Overview
What is Alagille Syndrome Alliance?
The Alagille Syndrome Alliance is a dedicated nonprofit organization, situated undisclosed, committed to supporting individuals and families impacted by Alagille Syndrome. Their mission encompasses mobilizing resources, fostering connections, and advocating for a cure to enrich and empower those living with the condition. By raising awareness, providing patient education, collaborating in research, and advocating on behalf of families, the Alagille Syndrome Alliance seeks to improve the quality of life for those affected. Their goal is to inspire hope, empower affected individuals, and promote unity within the Alagille Syndrome community.
Official website here: www.alagille.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 87% (Three-Star out of Four Stars)
The Alagille Syndrome Alliance (ALGSA) has earned an 87% rating from Charity Navigator, indicating strong accountability and financial health. The organization has a majority of independent board members and a high score in program expenses, reflecting its commitment to utilizing funds effectively in support of its mission. Although it lacks a whistleblower policy and some documentation retention procedures, the overall financial structure appears robust.
User feedback from Great Nonprofits highlights the profound impact the ALGSA has on families affected by Alagille Syndrome. Many reviews praise the organization for providing critical resources, emotional support, and a sense of community to those navigating the complexities of this rare disease. Families express gratitude for the assistance offered, particularly during difficult times such as medical challenges and financial strains.
While the strengths of ALGSA are apparent in the testimonials, there are limitations noted in its policies that could be addressed to enhance its governance practices. Nevertheless, the overwhelming positive feedback from users illustrates the organization's vital role in fostering connections and advocating for families impacted by Alagille Syndrome.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Alagille Syndrome Alliance?
98% of 16 reviewers on Facebook recommend the Alagille Syndrome Alliance. Here is a summary of their reviews:
Many individuals express gratitude for the support and information provided by the nonprofit, noting that it has significantly helped them understand Alagille syndrome. One reviewer shared a heartfelt account of how the organization offered essential insights into their and their child's condition, fostering a sense of community and reassurance that they are not isolated in their experience.
Overall, it is clear that this nonprofit is making a meaningful impact by assisting families affected by Alagille syndrome, enabling them to navigate their challenges with greater knowledge and support.
This AI summary has been generated from reviews found on Facebook.
Is Alagille Syndrome Alliance legitimate?
Alagille Syndrome Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Alagille Syndrome Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $158,179
For more financial information, click here
Official website here: www.alagille.org
What is the mission statement of Alagille Syndrome Alliance?
The Alagille Syndrome Alliance's mission is to mobilize resources, establish connections, promote unity, and advocate for a cure. Their primary goal is to inspire, empower, and enrich the lives of individuals affected by Alagille Syndrome. They achieve this by raising awareness about the disease, providing patient education, collaborating in research, and advocating for families affected by Alagille Syndrome. The Alliance's activities are aimed at inspiring, empowering, and enriching the lives of those living with Alagille Syndrome, thereby improving their overall quality of life.
Official website here: www.alagille.org
Who is the CEO of Alagille Syndrome Alliance?
Roberta Smith is the President of Alagille Syndrome Alliance.
Official website here: www.alagille.org
What is the revenue of Alagille Syndrome Alliance?
Alagille Syndrome Alliance's revenue in 2022 was $585,146.
Official website here: www.alagille.org
Who are the executives of Alagille Syndrome Alliance and what are their salaries?
The average compensation at Alagille Syndrome Alliance during 2022 was $158,179. There is 1 employee and 15 volunteers at Alagille Syndrome Alliance.
Here are 5 key members and their salaries:
- Compensation: $57,990
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.alagille.org
Where can I find the form 990 for Alagille Syndrome Alliance?
Alagille Syndrome Alliance's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.alagille.org
Learn more at the official website: www.alagille.org
Mission Statement of Alagille Syndrome Alliance
The Alagille Syndrome Alliance, a committed organization, aims to mobilize resources, foster connections, and advocate for a cure to enrich and empower individuals living with Alagille Syndrome. This mission is driven by the desire to inspire and uplift these individuals, providing them with a sense of unity and community. The alliance works tirelessly to raise awareness about the disease, offer patient education, collaborate in research, and advocate on behalf of families affected by Alagille Syndrome. By doing so, they strive to improve the quality of life for those living with this condition. The Alagille Syndrome Alliance serves as a beacon of hope and support, working relentlessly to provide solace, knowledge, and advocate for the rights of individuals and their families impacted by Alagille Syndrome.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
Alagille Syndrome Alliance's impact can be seen in its dedication to mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people living with Alagille Syndrome. By raising disease awareness, providing patient education, collaborating in research, and advocating for families with Alagille syndrome, the organization works tirelessly to make a difference in the lives of those affected by this rare genetic disorder. Their mission to inspire, empower, and enrich the lives of individuals with Alagille Syndrome and their families is a testament to their commitment to making a meaningful impact in the community.
This information is meant to be a general summary of Alagille Syndrome Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$2,097
- Program Service Revenue: $17,492
- Gross Receipts: $585,146
Assets and Liabilities:
- Total Assets: $468,720
- Total Liabilities: $1,924
- Net Assets: $466,796
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SYMPOSIUM REGISTRATION
Revenue
$15,141
ALGSA MERCHANDISE
Revenue
$2,351
Organization Details
Founding Year
1997
Phone
(901) 286-8869Principal Officer
Roberta Smith
Main Address
PO BOX 22, COLLIERVILLE, TN, 38027
Website
www.alagille.orgNTEE Category
Code: H41 - Medical research
If you are a representative of Alagille Syndrome Alliance and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.