Undiagnosed Diseases Network Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 873474254 ✦ Washington, DC ✦ Designated as a 501(c)(3)

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Overview

What is Undiagnosed Diseases Network Foundation?

The Undiagnosed Diseases Network Foundation, abbreviated as UDNF, is a dedicated nonprofit organization that works tirelessly to enhance diagnosis, research, and care for individuals suffering from rare, undiagnosed conditions. By fostering collaborative relationships between patients, clinicians, and scientists, UDNF aims to bridge gaps in understanding and treatment for these often overlooked conditions. Their mission is to improve the lives of those affected, promoting a more comprehensive and inclusive approach to healthcare.


Official website here: www.udnf.org

Is Undiagnosed Diseases Network Foundation legitimate?

Undiagnosed Diseases Network Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Undiagnosed Diseases Network Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $95,146
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.udnf.org

What is the mission statement of Undiagnosed Diseases Network Foundation?

The Undiagnosed Diseases Network Foundation (UDNF) is dedicated to enhancing the diagnosis, research, and care for individuals struggling with rare, undiagnosed conditions. They achieve this by promoting collaboration between patients, clinicians, and scientists, as well as through outreach initiatives. The organization's mission is centered around fostering these collaborations, ultimately aiming to improve the lives of those affected by these conditions.


Official website here: www.udnf.org

Who is the CEO of Undiagnosed Diseases Network Foundation?

Amy Gray is the CEO of Undiagnosed Diseases Network Foundation The CEO's salary of Undiagnosed Diseases Network Foundation is $95,146 and their total compensation is $95,146.


Official website here: www.udnf.org

What is the revenue of Undiagnosed Diseases Network Foundation?

Undiagnosed Diseases Network Foundation's revenue in 2023 was $2,579,825.


Official website here: www.udnf.org

Who are the executives of Undiagnosed Diseases Network Foundation and what are their salaries?

There 18 volunteers at Undiagnosed Diseases Network Foundation.

Here are 14 key members and their salaries (Undiagnosed Diseases Network Foundation's CEO's salary is $95,146 and their total compensation is $95,146):


Amy Gray (Ceo)
  • Compensation: $95,146
  • Related: $0
  • Other: $0
Meghan Halley (Board Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
F Sessions Cole (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Troy Evans (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anne Pariser (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Effie Parks (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gerald Sweeney (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Liliana Fernandez (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Parvathy Krishnan (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sika Dunyoh (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephan Zuchner (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tom Kelley (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tania Simoncelli (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Helene Cederroth (Vice Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.udnf.org

Where can I find the form 990 for Undiagnosed Diseases Network Foundation?

Undiagnosed Diseases Network Foundation's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.udnf.org

Learn more at the official website: www.udnf.org

Mission Statement of Undiagnosed Diseases Network Foundation

The Undiagnosed Diseases Network Foundation, abbreviated as UDNF, is committed to enhancing the diagnosis, research, and care for individuals suffering from rare, undiagnosed conditions. They achieve this objective by promoting collaboration between patients, clinicians, and scientists. This collaborative approach allows for a more comprehensive understanding of these complex conditions, ultimately leading to improved care. By fostering this alliance, UDNF plays a crucial role in advancing the field of rare disease diagnosis and treatment.

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Impact




October, 2024

The Undiagnosed Diseases Network Foundation significantly enhances the diagnosis, research, and care for individuals with rare undiagnosed conditions. By promoting collaboration among patients, clinicians, and scientists, it fosters a comprehensive approach to understanding and addressing these complex health issues. This collaborative effort not only advances the field of medicine but also provides essential support and hope to those affected by undiagnosed diseases, ensuring that they receive the attention and care necessary for their unique situations. The foundation’s outreach initiatives further empower patients and their families, raising awareness about the challenges they face and working towards innovative solutions. Through its work, the Undiagnosed Diseases Network Foundation makes a profound impact on the lives of many, shaping a more informed and compassionate healthcare landscape.




This information is meant to be a general summary of Undiagnosed Diseases Network Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,579,825 (2023)
Expenses
$218,337 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $8,321
  • Gross Receipts: $2,579,825

Assets and Liabilities:

  • Total Assets: $0
  • Total Liabilities: $0
  • Net Assets: $0

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Organization Details

Principal Officer

Meghan Halley

NTEE Category

Code: G12 - Disease

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