Overview
What is Utah Hemophilia Foundation?
The Utah Hemophilia Foundation is a nonprofit organization situated in Salt Lake City, Utah, dedicated to providing education and support services for individuals and families affected by bleeding disorders. Their mission is to empower these individuals to lead healthier, more self-sufficient lives. They accomplish this through various programs, such as Camp Valor, which teaches children with bleeding disorders essential self-care skills and allows them to enjoy outdoor activities under medical supervision. The Family Fest & Resource Fair offers valuable information about managing bleeding disorders, including treatment options, insurance assistance, and home health services. The FEMales & Bleeding Disorder (FAB) Conference focuses on the unique challenges faced by women with bleeding disorders. Teen Weekend provides a supportive environment for adolescents with bleeding disorders and their siblings. Additionally, miscellaneous support groups offer opportunities for individuals to interact and learn from one another. With a total of 2 employees, the Utah Hemophilia Foundation is committed to enriching the lives of those affected by bleeding disorders in Utah.
Official website here: www.hemophiliautah.org/
Is Utah Hemophilia Foundation legitimate?
Utah Hemophilia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Utah Hemophilia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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Other Salaries and Wages: $112,000
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Official website here: www.hemophiliautah.org/
What is the mission statement of Utah Hemophilia Foundation?
The Utah Hemophilia Foundation's mission is centered around providing education and support services for individuals and families affected by bleeding disorders. Their objective is to empower these individuals to live healthier and more self-sufficient lives. The foundation carries out this mission through various programs. For instance, Camp Valor, attended by 22 campers in 2022, is a platform where children with bleeding disorders learn self-infusion and basic self-care. The Family Fest & Resource Fair, attended by 156 people in 2022, serves as an information hub where attendees learn about the latest treatments, insurance co-payment assistance programs, and various resources related to bleeding disorders. The FEMALES & Bleeding Disorder (FAB) Conference, attended by 52 people in 2022, is specifically designed for women in the bleeding disorders community, offering workshops focused on unique issues associated with women and bleeding disorders. The Teen Weekend, attended by 17 teens in 2022, is a weekend of interactive workshops, discussion groups, and recreational activities for teenagers with bleeding disorders and their siblings. Miscellaneous support groups, attended by 156 people in 2022, provide a platform for individuals with bleeding disorders to interact and learn from each other.
Official website here: www.hemophiliautah.org/
Who is the CEO of Utah Hemophilia Foundation?
Jan Western is the Trustee of Utah Hemophilia Foundation.
Official website here: www.hemophiliautah.org/
What is the revenue of Utah Hemophilia Foundation?
Utah Hemophilia Foundation's revenue in 2022 was $350,196.
Official website here: www.hemophiliautah.org/
Who are the executives of Utah Hemophilia Foundation and what are their salaries?
The average compensation at Utah Hemophilia Foundation during 2022 was $56,000. There are 2 employees and 65 volunteers at Utah Hemophilia Foundation.
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Official website here: www.hemophiliautah.org/
Where can I find the form 990 for Utah Hemophilia Foundation?
Utah Hemophilia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.hemophiliautah.org/
Learn more at the official website: www.hemophiliautah.org/
Mission Statement of Utah Hemophilia Foundation
The Utah Hemophilia Foundation is dedicated to providing education and support services for individuals and families living with bleeding disorders, empowering them to lead healthier and more self-sufficient lives. This nonprofit organization's mission is to create an environment where those affected by bleeding disorders can thrive and manage their conditions effectively.
One of the ways the Utah Hemophilia Foundation accomplishes its mission is through community education programs. For instance, Camp Valor, which welcomed 22 campers from 16 families in 2022, is a significant initiative. This camp serves as a pivotal moment for children with bleeding disorders, providing them with essential life skills such as self-infusion and self-care. Camp Valor offers these children an opportunity to engage in outdoor activities, often a rarity due to the severity of their condition.
Furthermore, the Utah Hemophilia Foundation hosts events like the Family Fest & Resource Fair and the FEMales & Bleeding Disorders (FAB) Conference. The Family Fest & Resource Fair attracts approximately 156 attendees each year, offering valuable information from pharmaceutical manufacturers, home care companies, and other relevant organizations. This event provides attendees with insights into the latest treatments, insurance co-payment assistance programs, and various resources to manage bleeding disorders effectively.
The FEMales & Bleeding Disorders (FAB) Conference, specifically designed for women in the bleeding disorders community, draws approximately 52 attendees annually. This event offers workshops and information tailored to the unique challenges associated with women and bleeding disorders. The Utah Hemophilia Foundation also organizes a Teen Weekend, catering to teens with bleeding disorders and their siblings, providing interactive workshops, discussion groups, and recreational activities.
In addition to these events, the Utah Hemophilia Foundation offers miscellaneous support groups, providing a platform for individuals with bleeding disorders to connect, learn, and share experiences. The foundation's comprehensive approach to community education and support empowers individuals and families living with bleeding disorders, helping them to lead healthier, more self-sufficient lives.
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Impact
October, 2024
The Utah Hemophilia Foundation significantly impacts the lives of individuals and families affected by bleeding disorders through comprehensive education and support services. One of their standout programs, Camp Valor, allows children with bleeding disorders to learn vital self-care skills, such as self-infusion, while enjoying recreation in a safe environment. This camp not only fosters peer connections but also empowers children, enabling them to manage their conditions effectively.
The organization also hosts events like the Family Fest & Resource Fair, which engages the community by connecting families with pharmaceutical representatives. This event offers critical information about the latest treatments, medication options, and insurance assistance, fostering a well-informed community.
Moreover, initiatives like the Females & Bleeding Disorders (FAB) Conference cater specifically to women, addressing their unique challenges and providing valuable resources. Teen weekends focus on education and support for adolescents, cultivating understanding and camaraderie among teens with similar experiences.
Overall, the Utah Hemophilia Foundation enriches the community by providing essential resources, support networks, and learning opportunities that empower families to lead healthier, more self-sufficient lives amidst the challenges posed by bleeding disorders.
This information is meant to be a general summary of Utah Hemophilia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $67
- Gross Receipts: $381,842
Assets and Liabilities:
- Total Assets: $940,461
- Total Liabilities: $0
- Net Assets: $940,461
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Organization Details
Founding Year
1959
Phone
(801) 484-0325Principal Officer
Jan Western
Main Address
772 E 3300 S STE 205, SALT LAKE CITY, UT, 841064602
Website
www.hemophiliautah.org/NTEE Category
Code: G20 - Disease
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