Overview
What is Friends Of Fsh Research?
Friends of FSH Research is a 501C3 nonprofit organization, situated in Kirkland, Washington, specifically at 217 19th Place. Their primary mission is to positively impact the lives of individuals affected by FSH Muscular Dystrophy. They accomplish this by financially supporting research related to FSHD, a specific type of muscular dystrophy. To stay updated on their ongoing research initiatives, individuals are advised to visit their website, <www.fshfriends.org>, or review the attached PDF document. The organization's efforts extend beyond just funding, as they aim to make a significant difference in the lives of those living with FSH Muscular Dystrophy.
Official website here: www.fshfriends.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 85% (Three-Star out of Four Star rating)
Friends of FSH Research has earned an 85% rating on Charity Navigator, solely based on its accountability and finance metrics. With a strong focus on responsible financial practices, the organization boasts a solid program expense ratio of 98.61%, indicating that nearly all funds directly support its research initiatives. The board composition reflects a commitment to governance, with 75% independent board members, and various policies such as conflict of interest and whistleblower protections are in place.
User feedback highlights the charity's impactful role in supporting research for Facioscapulohumeral Dystrophy (FSHD), with many reviewers praising the dedication and hard work of its founders. Volunteers and donors express deep admiration for the organization's transparency, efficiency, and focus on fundraising events, which have significantly contributed to FSHD research efforts at institutions like the University of Washington. Reviews consistently commend the team for their relentless pursuit of a cure and their ability to inspire hope among affected families.
However, some reviews indicate that the organization operates with minimal overhead, relying heavily on volunteers and fundraising events to sustain its operations. While the lack of paid staff allows for a greater allocation of funds toward research, it may also highlight the challenges of maintaining momentum in fundraising and awareness efforts over time. Overall, Friends of FSH Research is portrayed as a passionate and effective organization, committed to making significant strides in the fight against FSHD.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Friends Of Fsh Research legitimate?
Friends Of Fsh Research is a legitimate nonprofit organization registered as a 501(c)(3) entity. Friends Of Fsh Research submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.fshfriends.org
What is the mission statement of Friends Of Fsh Research?
Friends of FSH Research, a 501C3 organization, is dedicated to improving the lives of individuals affected by FSH Muscular Dystrophy. They achieve this by financially supporting research into FSHD (FSH Muscular Dystrophy). The organization's main goal is to advance understanding and potential treatments for this condition. For comprehensive and current information on various ongoing research projects, one can refer to the Friends of FSH Research website and the attached PDF document.
Official website here: www.fshfriends.org
Who is the CEO of Friends Of Fsh Research?
Teresa Colella is the Board Member of Friends Of Fsh Research.
Official website here: www.fshfriends.org
What is the revenue of Friends Of Fsh Research?
Friends Of Fsh Research's revenue in 2023 was $745,462.
Official website here: www.fshfriends.org
Who are the executives of Friends Of Fsh Research and what are their salaries?
There 20 volunteers at Friends Of Fsh Research.
Here are 11 key members and their salaries:
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Official website here: www.fshfriends.org
Where can I find the form 990 for Friends Of Fsh Research?
Friends Of Fsh Research's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.fshfriends.org
Learn more at the official website: www.fshfriends.org
Mission Statement of Friends Of Fsh Research
Friends of FSH Research, a 501C3 organization, is dedicated to making a significant impact on the lives of individuals affected by FSH Muscular Dystrophy. Their mission is to financially support research related to FSHD, an inherited disorder that causes muscle weakness and wasting. By providing financial backing for ongoing studies, Friends of FSH Research aims to contribute to the advancement of understanding and potential treatments for this condition. For comprehensive and current information on their various research initiatives, interested individuals are advised to visit the Friends of FSH Research website at www.fshfriends.org or refer to the attached PDF document for detailed details.
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Impact
July, 2024
Friends of FSH Research is making a significant impact in the lives of those affected by FSH Muscular Dystrophy by financially supporting FSHD research. Through their efforts, they are working to advance the understanding and treatment of this debilitating condition. Their support aids in driving forward multiple ongoing lines of research aimed at finding effective interventions for FSH Muscular Dystrophy. By funding these initiatives, Friends of FSH Research is playing a crucial role in contributing to the development of potential treatments and ultimately improving the quality of life for individuals living with FSHD.
This information is meant to be a general summary of Friends Of Fsh Research. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $14,822
- Gross Receipts: $889,356
Assets and Liabilities:
- Total Assets: $645,445
- Total Liabilities: $77
- Net Assets: $645,368
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Organization Details
Founding Year
2004
Principal Officer
Teresa Colella
Main Address
217 19TH PLACE, KIRKLAND, WA, 98033
Website
www.fshfriends.orgNTEE Category
Code: H11 - Medical research
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