Overview
What is The Shank2 Foundation?
The Shank2 Foundation is a nonprofit organization based in Coconut Grove, Florida. Their primary goal is to advance research on the rare genetic disorder, Shank2, through initiatives such as patient registry development, IRB (Institutional Review Board) creation, and translational research. The aim is to identify common characteristics associated with Shank2 disorders, bridge the gap between patients and researchers, and disseminate information about research advancements within the community. The foundation's mission encompasses enhancing research, raising awareness, and providing support to those with Shank2 disorders.
Official website here: www.shank2.org/
Is The Shank2 Foundation legitimate?
The Shank2 Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Shank2 Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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Official website here: www.shank2.org/
What is the mission statement of The Shank2 Foundation?
The Shank2 Foundation aims to advance research, raise awareness, and offer support for individuals affected by the rare genetic disorder, Shank2. Their mission is to improve understanding of the common characteristics associated with Shank2 disorders, foster communication between patients and researchers, and disseminate information about research advancements within the community. The foundation actively engages in research programs, including the development of patient registries, IRBs, and translation research, with the goal of bridging the gap between patients and researchers.
Official website here: www.shank2.org/
Who is the CEO of The Shank2 Foundation?
Polly Appel is the Director, President of The Shank2 Foundation.
Official website here: www.shank2.org/
What is the revenue of The Shank2 Foundation?
The Shank2 Foundation's revenue in 2021 was $32,867.
Official website here: www.shank2.org/
Who are the executives of The Shank2 Foundation and what are their salaries?
There 3 volunteers at The Shank2 Foundation.
Here are 4 key members and their salaries:
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Official website here: www.shank2.org/
Where can I find the form 990 for The Shank2 Foundation?
The Shank2 Foundation's most recent form 990 was submitted in 2021 and can be accessed here.
Official website here: www.shank2.org/
Learn more at the official website: www.shank2.org/
Mission Statement of The Shank2 Foundation
The Shank2 Foundation, a nonprofit organization, is committed to advancing research, spreading awareness, and offering support to individuals affected by Shank2 disorders. Its mission is to significantly improve the understanding and treatment of this rare genetic disorder. The foundation aims to develop patient registries, establish Institutional Review Boards (IRBs), and engage in translational research. The primary objective of these research programs is to identify common characteristics associated with Shank2 disorders, foster a connection between patients and researchers, and disseminate information about recent advancements in research to the wider community. By doing so, The Shank2 Foundation strives to provide valuable resources and enhance the lives of those impacted by Shank2 disorders.
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Impact
August, 2024
The Shank2 Foundation is making a significant impact by improving research, raising awareness, and providing support for individuals affected by the rare genetic disorder Shank2. Through research programs focusing on Shank2 disorders, the foundation is developing patient registries, institutional review board (IRB) processes, and translational research initiatives. By identifying common characteristics associated with Shank2 disorders, bridging the gap between patients and researchers, and disseminating research advancements to the community, The Shank2 Foundation is playing a crucial role in advancing knowledge and support for this rare condition.
This information is meant to be a general summary of The Shank2 Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2021.
- Gross Receipts: $32,867
Assets and Liabilities:
- Total Assets: $0
- Total Liabilities: $0
- Net Assets: $0
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Organization Details
Founding Year
2021
Phone
(212) 773-3000Principal Officer
Polly Appel
Main Address
3505 MAIN LODGE DRIVE, COCONUT GROVE, FL, 33133
Website
www.shank2.org/NTEE Category
Code: P01 - Human services
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