Overview
What is Rare Disease Company Coalition Inc?
Rare Disease Company Coalition Inc, situated in Washington D.C., is a nonprofit organization that primarily focuses on advocacy services for companies specializing in rare diseases. By engaging in policy advocacy activities, they aim to foster a conducive environment for the U.S. rare disease pharmaceutical sector. This entails education, lobbying, advertising, public outreach, and organizing events such as patient and industry meetings, roundtables, and briefings. Their mission is to influence federal legislative and regulatory matters impacting rare disease drug development, approval, and equitable access to treatment.
Official website here: www.rarecoalition.com
Is Rare Disease Company Coalition Inc legitimate?
Rare Disease Company Coalition Inc is a legitimate nonprofit organization registered as a 501(c)(6) entity. Rare Disease Company Coalition Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.rarecoalition.com
What is the mission statement of Rare Disease Company Coalition Inc?
Rare Disease Company Coalition Inc is dedicated to advocating for the shared business interests of the U.S. rare disease pharmaceutical sector. Their activities encompass education, lobbying, advertising, and public outreach, as well as organizing patient and industry meetings, roundtables, and briefings. These efforts are focused on influencing federal legislative and regulatory matters related to rare disease drug development, approval, and ensuring equitable access to treatment. The Coalition's mission is to contribute to the advancement of the rare disease drug sector by engaging in policy advocacy activities that foster understanding and support for these critical issues.
Official website here: www.rarecoalition.com
Who is the CEO of Rare Disease Company Coalition Inc?
Deirdre Parsons is the President of Rare Disease Company Coalition Inc.
Official website here: www.rarecoalition.com
What is the revenue of Rare Disease Company Coalition Inc?
Rare Disease Company Coalition Inc's revenue in 2022 was $1,117,083.
Official website here: www.rarecoalition.com
Who are the executives of Rare Disease Company Coalition Inc and what are their salaries?
Here are 21 key members and their salaries:
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Official website here: www.rarecoalition.com
Where can I find the form 990 for Rare Disease Company Coalition Inc?
Rare Disease Company Coalition Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.rarecoalition.com
Learn more at the official website: www.rarecoalition.com
Mission Statement of Rare Disease Company Coalition Inc
The Rare Disease Company Coalition Inc is an organization dedicated to championing the shared business objectives of the U.S. rare disease pharmaceutical sector. They accomplish this mission through a multifaceted approach, encompassing policy advocacy activities such as education, lobbying, advertising, and public outreach. These activities aim to influence federal legislative and regulatory matters affecting rare disease drug development, approval, and equitable access to treatment. The Coalition also facilitates patient and industry meetings, roundtables, and briefings, providing a platform for open dialogue and collaboration within the sector. By engaging in these activities, the Rare Disease Company Coalition Inc works tirelessly to advocate for policies that support the development and distribution of treatments for rare diseases, ultimately improving the lives of those affected by these conditions.
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Impact
October, 2024
Rare Disease Company Coalition Inc plays a crucial role in the U.S. rare disease pharmaceutical sector by advocating for policies that support drug development and equitable access to treatment. Through its focused policy advocacy activities, the Coalition engages in education, lobbying, and public outreach to raise awareness and influence legislative and regulatory matters.
The organization facilitates patient and industry meetings, roundtables, and briefings that bring together stakeholders to discuss critical issues impacting rare disease therapies. By promoting collaboration among companies, policymakers, and the patient community, the Coalition drives efforts to enhance drug approval processes and ensure that patients with rare diseases have access to necessary treatments. This multifaceted approach not only helps to align the interests of the industry but also addresses the unique challenges faced by those affected by rare diseases, fostering an environment where innovative solutions can thrive.
This information is meant to be a general summary of Rare Disease Company Coalition Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $1,117,083
Assets and Liabilities:
- Total Assets: $477,461
- Total Liabilities: $286
- Net Assets: $477,175
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Organization Details
Founding Year
2021
Phone
(202) 809-7357Principal Officer
Deirdre Parsons
Main Address
1455 Pennsylvania Avenue NW 1150, Washington, DC, 20004
Website
www.rarecoalition.comNTEE Category
Code: B01 - Education
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