Overview
What is Fanconi Anemia Research Fund Inc?
Fanconi Anemia Research Fund Inc, situated in Eugene, Oregon, is a dedicated nonprofit organization with a mission to combat Fanconi Anemia, a rare genetic disorder. They conduct significant research initiatives, including managing the STAND UP TO CANCER project, awarding and overseeing research grants, and overseeing the Fanconi Anemia Research Materials Project. Their virtual tumor board, clinical registry, and various projects aim to advance treatments and potentially find a cure for this disease. Additionally, they provide educational and supportive services to families worldwide, keeping the Fanconi Anemia guidelines manual up-to-date and managing the Fanconi Anemia Cancer Consortium and Brush Biopsy Project. With a team of 11 individuals, they actively convene meetings and collaborate with various projects to advance their mission.
Official website here: www.fanconi.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 90% (Four-Star out of Four Stars)
Fanconi Anemia Research Fund Inc (FARF) holds a strong Four-Star rating from Charity Navigator, reflecting its commitment to accountability and effective financial management. With a high accountability score of 90%, the organization demonstrates robust governance with 100% independent board members and no material diversion of assets. However, it does have some gaps, including missing whistleblower and document retention policies, which could be areas for improvement.
User feedback from GreatNonprofits highlights FARF's impactful role in the lives of families affected by Fanconi Anemia. Reviewers express heartfelt gratitude for the organization’s support, particularly in providing vital information and emotional comfort during challenging times. Many users emphasize that the research and programs funded by FARF have led to significant medical advancements, including life-saving procedures.
Despite some organizational weaknesses in policy documentation, FARF's strengths lie in its clear strategic goals and its ability to function effectively with a limited budget. The feedback underscores a strong community trust in the nonprofit as a lifeline for families facing this rare disease, highlighting its dedication and significant contributions to advancing research and family support.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Fanconi Anemia Research Fund Inc legitimate?
Fanconi Anemia Research Fund Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fanconi Anemia Research Fund Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $258,187
Professional Fundraising Fees: $0
Other Salaries and Wages: $532,982
For more financial information, click here
Official website here: www.fanconi.org
What is the mission statement of Fanconi Anemia Research Fund Inc?
Fanconi Anemia Research Fund Inc is dedicated to finding effective treatments and a cure for Fanconi Anemia. Their mission encompasses providing education and support services to families affected by this condition on a global scale. The organization carries out various research initiatives, including managing grants, overseeing research projects, and updating guidelines related to Fanconi Anemia. They also participate in collaborative efforts, such as the Fanconi Anemia Cancer Consortium, to advance research in this field. Additionally, they offer resources and support to families affected by Fanconi Anemia.
Official website here: www.fanconi.org
Who is the CEO of Fanconi Anemia Research Fund Inc?
Mark Quinlan is the Executive Director of Fanconi Anemia Research Fund Inc.
Official website here: www.fanconi.org
What is the revenue of Fanconi Anemia Research Fund Inc?
Fanconi Anemia Research Fund Inc's revenue in 2022 was $3,171,988.
Official website here: www.fanconi.org
Who are the executives of Fanconi Anemia Research Fund Inc and what are their salaries?
The average compensation at Fanconi Anemia Research Fund Inc during 2022 was $71,924. There are 11 employees and 125 volunteers at Fanconi Anemia Research Fund Inc.
Here are 15 key members and their salaries:
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Official website here: www.fanconi.org
Where can I find the form 990 for Fanconi Anemia Research Fund Inc?
Fanconi Anemia Research Fund Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fanconi.org
Learn more at the official website: www.fanconi.org
Mission Statement of Fanconi Anemia Research Fund Inc
Fanconi Anemia Research Fund Inc is dedicated to two primary objectives: discovering effective treatments and ultimately finding a cure for Fanconi Anemia, and providing education and support services to families impacted by this condition on a global scale. To achieve these goals, the organization engages in various research initiatives. One of their key projects is the 'Stand Up to Cancer' project, which they advance, while also managing research grants and overseeing the Fanconi Anemia Research Materials Project. They also maintain the Fanconi Anemia Guidelines Manual, manage the Fanconi Anemia Cancer Consortium, and oversee the Fanconi Anemia Brush Biopsy Project. Additionally, Fanconi Anemia Research Fund Inc convenes FARF Sparks Meetings, awards researchers, manages a virtual tumor board, and advances their clinical registry. Through these initiatives, the organization aims to contribute significantly to the fight against Fanconi Anemia, offering hope and support to affected families worldwide.
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Impact
July, 2024
Fanconi Anemia Research Fund Inc has made a significant impact in the field of medical research. By funding research initiatives such as the Stand Up To Cancer project, managing research grants, overseeing clinical registries, and advancing the Fanconi Anemia Cancer Consortium, they are actively working towards finding effective treatments and a cure for Fanconi Anemia. Additionally, they provide education and support services to families worldwide, further enhancing their impact on the community. Their dedication to advancing research and supporting families affected by Fanconi Anemia demonstrates their commitment to making a difference in the fight against this disease.
This information is meant to be a general summary of Fanconi Anemia Research Fund Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $164,989
- Program Service Revenue: $23,549
- Gross Receipts: $3,171,988
Assets and Liabilities:
- Total Assets: $7,540,304
- Total Liabilities: $629,031
- Net Assets: $6,911,273
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
REGISTRATION FEES
Revenue
$23,549
Organization Details
Founding Year
1989
Phone
(541) 687-4658Principal Officer
Mark Quinlan
Main Address
360 EAST 10TH AVE SUITE 201, EUGENE, OR, 97401
Website
www.fanconi.orgNTEE Category
Code: H900 - Medical research
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