Overview
What is Siegel Rare Neuroimmune Association?
The Siegel Rare Neuroimmune Association (SRNA) is a nonprofit organization based in Powell, Ohio. Their primary mission is to support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system. They strive to promote awareness and empower patients, families, clinicians, and scientists through educational programs and publications. The SRNA provides valuable resources on their extensive website, such as specific symptom and condition information, podcasts with medical professionals, and social media contacts for patient support. They also host an annual symposium, which is the only event of its kind, bringing together individuals, clinicians, and researchers focused on these disorders. The organization publishes an annual report detailing accomplishments, financial information, and new treatment developments. The SRNA aims to improve the quality of life for those with rare neuroimmune disorders by supporting the training of clinicians-scientists and funding basic and clinical research in this field. With a team of 7 dedicated employees, the SRNA continues to serve its community with these vital resources.
Official website here: www.wearesrna.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 92%, Four-Star out of Four Star rating.
The Siegel Rare Neuroimmune Association has achieved a strong 92% rating from Charity Navigator, indicating robust accountability and financial health. The organization has excelled in key areas, including an impressive program expense ratio of 87.34%, which demonstrates a commitment to directing most of its resources towards its mission. Additionally, the board's composition is notable, with 68% independent members, enhancing governance integrity.
While the organization has several commendable policies in place, it is worth noting the absence of a Whistleblower Policy and a Document Retention and Destruction Policy, which could limit transparency and accountability in certain areas. However, their financial oversight structures, including an Audit and Oversight Committee, are well established, ensuring sound financial practices.
Overall, the Siegel Rare Neuroimmune Association stands out for its effective use of funds and strong governance practices, though it would benefit from addressing the noted policy gaps to further enhance its operational transparency and trustworthiness.
This AI summary has been generated from information found on Charity Navigator.
Is Siegel Rare Neuroimmune Association legitimate?
Siegel Rare Neuroimmune Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Siegel Rare Neuroimmune Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $87,545
Professional Fundraising Fees: $0
Other Salaries and Wages: $361,112
For more financial information, click here
Official website here: www.wearesrna.org
What is the mission statement of Siegel Rare Neuroimmune Association?
The Siegel Rare Neuroimmune Association aims to support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system. The organization promotes awareness and empowers patients, families, clinicians, and scientists through educational programs and publications. Their goal is to advance the scientific understanding of these disorders and therapy development. They achieve this by supporting the training of dedicated clinician-scientists and funding both basic and clinical research. The association aims to improve the quality of life for individuals with these rare disorders.
Official website here: www.wearesrna.org
Who is the CEO of Siegel Rare Neuroimmune Association?
Sanford J Siegel is the President of Siegel Rare Neuroimmune Association.
Official website here: www.wearesrna.org
What is the revenue of Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association's revenue in 2022 was $1,218,351.
Official website here: www.wearesrna.org
Who are the executives of Siegel Rare Neuroimmune Association and what are their salaries?
The average compensation at Siegel Rare Neuroimmune Association during 2022 was $64,094. There are 7 employees and 100 volunteers at Siegel Rare Neuroimmune Association.
Here are 16 key members and their salaries:
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Official website here: www.wearesrna.org
Where can I find the form 990 for Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.wearesrna.org
Learn more at the official website: www.wearesrna.org
Mission Statement of Siegel Rare Neuroimmune Association
The Siegel Rare Neuroimmune Association is committed to supporting and advocating for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system. Their mission is threefold: firstly, they aim to promote awareness and empower patients, families, clinicians, and scientists by providing education programs and publications. This is done to foster a sense of community and understanding around these often misunderstood conditions. Secondly, the association strives to advance the scientific understanding of these rare disorders and the development of therapies. They achieve this by supporting the training of clinician-scientists dedicated to these disorders and by funding both basic and clinical research. Lastly, the Siegel Rare Neuroimmune Association's goal is to improve the quality of life for individuals living with these disorders. By providing education, advocacy, and research support, they aim to make a significant impact in the lives of those affected by these rare neuroimmune disorders.
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Impact
July, 2024
Siegel Rare Neuroimmune Association, through its activities, has a significant impact on individuals and families diagnosed with rare neuroimmune disorders of the central nervous system. Their support and advocacy work aim to empower patients, families, clinicians, and scientists by providing educational programs, publications, and awareness initiatives. By promoting scientific understanding and therapy development for these rare disorders, the organization contributes to improving the quality of life for those affected. Their annual symposium and online resources provide valuable support and information, making a vital difference in the lives of individuals grappling with these challenging conditions.
This information is meant to be a general summary of Siegel Rare Neuroimmune Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$17,636
- Program Service Revenue: $27,714
- Gross Receipts: $1,218,351
Assets and Liabilities:
- Total Assets: $1,636,191
- Total Liabilities: $85,987
- Net Assets: $1,550,204
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CDC SUBCONTRACT AGREEMENT AFM AWARENESS
Revenue
$27,714
Organization Details
Founding Year
1996
Phone
(855) 380-3330Principal Officer
Sanford J Siegel
Main Address
1787 Sutter Parkway, Powell, OH, 43065
Website
www.wearesrna.orgNTEE Category
Code: G99 - Disease
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