Overview
What is United States Adult Cystic Fibrosis Association?
The United States Adult Cystic Fibrosis Association is a nonprofit organization situated in Beaverton, Oregon. Their primary mission is to educate the public about Cystic Fibrosis, a chronic condition, through a published newsletter titled "CF Roundtable." Beyond this, they engage in community outreach activities, offer scholarships to students afflicted with the disease, and participate in annual conferences to gather information on Cystic Fibrosis. Their services extend beyond mere information dissemination, providing assistance and support to individuals and families affected by the disease.
What are the reviews and ratings of this charity?
Charity Navigator Rating: 53%, One-Star out of Four Stars
The United States Adult Cystic Fibrosis Association (USACFA) has received a low rating primarily due to significant concerns regarding its accountability and finance practices. The organization lacks independent board members, which raises questions about governance and oversight. Additionally, there are missing policies related to conflicts of interest, whistleblower protections, and document retention, which are critical for transparency. However, it has scored well in areas such as the ratio of program expenses to total expenses, indicating that funds are primarily allocated towards its programs.
Despite these governance issues, USACFA has received positive feedback from individuals in the cystic fibrosis community. A board member highlighted the association's commitment to centering the voices of adults living with cystic fibrosis and providing valuable support through scholarships and community publications. The board's personal connection to the cause enhances their understanding of the unique needs of adult patients.
Overall, while USACFA demonstrates a strong commitment to its mission and the community it serves, its low rating from Charity Navigator reflects serious governance deficiencies that potential donors should consider when evaluating support for the organization.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is United States Adult Cystic Fibrosis Association legitimate?
United States Adult Cystic Fibrosis Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. United States Adult Cystic Fibrosis Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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What is the mission statement of United States Adult Cystic Fibrosis Association?
The United States Adult Cystic Fibrosis Association is dedicated to providing education, information, and assistance related to Cystic Fibrosis. They achieve this goal by publishing a newsletter and sending delegates to annual conferences to gather information about the disease. Additionally, the organization provides educational materials and support to the public through their published newsletter, "CF Roundtable." They also engage in community outreach activities, offer scholarships to students with Cystic Fibrosis, and host conferences.
Who is the CEO of United States Adult Cystic Fibrosis Association?
Sydna Marshall is the President of United States Adult Cystic Fibrosis Association.
What is the revenue of United States Adult Cystic Fibrosis Association?
United States Adult Cystic Fibrosis Association's revenue in 2022 was $94,318.
Who are the executives of United States Adult Cystic Fibrosis Association and what are their salaries?
Here are 6 key members and their salaries:
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Where can I find the form 990 for United States Adult Cystic Fibrosis Association?
United States Adult Cystic Fibrosis Association's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of United States Adult Cystic Fibrosis Association
The United States Adult Cystic Fibrosis Association is dedicated to enlightening the public and offering assistance regarding the understanding and treatment of Cystic Fibrosis. To accomplish this mission, the organization publishes a newsletter titled "CF Roundtable" and sends delegates to annual conferences to gather information on the disease. Beyond educational initiatives, the association provides community outreach activities, scholarships for students with Cystic Fibrosis, and organizes conferences. The overall goal of the United States Adult Cystic Fibrosis Association is to serve as a reliable source of information and support for individuals and families affected by Cystic Fibrosis, thereby promoting a better understanding of the disease and its management.
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Impact
October, 2024
The United States Adult Cystic Fibrosis Association significantly impacts the lives of individuals affected by cystic fibrosis through education, support, and outreach. By publishing the "CF Roundtable" newsletter, the organization disseminates valuable information and resources that inform the public and those living with the disease about treatment options and advancements in care.
In addition to educational materials, the association engages in community outreach activities, fostering connections among patients, families, and healthcare providers. This work helps raise awareness about cystic fibrosis and creates a supportive network for individuals navigating the challenges of the condition.
The organization also offers scholarships to students with cystic fibrosis, empowering them to pursue higher education and achieve their goals despite the obstacles posed by their health. By sending delegates to annual conferences, they ensure that their community is informed about the latest research and developments in cystic fibrosis treatment, further enhancing their advocacy and support efforts.
Overall, the United States Adult Cystic Fibrosis Association plays a crucial role in improving the quality of life for those impacted by cystic fibrosis, promoting awareness, and advocating for better treatment and support systems.
This information is meant to be a general summary of United States Adult Cystic Fibrosis Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $3,229
- Gross Receipts: $94,318
Assets and Liabilities:
- Total Assets: $790,878
- Total Liabilities: $0
- Net Assets: $790,878
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Organization Details
Phone
(512) 413-3434Principal Officer
Sydna Marshall
Main Address
9450 SW Gemini Dr PMB 43881, BEAVERTON, OR, 97008
NTEE Category
Code: Z99Z - Unknown
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