Overview
What is The Bleeding Disorder Foundation Of Washington?
The Bleeding Disorder Foundation of Washington (BDFW) is a nonprofit organization situated in Shoreline, Washington, with a mission to empower and advocate for individuals living with bleeding disorders such as hemophilia and Von Willebrand disease. Their primary focus is on educating this community about managing their complex healthcare conditions, recognizing the need for updated instruction at various life stages. With advancements in medical science, BDFW has revamped and updated its educational materials to cater to diverse age groups and cultures. The organization also emphasizes health insurance and navigation, given the substantial costs associated with severe bleeding disorders, like hemophilia, which can exceed $1 million per year. In addition to education, BDFW advocates for access to care for those living with bleeding disorders, recognizing the financial challenges associated with managing such conditions. The nonprofit directly serves over 500 individuals through in-person encounters and provides online education that can be accessed by over 70,000 individuals living with bleeding disorders in Washington State. With a dedicated team of three employees, BDFW continues to make a significant impact in supporting the needs of those affected by bleeding disorders in the state.
Official website here: www.bdfwa.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97%, Four-Star out of Four Stars
The Bleeding Disorder Foundation of Washington has achieved an impressive rating of 97%, which reflects its strong performance in accountability and finance. This high score is derived entirely from its exemplary practices in financial transparency and governance, indicating that the organization effectively manages its resources to fulfill its mission.
The foundation boasts a fully independent board of directors, with all six members meeting the criteria for independence. Additionally, it has implemented robust policies, including those for conflict of interest and whistleblowing, and maintains thorough documentation of board meeting minutes. These practices enhance the organization's credibility and provide confidence to donors regarding its governance.
However, while the financials are strong, the foundation's program expense ratio stands at 81.66%, which indicates that a significant portion of its funding is directed towards programs rather than administrative costs. This is a positive aspect, but it also suggests a need for continued vigilance to ensure that programmatic outcomes are effectively communicated to stakeholders. Overall, the organization demonstrates sound governance and financial management, positioning itself well within the nonprofit sector.
This AI summary has been generated from information found on Charity Navigator.
Is The Bleeding Disorder Foundation Of Washington legitimate?
The Bleeding Disorder Foundation Of Washington is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Bleeding Disorder Foundation Of Washington submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $98,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $154,070
For more financial information, click here
Official website here: www.bdfwa.org
What is the mission statement of The Bleeding Disorder Foundation Of Washington?
The Bleeding Disorder Foundation of Washington, abbreviated as BDFW, empowers and advocates for individuals affected by bleeding disorders such as hemophilia and Von Willebrand disease. Their mission is to support these individuals, while actively promoting research towards finding a cure for these conditions. The foundation focuses on educating those living with bleeding disorders about managing their complex healthcare needs, recognizing the importance of education at various stages of life. As bleeding disorders are lifelong conditions, the foundation has revamped and updated their educational materials to cater to different age groups and cultural backgrounds. Moreover, they provide guidance on healthcare and insurance navigation due to the high cost of managing bleeding disorders, with severe hemophilia medication costing up to $1 million per year. The BDFW directly serves over 500 individuals through in-person education encounters and offers online education to reach over 70,000 individuals living with bleeding disorders in Washington State.
Official website here: www.bdfwa.org
Who is the CEO of The Bleeding Disorder Foundation Of Washington?
Stephanie Simpson is the Executive Director of The Bleeding Disorder Foundation Of Washington.
Official website here: www.bdfwa.org
What is the revenue of The Bleeding Disorder Foundation Of Washington?
The Bleeding Disorder Foundation Of Washington's revenue in 2022 was $493,323.
Official website here: www.bdfwa.org
Who are the executives of The Bleeding Disorder Foundation Of Washington and what are their salaries?
The average compensation at The Bleeding Disorder Foundation Of Washington during 2022 was $84,023. There are 3 employees and 45 volunteers at The Bleeding Disorder Foundation Of Washington.
Here are 7 key members and their salaries:
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- Compensation: $108,000
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- Other: $7,200
Official website here: www.bdfwa.org
Where can I find the form 990 for The Bleeding Disorder Foundation Of Washington?
The Bleeding Disorder Foundation Of Washington's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.bdfwa.org
Learn more at the official website: www.bdfwa.org
Mission Statement of The Bleeding Disorder Foundation Of Washington
The Bleeding Disorder Foundation of Washington, abbreviated as BDFW, is an advocacy organization that empowers and supports individuals living with bleeding disorders such as hemophilia and Von Willebrand disease. Recognizing the significant challenges associated with managing these expensive medical conditions, BDFW advocates for improved access to necessary care.
The mission of BDFW is multifaceted. Primarily, it aims to empower and advocate for people affected by the challenges associated with bleeding disorders. However, the foundation also invests in research to seek a cure for these conditions. By doing so, BDFW seeks to enhance the lives of those affected, providing them with the support they need to navigate their complex healthcare conditions.
In line with its mission, BDFW offers educational programs tailored to different stages of life and subsets of age and gender. Recognizing the cultural and socioeconomic diversity of its community, BDFW ensures that its educational materials are culturally and socioeconomically appropriate. Furthermore, the foundation offers guidance on health insurance navigation, which is crucial due to the exorbitant cost of managing severe bleeding disorders. The BDFW's educational programs directly serve over 500 individuals through in-person encounters and offer online education to over 70,000 living with bleeding disorders in Washington State.
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Impact
July, 2024
The Bleeding Disorder Foundation Of Washington's impact is significant in advocating for access to care for those living with bleeding disorders. This organization educates individuals on how to manage their complex healthcare conditions associated with bleeding disorders, which are lifelong and require ongoing education at different stages of life. With advancements in science, the BDFW has updated educational materials to cater to specific age groups and genders, ensuring cultural and socioeconomic appropriateness.
Additionally, the foundation provides critical information on managing health care and navigating insurance, addressing the high costs associated with bleeding disorders. For example, medications for severe hemophilia can cost up to $1 million per year, underscoring the importance of understanding health insurance for accessing necessary care and treatments. Through over 500 in-person education encounters and online educational resources reaching over 70,000 individuals in Washington state living with bleeding disorders, the BDFW is making a tangible impact in supporting and empowering those affected by these challenges.
This information is meant to be a general summary of The Bleeding Disorder Foundation Of Washington. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $42
- Gross Receipts: $493,323
Assets and Liabilities:
- Total Assets: $603,485
- Total Liabilities: $11,311
- Net Assets: $592,174
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Organization Details
Founding Year
1989
Phone
(206) 533-1660Principal Officer
Stephanie Simpson
Main Address
20126 BALLINGER WAY NE 165, SHORELINE, WA, 98155
Website
www.bdfwa.orgNTEE Category
Code: G50 - Disease
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