Overview
What is The Jansen De Vries Syndrome Foundation Inc?
The Jansen De Vries Syndrome Foundation Inc is a nonprofit organization committed to advancing research and understanding of the ppm1d mutation, a rare genetic condition. They achieve this through fundraising and grant initiatives, aiming to fund potential treatments and therapies that could significantly enhance the lives of affected individuals. The Foundation also prioritizes education, offering resources to both families and medical professionals, with the goal of raising awareness and fostering collaboration between affected families, researchers, and healthcare professionals. To further this objective, they facilitate a patient registry program, serving as a hub to connect and unite stakeholders in this field.
Official website here: www.jansen-devries.org
Is The Jansen De Vries Syndrome Foundation Inc legitimate?
The Jansen De Vries Syndrome Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Jansen De Vries Syndrome Foundation Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.jansen-devries.org
What is the mission statement of The Jansen De Vries Syndrome Foundation Inc?
The Jansen De Vries Syndrome Foundation Inc's mission is centered around fundraising and grant initiatives. Their primary objective is to supply researchers with the necessary resources, aiming to deepen understanding of the ppm1d mutation and develop potential treatments and therapies. This is with the ultimate goal of improving the lives of individuals living with this rare genetic condition. The foundation also focuses on providing education and resources, not just for families, but also for medical professionals. Their mission is to raise awareness about this condition and foster unity among families, researchers, and medical professionals through the facilitation of a patient registry program.
Official website here: www.jansen-devries.org
Who is the CEO of The Jansen De Vries Syndrome Foundation Inc?
Marinda Du Toit is the Treasurer of The Jansen De Vries Syndrome Foundation Inc.
Official website here: www.jansen-devries.org
What is the revenue of The Jansen De Vries Syndrome Foundation Inc?
The Jansen De Vries Syndrome Foundation Inc's revenue in 2021 was $21,996.
Official website here: www.jansen-devries.org
Who are the executives of The Jansen De Vries Syndrome Foundation Inc and what are their salaries?
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.jansen-devries.org
Where can I find the form 990EZ for The Jansen De Vries Syndrome Foundation Inc?
The Jansen De Vries Syndrome Foundation Inc's most recent form 990EZ was submitted in 2021 and can be accessed here.
Official website here: www.jansen-devries.org
Learn more at the official website: www.jansen-devries.org
Mission Statement of The Jansen De Vries Syndrome Foundation Inc
The Jansen De Vries Syndrome Foundation Inc is dedicated to advancing the understanding of the ppm1d mutation, a rare genetic condition. Through their fundraising and grant initiatives, they aim to provide researchers with the necessary resources to develop potential treatments and therapies. Their ultimate goal is to improve the lives of those living with this condition. Beyond this, the foundation also focuses on education and resource provision, catering to both families and medical professionals. By raising awareness about this rare genetic condition, they aim to unite families, researchers, and medical professionals through a patient registry program, fostering a collaborative effort towards finding solutions.
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Impact
August, 2024
The Jansen De Vries Syndrome Foundation Inc's impact is significant in the realm of rare genetic conditions. By focusing on providing resources for researchers to deepen their understanding of the ppm1d mutation, the Foundation is actively working towards the development of treatments and therapies that can enhance the lives of individuals affected by this condition. Moreover, through its emphasis on education and resource provision for both families and medical professionals, the Foundation is playing a crucial role in raising awareness about Jansen De Vries Syndrome. Additionally, the Foundation's patient registry program serves as a platform for uniting families, researchers, and medical professionals in a collaborative effort to address this rare genetic condition.
This information is meant to be a general summary of The Jansen De Vries Syndrome Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2021.
- Gross Receipts: $23,262
Assets and Liabilities:
- Total Assets: $19,542
- Total Liabilities: $0
- Net Assets: $19,542
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Organization Details
Phone
(413) 364-3310Principal Officer
Marinda Du Toit
Main Address
PO BOX 14, NATICK, MA, 01760
Website
www.jansen-devries.orgNTEE Category
Code: G01 - Disease
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