Rare By Design Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 862990471 ✦ Sioux falls, SD ✦ Designated as a 501(c)(3)

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Overview

What is Rare By Design Inc?

Rare By Design Inc is a dedicated nonprofit organization committed to fostering understanding, inclusion, and representation for individuals living with rare diseases and disabilities, along with their families. Their mission is realized through events like "A Runway to Empower," which showcases the true diversity within their community. This annual style show showcases models of various abilities, ages, genders (including LGBTQIA), and races, promoting a sense of unity and acceptance. The event attracted an audience of 190 individuals, further emphasizing the organization's impact and reach.


Official website here: www.rarebydesign.org

Is Rare By Design Inc legitimate?

Rare By Design Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rare By Design Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.rarebydesign.org

What is the mission statement of Rare By Design Inc?

Rare By Design Inc's mission is centered around raising awareness, fostering inclusion, and promoting representation for individuals living with rare diseases and disabilities. The organization strives to support this community and their families effectively. To accomplish this, Rare By Design Inc organizes events like "A Runway to Empower," which showcases diversity in the community by featuring models of various abilities, ages, genders, and racial backgrounds. The goal is to create a supportive environment and demonstrate the true breadth of the community, attracting approximately 190 attendees.


Official website here: www.rarebydesign.org

Who is the CEO of Rare By Design Inc?

Unavailable The CEO's salary of Rare By Design Inc is $0 and their total compensation is $0.


Official website here: www.rarebydesign.org

What is the revenue of Rare By Design Inc?

Rare By Design Inc's revenue in 2022 was $81,307.


Official website here: www.rarebydesign.org

Who are the executives of Rare By Design Inc and what are their salaries?


Here are 2 key members and their salaries (Rare By Design Inc's CEO's salary is $0 and their total compensation is $0):


Kendra Gottsleben (Ceo & President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Colette Manning (Secretary & Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.rarebydesign.org

Where can I find the form 990EZ for Rare By Design Inc?

Rare By Design Inc's most recent form 990EZ was submitted in 2022 and can be accessed here.


Official website here: www.rarebydesign.org

Learn more at the official website: www.rarebydesign.org

Mission Statement of Rare By Design Inc

Rare By Design, as an organization, is committed to fostering awareness, inclusion, and representation for individuals living with rare diseases and disabilities. Their mission is to support this community and their families positively. To achieve this, they have launched an initiative called 'A Runway to Empower'. This event is designed to showcase diversity within the community, featuring models of various abilities, ages, genders, races, and more. This event attracted 190 attendees, underscoring the organization's dedication to bringing this community together and promoting their visibility.

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Impact




October, 2024

Rare By Design Inc plays a pivotal role in fostering awareness, inclusion, and representation for individuals with rare diseases and disabilities. Through its initiatives, particularly the "Runway to Empower," the organization amplifies the voices and visibility of those often marginalized in society. This event celebrates diversity by showcasing models of various abilities, ages, genders, and races, creating a powerful platform that unites the community and promotes understanding.

The recent "Runway to Empower" event attracted 190 attendees, reflecting a growing interest in and commitment to supporting individuals living with rare conditions. By breaking down barriers and challenging societal norms, Rare By Design Inc not only supports individuals and families affected by rare diseases but also cultivates a more inclusive community where everyone's unique story is honored and valued. Ultimately, their efforts lead to a broader conversation about health, accessibility, and the importance of representation in all facets of life.




This information is meant to be a general summary of Rare By Design Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$81,307 (2022)
Expenses
$41,085 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $151
  • Program Service Revenue: $7,930
  • Gross Receipts: $82,050

Assets and Liabilities:

  • Total Assets: $62,900
  • Total Liabilities: $0
  • Net Assets: $62,900

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Organization Details

Main Address

4701 S Shields Ave, Sioux Falls, SD, 57103

NTEE Category

Code: E70 - Health

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