types Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $89,104
- Gross Receipts: $2,048,807
Assets and Liabilities:
- Total Assets: $1,958,602
- Total Liabilities: $32,271
- Net Assets: $1,926,331
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Organization Details
Founding Year
1981
Phone
(215) 977-9400Principal Officer
Christopher Boynton
Main Address
PO BOX 1067, LANSDALE, PA, 19446
Website
www.firstskinfoundation.orgNTEE Category
Code: G80 - Disease
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