Overview
What is Jonahs Gsd 1B Research Foundation?
The Jonahs GSD 1B Research Foundation is a nonprofit organization committed to advancing research on GSD1B, a rare metabolic condition. By raising funds, the foundation aims to discover improved treatments and ultimately, a cure for this condition. To accomplish this, they collaborate with Dr. Priya Kishnani at Duke University, supporting the GSD Ib Natural History Study. This study contributes significantly to understanding the condition better, potentially leading to breakthroughs in its management and treatment.
Is Jonahs Gsd 1B Research Foundation legitimate?
Jonahs Gsd 1B Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Jonahs Gsd 1B Research Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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What is the mission statement of Jonahs Gsd 1B Research Foundation?
The Jonahs GSD 1B Research Foundation is dedicated to furthering the research on GSD1B, a rare metabolic condition. Their primary goal is to discover improved treatments and ultimately find a cure for this condition. To accomplish this, the foundation sponsors the GSD Ib Natural History Study in collaboration with various research institutions, such as Duke University. By raising funds and supporting scientific inquiries, the Jonahs GSD 1B Research Foundation aims to contribute significantly to the medical community's understanding and potential solutions for GSD1B.
What is the revenue of Jonahs Gsd 1B Research Foundation?
Jonahs Gsd 1B Research Foundation's revenue in 2023 was $100,589.
Who are the executives of Jonahs Gsd 1B Research Foundation and what are their salaries?
Here are 2 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Where can I find the form 990EZ for Jonahs Gsd 1B Research Foundation?
Jonahs Gsd 1B Research Foundation's most recent form 990EZ was submitted in 2023 and can be accessed here.
Mission Statement of Jonahs Gsd 1B Research Foundation
The Jonah's GSD 1B Research Foundation is dedicated to making strides in the field of GSD1B research. Their primary goal is to uncover improved treatments and, ultimately, a cure for this rare metabolic condition. To achieve this, the foundation collaborates with Dr. Priya Kishnani at Duke University, sponsoring the GSD Ib Natural History Study. This collaboration allows for comprehensive research and data collection, contributing significantly to the understanding and potential solutions for GSD1B. By supporting this research, the Jonah's GSD 1B Research Foundation aims to improve the lives of individuals affected by this condition, offering hope and progress towards a cure.
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Impact
October, 2024
The Jonahs GSD 1B Research Foundation significantly impacts the advancement of research and treatment options for GSD1B, a rare metabolic condition. By raising funds specifically aimed at GSD1B research, the foundation supports critical initiatives like the GSD Ib Natural History Study in collaboration with Dr. Priya Kishnani at Duke University. This study is essential for understanding the long-term effects and progression of GSD1B, which can lead to the development of improved therapies and ultimately a potential cure. Through its efforts, the foundation fosters awareness and collective action within the medical community, enhancing hope for affected individuals and their families.
This information is meant to be a general summary of Jonahs Gsd 1B Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Gross Receipts: $100,589
Assets and Liabilities:
- Total Assets: $222,200
- Total Liabilities: $0
- Net Assets: $222,200
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Organization Details
Principal Officer
Rabin Pournazarian
NTEE Category
Code: H12 - Medical research
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