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Arizona Hemophilia Association Inc

Arizona Bleeding Disorders

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 860209257 ✦ Phoenix, AZ ✦ Designated as a 501(c)(3)

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Overview

What is Arizona Hemophilia Association Inc?

Arizona Hemophilia Association Inc, also known as Arizona Bleeding Disorders, is a nonprofit organization based in Phoenix, Arizona. With a team of eight dedicated individuals, their primary mission is to improve the quality of life for individuals living with chronic bleeding disorders. They achieve this by advocating for a cure and promoting community awareness through various means. This includes annual conferences like the Virtual North American Camping Conference for Hemophilia Organizations and the Virtual Annual Statewide Educational Symposium, providing education to attendees across the state. They also conduct advocacy summits and virtual events to raise awareness within the bleeding disorder community and the general public. Arizona Hemophilia Association Inc additionally caters to specific populations, such as the Hispanic community, by conducting events in their native language to educate and support them.


Official website here: www.arizonahemophilia.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 100%, Four-Star out of Four Star Rating

The Arizona Hemophilia Association Inc has achieved a perfect score of 100%, indicating an exemplary standard of accountability and finance. This rating underscores the organization's commitment to transparency, with an entirely independent board and strong financial oversight. They maintain a 83.57% program expense ratio, which reflects a significant portion of their budget directed towards program services.

However, user feedback presents a more complex picture. Some reviews express concerns about the organization's practices regarding medication distribution, with claims of expired medications being provided to individuals in need. Such issues raise questions about the organization's operational standards and safety protocols, particularly regarding the lack of medical professionals overseeing the distribution of critical treatments.

Overall, while the Arizona Hemophilia Association has demonstrated strong financial health and governance, the negative user experiences highlight potential areas for improvement in their operational practices and communication. This mixed feedback suggests that while the organization is financially sound, there may be significant concerns that need addressing to ensure the safety and well-being of those they serve.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

What do the Facebook reviews say about Arizona Hemophilia Association Inc?

94% of 51 reviewers on Facebook recommend the Arizona Hemophilia Association Inc. Here is a summary of their reviews:

Many individuals express appreciation for the support and resources that the organization provides for the bleeding disorders community in Arizona. Reviews highlight the impactful educational programs and the dedication of the staff in helping families navigate their challenges.

Overall, the sentiment reflects a strong approval of the association’s efforts to improve the lives of those affected by bleeding disorders, with many users acknowledging the valuable role the nonprofit plays in their community.


This AI summary has been generated from reviews found on Facebook.

Is Arizona Hemophilia Association Inc legitimate?

Arizona Hemophilia Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Arizona Hemophilia Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $128,173
Professional Fundraising Fees: $0
Other Salaries and Wages: $256,949

For more financial information, click here


Official website here: www.arizonahemophilia.org

What is the mission statement of Arizona Hemophilia Association Inc?

The Arizona Hemophilia Association Inc is committed to improving the lives of individuals with chronic bleeding disorders while advocating for a cure. Their mission is to enhance the quality of life for affected individuals and their families. They achieve this by promoting community awareness through various educational conferences and media. This includes hosting an annual North American camping conference for children with bleeding disorders, conducting statewide educational symposiums, and advocacy summits to raise awareness within the bleeding disorder community and the general public. They also organize events specific to certain populations, such as a virtual Hispanic Heritage Day, to educate and support those affected by bleeding disorders in their native language. Furthermore, the association conducts a national educational conference for individuals and families living with Von Willebrand's disease.


Official website here: www.arizonahemophilia.org

Who is the CEO of Arizona Hemophilia Association Inc?

Leigh Goldstein is the Executive Director of Arizona Hemophilia Association Inc.


Official website here: www.arizonahemophilia.org

What is the revenue of Arizona Hemophilia Association Inc?

Arizona Hemophilia Association Inc's revenue in 2023 was $1,594,171.


Official website here: www.arizonahemophilia.org

Who are the executives of Arizona Hemophilia Association Inc and what are their salaries?

The average compensation at Arizona Hemophilia Association Inc during 2023 was $48,140. There are 8 employees and 100 volunteers at Arizona Hemophilia Association Inc.


Here are 10 key members and their salaries:


Leigh Goldstein (Executive Director)
  • Compensation: $114,290
  • Related: $0
  • Other: $498
Chelsea Guffy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jaime Neilson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Okeefe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sonia Vohnout (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Evan Rahaeuser (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ellen Owens-Karcsay (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karin Gerlach (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
William Kirschner (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rachel Verdugo (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.arizonahemophilia.org

Where can I find the form 990 for Arizona Hemophilia Association Inc?

Arizona Hemophilia Association Inc's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.arizonahemophilia.org

Learn more at the official website: www.arizonahemophilia.org

Mission Statement of Arizona Hemophilia Association Inc

Arizona Hemophilia Association Inc is dedicated to improving the quality of life for individuals living with chronic bleeding disorders. Their mission is twofold: firstly, they aim to enhance the daily experiences of those affected by these conditions, and secondly, they advocate for the discovery of a cure.

To achieve their mission, Arizona Hemophilia Association Inc engages in various educational initiatives. They organize annual conferences, such as the Virtual North American Camping Conference for Hemophilia Organizations, which draws over 200 national and international attendees. These events aim to enhance the summer camp experience for children with bleeding disorders and promote community awareness. Moreover, they conduct statewide educational symposiums, bringing together individuals and families affected by these conditions to provide educational resources and support.

In addition to their conference activities, Arizona Hemophilia Association Inc also hosts advocacy summits and virtual events to raise awareness within the bleeding disorder community and the general public. They have also organized events specifically targeting the Hispanic population, utilizing their native language to educate and support those affected by bleeding disorders. Furthermore, they hold a National Educational Conference for individuals and families living with Von Willebrands, providing a platform for knowledge sharing and community building.

In summary, Arizona Hemophilia Association Inc is a nonprofit organization committed to improving the lives of individuals with chronic bleeding disorders. Through a variety of educational initiatives, they promote community awareness, provide resources, and advocate for a cure. Their mission is to enhance the daily experiences of those affected and to work towards a future where a cure is within reach.

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Impact




July, 2024

Arizona Hemophilia Association Inc's impact is significant in enhancing the quality of life for those living with chronic bleeding disorders while advocating for a cure. Through various programs and initiatives such as virtual conferences, educational symposiums, advocacy summits, and community events like Hispanic Heritage Day, they provide crucial support and education to individuals and families affected by bleeding disorders. By promoting awareness and offering resources in multiple languages, including Spanish, they address the unique struggles faced by different communities. Their efforts not only empower those with bleeding disorders but also contribute to a more informed and supportive society.




This information is meant to be a general summary of Arizona Hemophilia Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,594,171 (2023)
Expenses
$1,586,449 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $360,608
  • Program Service Revenue: $12,483
  • Gross Receipts: $1,728,801

Assets and Liabilities:

  • Total Assets: $1,883,270
  • Total Liabilities: $603,244
  • Net Assets: $1,280,026

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

HEALTH CENTER FEES

Revenue

$987

CAMP & CONFERENCE FEES

Revenue

$11,496

Organization Details

Founding Year

1967

Principal Officer

Leigh Goldstein

Main Address

826 N 5TH AVENUE, PHOENIX, AZ, 850031316

NTEE Category

Code: G21Z - Disease

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