Huntington's Disease Society Of America Group

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 900658125 ✦ New york, NY ✦ Designated as a 501(c)(3)

Shop smarter and support your favorite cause at the same time! With the Give Freely browser extension, you'll automatically save money with coupons, and partner stores will donate to your chosen charity - at no extra cost to you. Start giving back with a single click. It's safe, free, and spam-free, guaranteed!

Overview

What is Huntington's Disease Society Of America Group?

The Huntington's Disease Society of America Group, headquartered in New York City, is a dedicated nonprofit organization. Their primary mission is to enhance the lives of individuals and families affected by Huntington's disease. They offer comprehensive patient and family services, including counseling and referral assistance. This health and welfare organization is committed to improving the overall well-being of those battling this condition, demonstrating a strong dedication to their cause. Their activities extend beyond just providing support, aiming to make a significant impact on those affected by Huntington's disease.


Official website here: www.hdsa.org

Is Huntington's Disease Society Of America Group legitimate?

Huntington's Disease Society Of America Group is a legitimate nonprofit organization registered as a 501(c)(3) entity. Huntington's Disease Society Of America Group submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.hdsa.org

What is the mission statement of Huntington's Disease Society Of America Group?

The Huntington's Disease Society of America Group is a health and welfare organization committed to bettering the lives of individuals affected by Huntington's disease and their families. Their mission, as stated, is to improve the lives of those suffering from Huntington's disease. They achieve this by offering patient and family services, providing counseling and referral services to assist patients and their families. The society is dedicated to being a source of support for individuals with Huntington's disease and their healthcare providers. They strive to empower those affected by the disease to live their best lives, offering various resources and services to aid in this mission.


Official website here: www.hdsa.org

Who is the CEO of Huntington's Disease Society Of America Group?

Louise Vetter is the Chair of Huntington's Disease Society Of America Group. The CEO's salary of Huntington's Disease Society Of America Group is $0 and their total compensation is $401,948.


Official website here: www.hdsa.org

What is the revenue of Huntington's Disease Society Of America Group?

Huntington's Disease Society Of America Group's revenue in 2022 was $3,567,800.


Official website here: www.hdsa.org

Who are the executives of Huntington's Disease Society Of America Group and what are their salaries?


Here are 27 key members and their salaries (Huntington's Disease Society Of America Group's CEO's salary is $0 and their total compensation is $401,948):


Victor Sung Md (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Teresa Srajer (Chair-Elect)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kamran Alam (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenne Coler-Dark (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ej Garner (Past Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Angela Allen (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Brennan (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeff Carroll (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Coe (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stacy Coen (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wendy Erler (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erin Furr-Stimming Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Beth Hoffman (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jay Hughes (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jonathan Klein Esq (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kelsey Porter (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dominique Thomas (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Leslie M Thompson Phd (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Vicki Wheelock Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Louise Vetter (Chief Executive Officer)
  • Compensation: $0
  • Related: $349,249
  • Other: $52,699
Rosemary Coluccio (Chief Operations Officer)
  • Compensation: $0
  • Related: $249,757
  • Other: $26,305
Arik Johnson (Chief Mission Officer)
  • Compensation: $0
  • Related: $195,400
  • Other: $2,714
Jamison Skala (Director, National Develop)
  • Compensation: $0
  • Related: $165,915
  • Other: $11,985
Debra Lovecky (Director Of Education Prog)
  • Compensation: $0
  • Related: $161,407
  • Other: $22,964
Christopher Cosentino (Director Of Marketing & Co)
  • Compensation: $0
  • Related: $143,417
  • Other: $37,591
Deborah Boyd (Regional Development Direc)
  • Compensation: $0
  • Related: $113,225
  • Other: $18,592
Rebecca Chan (Controller)
  • Compensation: $0
  • Related: $106,797
  • Other: $36,399


Official website here: www.hdsa.org

Where can I find the form 990 for Huntington's Disease Society Of America Group?

Huntington's Disease Society Of America Group's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hdsa.org

Learn more at the official website: www.hdsa.org

Mission Statement of Huntington's Disease Society Of America Group

The Huntington's Disease Society of America Group is a dedicated organization, working tirelessly to enhance the lives of individuals and families affected by Huntington's Disease. With a mission rooted in health and welfare, this nonprofit is committed to improving the circumstances of those living with this debilitating condition and their loved ones.

The Huntington's Disease Society of America, Inc. offers a range of patient and family services, providing vital counseling and referral support. Recognizing the profound impact of Huntington's Disease on both patients and their families, the society offers essential resources to help navigate this challenging journey. Their services extend beyond medical advice, offering emotional support, guidance, and valuable referrals to other relevant organizations or professionals.

In essence, the Huntington's Disease Society of America Group serves as a beacon of hope for those affected by this disease, working diligently to improve their quality of life and empower them to face their challenges with confidence. By providing counseling and referral services, the society aims to lessen the burden of Huntington's Disease, ensuring that patients and their families receive the care and assistance they need to live as fully and independently as possible.

Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!

Impact




October, 2024

The Huntington's Disease Society of America (HDSA) significantly improves the lives of individuals and families affected by Huntington's Disease. By providing vital patient and family services, including counseling and referral assistance, the organization ensures that those impacted by the disease have access to essential resources and support. This dedicated approach allows families to navigate the challenges of Huntington's Disease with a network of understanding and guidance, ultimately enhancing their quality of life. The HDSA's commitment fosters community connections and raises awareness, positioning itself as a pivotal entity in the fight against this devastating condition.




This information is meant to be a general summary of Huntington's Disease Society Of America Group. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$3,567,800 (2022)
Expenses
$3,671,274 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $3,928,412

Assets and Liabilities:

  • Total Assets: $739,599
  • Total Liabilities: $86,694
  • Net Assets: $652,905

Want to help this charity, for free? You can click here to learn more about Give Freely

Organization Details

Founding Year

1986

Principal Officer

Louise Vetter

Main Address

505 EIGHTH AVENUE SUITE 902, NEW YORK, NY, 10018

NTEE Category

Code: G80 - Disease

If you are a representative of Huntington's Disease Society Of America Group and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.