Overview
What is Alagille Syndrome Alliance?
The Alagille Syndrome Alliance is a dedicated nonprofit organization, situated undisclosed, committed to supporting individuals and families impacted by Alagille Syndrome. Their mission encompasses mobilizing resources, fostering connections, and advocating for a cure to enrich and empower those living with the condition. By raising awareness, providing patient education, collaborating in research, and advocating on behalf of families, the Alagille Syndrome Alliance seeks to improve the quality of life for those affected. Their goal is to inspire hope, empower affected individuals, and promote unity within the Alagille Syndrome community.
Official website here: www.alagille.org
Is Alagille Syndrome Alliance legitimate?
Alagille Syndrome Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Alagille Syndrome Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $158,179
For more financial information, click here
What is the mission statement of Alagille Syndrome Alliance?
The Alagille Syndrome Alliance's mission is to mobilize resources, establish connections, promote unity, and advocate for a cure. Their primary goal is to inspire, empower, and enrich the lives of individuals affected by Alagille Syndrome. They achieve this by raising awareness about the disease, providing patient education, collaborating in research, and advocating for families affected by Alagille Syndrome. The Alliance's activities are aimed at inspiring, empowering, and enriching the lives of those living with Alagille Syndrome, thereby improving their overall quality of life.
Official website here: www.alagille.org
Who is the CEO of Alagille Syndrome Alliance?
Roberta Smith is the President of Alagille Syndrome Alliance.
Official website here: www.alagille.org
What is the revenue of Alagille Syndrome Alliance?
Who are the executives of Alagille Syndrome Alliance and what are their salaries?
The average compensation at Alagille Syndrome Alliance during 2022 was $158,179. There are 1 employees and 15 volunteers at Alagille Syndrome Alliance.
Here are 5 key members and their salaries:
- Roberta Smith (President)
- Julia Bird (Director)
- Mike Larosa (Director)
- Shamy Ravishankar (Director)
- Todd Allen (Treasurer)
Official website here: www.alagille.org
Where can I find the form 990 for Alagille Syndrome Alliance?
The Alagille Syndrome Alliance’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.alagille.org
Learn more at the official website: www.alagille.org
Mission Statement of Alagille Syndrome Alliance
The Alagille Syndrome Alliance, a committed organization, aims to mobilize resources, foster connections, and advocate for a cure to enrich and empower individuals living with Alagille Syndrome. This mission is driven by the desire to inspire and uplift these individuals, providing them with a sense of unity and community. The alliance works tirelessly to raise awareness about the disease, offer patient education, collaborate in research, and advocate on behalf of families affected by Alagille Syndrome. By doing so, they strive to improve the quality of life for those living with this condition. The Alagille Syndrome Alliance serves as a beacon of hope and support, working relentlessly to provide solace, knowledge, and advocate for the rights of individuals and their families impacted by Alagille Syndrome.
Impact
This information is meant to be a general summary of Alagille Syndrome Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
Alagille Syndrome Alliance's impact can be seen in its dedication to mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people living with Alagille Syndrome. By raising disease awareness, providing patient education, collaborating in research, and advocating for families with Alagille syndrome, the organization works tirelessly to make a difference in the lives of those affected by this rare genetic disorder. Their mission to inspire, empower, and enrich the lives of individuals with Alagille Syndrome and their families is a testament to their commitment to making a meaningful impact in the community.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SYMPOSIUM REGISTRATION
Revenue
$15,141
ALGSA MERCHANDISE
Revenue
$2,351
Organization Details
Founding Year
1997
Phone
(901) 286-8869
Principal Officer
Roberta Smith
Main Address
PO BOX 22, COLLIERVILLE, TN, 38027
Website
www.alagille.org
NTEE Category
Code: H41 - Medical research
If you are a representative of Alagille Syndrome Alliance and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.