Overview
What is Thrive With Pyruvate Kinase Deficiency Organization?
Thrive With Pyruvate Kinase Deficiency Organization is a nonprofit entity that focuses on advocating for and educating individuals affected by Pyruvate Kinase Deficiency, a rare disorder affecting red blood cells. Their mission involves connecting patients with medical professionals and providing essential resources. To further their cause, they organized a conference in Orlando, Florida in 2022, where patients, doctors, and researchers collaborated to gain a better understanding of the disease and work towards developing effective treatments. By doing so, Thrive With Pyruvate Kinase Deficiency Organization aims to improve the lives of those impacted by this disorder.
Official website here: www.https: thrivewithpkd.org
Is Thrive With Pyruvate Kinase Deficiency Organization legitimate?
Thrive With Pyruvate Kinase Deficiency Organization is a legitimate nonprofit organization registered as a 501(c)(3) entity. Thrive With Pyruvate Kinase Deficiency Organization submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.https: thrivewithpkd.org
What is the mission statement of Thrive With Pyruvate Kinase Deficiency Organization?
The Thrive With Pyruvate Kinase Deficiency Organization is dedicated to championing the cause of individuals suffering from Pyruvate Kinase Deficiency, a rare disorder affecting the red blood cells. Through advocacy and education, the organization aims to connect affected individuals with medical professionals and provide them with necessary resources. In an effort to further understand the disease and develop effective treatments, they organized a conference in Orlando, Florida in 2022, bringing together patients, doctors, and researchers.
Official website here: www.https: thrivewithpkd.org
Who is the CEO of Thrive With Pyruvate Kinase Deficiency Organization?
Tamara Schryver is the President of Thrive With Pyruvate Kinase Deficiency Organization.
Official website here: www.https: thrivewithpkd.org
What is the revenue of Thrive With Pyruvate Kinase Deficiency Organization?
Thrive With Pyruvate Kinase Deficiency Organization's revenue in 2022 was $144,795.
Official website here: www.https: thrivewithpkd.org
Who are the executives of Thrive With Pyruvate Kinase Deficiency Organization and what are their salaries?
Here are 6 key members and their salaries:
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Official website here: www.https: thrivewithpkd.org
Where can I find the form 990EZ for Thrive With Pyruvate Kinase Deficiency Organization?
Thrive With Pyruvate Kinase Deficiency Organization's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.https: thrivewithpkd.org
Learn more at the official website: www.https: thrivewithpkd.org
Mission Statement of Thrive With Pyruvate Kinase Deficiency Organization
Thrive With Pyruvate Kinase Deficiency Organization is dedicated to advocating for and educating individuals living with Pyruvate Kinase Deficiency (PKD), a rare disorder that impacts the red blood cells. This nonprofit organization serves as a bridge between patients and medical professionals, providing valuable resources to aid in understanding and managing the disorder. To further their mission, Thrive With Pyruvate Kinase Deficiency Organization hosted a conference in Orlando, Florida in 2022. This event brought together patients, medical professionals, and researchers, fostering a collaborative environment where they could share knowledge and work towards developing more effective treatments for PKD. By advocating for and educating those affected by this rare disorder, Thrive With Pyruvate Kinase Deficiency Organization strives to improve the lives of individuals living with Pyruvate Kinase Deficiency.
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Impact
October, 2024
Thrive With Pyruvate Kinase Deficiency Organization plays a crucial role in addressing the needs of individuals living with Pyruvate Kinase Deficiency, a rare blood disorder. By advocating for patients, the organization raises awareness about the condition and connects them with healthcare providers, ensuring they have access to vital resources and information. The organization’s efforts culminated in a significant conference held in Orlando, Florida, in 2022. This event brought together patients, medical professionals, and researchers, fostering collaboration and knowledge sharing aimed at enhancing understanding of the disorder and exploring effective treatment options. Ultimately, their work contributes to a stronger community and improved care for those affected by this rare illness.
This information is meant to be a general summary of Thrive With Pyruvate Kinase Deficiency Organization. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $144,795
Assets and Liabilities:
- Total Assets: $9,080
- Total Liabilities: $10,000
- Net Assets: -$920
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Organization Details
Principal Officer
Tamara Schryver
Main Address
7801 95th St W, Bloomington, MN, 55438
Website
www.https: thrivewithpkd.orgNTEE Category
Code: G80 - Disease
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