Overview
What is Timothy Syndrome Alliance Inc?
Timothy Syndrome Alliance Inc is a nonprofit organization dedicated to enhancing the diagnosis, treatment, and care of individuals suffering from Cacna1C-Related Disorders, such as Timothy Syndrome and Longqt8. They extend their support to families and caregivers of diagnosed individuals, offering them emotional and informational resources. The alliance organized a family support conference in October, allowing 25 families to engage with researchers and physicians, sharing the latest advancements and insights in treatment. Furthermore, they have developed an educational and resourceful website, accessible to families, researchers, and healthcare professionals alike.
Official website here: www.timothysyndromefoundation.org
Is Timothy Syndrome Alliance Inc legitimate?
Timothy Syndrome Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Timothy Syndrome Alliance Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.timothysyndromefoundation.org
What is the mission statement of Timothy Syndrome Alliance Inc?
The Timothy Syndrome Alliance Inc is dedicated to improving the diagnosis, treatment, and care of individuals affected by Cacna1C-Related Disorders, which encompasses conditions like Timothy Syndrome and Longqt8. They offer support to the families and caregivers of these individuals, serving as a valuable resource. In line with their mission, they organized a family support conference in October, where 25 families had the opportunity to learn from researchers and physicians about the latest advancements in treatment. Additionally, the alliance has developed an informative website that provides education, support, and resources for families, researchers, and medical professionals.
Official website here: www.timothysyndromefoundation.org
Who is the CEO of Timothy Syndrome Alliance Inc?
Andy Golden is the President of Timothy Syndrome Alliance Inc.
Official website here: www.timothysyndromefoundation.org
What is the revenue of Timothy Syndrome Alliance Inc?
Timothy Syndrome Alliance Inc's revenue in 2022 was $146,942.
Official website here: www.timothysyndromefoundation.org
Who are the executives of Timothy Syndrome Alliance Inc and what are their salaries?
Here are 6 key members and their salaries:
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Official website here: www.timothysyndromefoundation.org
Where can I find the form 990EZ for Timothy Syndrome Alliance Inc?
Timothy Syndrome Alliance Inc's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.timothysyndromefoundation.org
Learn more at the official website: www.timothysyndromefoundation.org
Mission Statement of Timothy Syndrome Alliance Inc
The Timothy Syndrome Alliance Inc is committed to enhancing the diagnosis, treatment, and care of individuals suffering from Cacna1C-Related Disorders, which encompasses conditions such as Timothy Syndrome and Longqt8. This nonprofit organization extends its support to the families and caregivers of those diagnosed, offering them solace and resources during their challenging journey. To fulfill its mission, the Timothy Syndrome Alliance Inc organized a family support conference in October, welcoming 25 families to engage with researchers and physicians, sharing the latest insights on treatment options and advancements. Furthermore, the organization has developed an extensive online platform, serving as a hub for education, support, and resources for families, medical professionals, and researchers alike. This digital resource provides invaluable information and fosters a sense of community among those affected by these disorders, empowering them with knowledge and guidance throughout their journey.
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Impact
October, 2024
Timothy Syndrome Alliance Inc significantly enhances the landscape of care and support for individuals with Cacna1C-Related Disorders, including Timothy Syndrome and Longqt8. By focusing on improving diagnosis, treatment, and overall care, they play a pivotal role in empowering patients and their families.
The organization fosters a strong support network, exemplified by their recent family support conference where 25 families gathered to engage directly with researchers and physicians. This event not only informed attendees about the latest treatment advancements but also created a sense of community among those affected by these rare disorders.
Additionally, Timothy Syndrome Alliance has established a comprehensive website that serves as a vital resource for families, researchers, and healthcare professionals. This platform provides crucial educational materials and support, facilitating access to information and connecting stakeholders in the ongoing journey toward better understanding and managing these complex conditions. Through these efforts, they are making a profound impact on the lives of those affected by Cacna1C-Related Disorders.
This information is meant to be a general summary of Timothy Syndrome Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $146,942
Assets and Liabilities:
- Total Assets: $114,456
- Total Liabilities: $0
- Net Assets: $114,456
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Organization Details
Phone
(443) 364-8185Principal Officer
Andy Golden
Main Address
3143 THE OAKS ROAD, ELLICOTT CITY, MD, 21043
NTEE Category
Code: G20 - Disease
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