Northwest Rett Syndrome Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 930979668 ✦ Seattle, WA ✦ Designated as a 501(c)(3)

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Overview

What is Northwest Rett Syndrome Association?

The Northwest Rett Syndrome Association is a nonprofit organization that actively engages in hosting two annual conferences. These events bring together renowned specialists from both international and local arenas, offering a platform for knowledge exchange and networking. The conferences are held at local resorts, providing a welcoming and comfortable environment. One of the organization's notable contributions is the provision of respite care for all girls with Rett syndrome who attend these conferences. This service aims to offer temporary relief to their caregivers, ensuring that both the girls and their families can benefit from the educational opportunities provided by the conferences.


Official website here: www.nwrettsyndrome.org

Is Northwest Rett Syndrome Association legitimate?

Northwest Rett Syndrome Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Northwest Rett Syndrome Association submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.nwrettsyndrome.org

What is the mission statement of Northwest Rett Syndrome Association?

The Northwest Rett Syndrome Association's mission involves organizing two annual conferences, attracting experts from both international and local sectors. These conferences are held at local resorts, providing a platform for sharing knowledge and insights about Rett Syndrome. Moreover, the association offers respite care during these conferences, ensuring that all girls with Rett Syndrome in attendance can participate without worry. This support service allows families to temporarily step back and recharge, enhancing their ability to care for their loved ones.


Official website here: www.nwrettsyndrome.org

Who is the CEO of Northwest Rett Syndrome Association?

Megan Brown is the President of Northwest Rett Syndrome Association.


Official website here: www.nwrettsyndrome.org

What is the revenue of Northwest Rett Syndrome Association?

Northwest Rett Syndrome Association's revenue in 2021 was $17,856.


Official website here: www.nwrettsyndrome.org

Who are the executives of Northwest Rett Syndrome Association and what are their salaries?


Here are 9 key members and their salaries:


Glenn Lawson (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sharon Sutherland (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Megan Brown (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gary Kostenko (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Phillip Baird (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lexy Deitchler (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Forrest Miller (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Riley Bousson (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Denise Studebaker (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.nwrettsyndrome.org

Where can I find the form 990EZ for Northwest Rett Syndrome Association?

Northwest Rett Syndrome Association's most recent form 990EZ was submitted in 2021 and can be accessed here.


Official website here: www.nwrettsyndrome.org

Learn more at the official website: www.nwrettsyndrome.org

Mission Statement of Northwest Rett Syndrome Association

The Northwest Rett Syndrome Association is dedicated to supporting individuals with Rett Syndrome and their families. A significant part of their mission involves organizing two annual conferences, attracting experts from around the world, as well as nationally and locally. These conferences take place at scenic resorts, providing a welcoming environment for all attendees. Moreover, the organization offers respite care for all girls with Rett Syndrome during these conferences, ensuring their well-being and enabling their families to fully participate in the events. By providing this comprehensive support, the Northwest Rett Syndrome Association aims to create opportunities for learning, connection, and relaxation for those affected by Rett Syndrome.

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Impact




August, 2024

Northwest Rett Syndrome Association's impact on the community is significant. They host two annual conferences featuring international, national, and local experts in the field. These conferences are held at local resorts, providing a valuable opportunity for individuals and families affected by Rett syndrome to access the latest information and support. Additionally, the organization offers respite care for all girls with Rett syndrome in attendance, easing the burden on families and ensuring that everyone can participate fully in the conferences. The association's commitment to providing resources, education, and support for those affected by Rett syndrome in the Seattle area is truly making a difference in the lives of many.




This information is meant to be a general summary of Northwest Rett Syndrome Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$17,856 (2021)
Expenses
$9,668 (2021)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2021.

  • Investment Income: $47
  • Gross Receipts: $17,856

Assets and Liabilities:

  • Total Assets: $51,513
  • Total Liabilities: $0
  • Net Assets: $51,513

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Organization Details

Principal Officer

Megan Brown

Main Address

300 LENORA STREET 638, SEATTLE, WA, 98121

NTEE Category

Code: G20 - Disease

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