Overview
What is Hunters Cmt4B3 Research Foundation Inc?
Hunters Cmt4B3 Research Foundation Inc is a dedicated nonprofit organization, based in Scarsdale, New York, that focuses on funding scientific research aimed at discovering, developing, and clinically applying therapeutic treatments and cures for Charcot-Marie-Tooth Disease Type 4B3 (CMT 4B3). Their mission is to enhance the quality of life for individuals affected by this condition. The foundation achieves this by providing research fellowships and grants, hosting bi-annual meetings, and carefully overseeing the selection of funding recipients through their Scientific Advisory Board. The board members actively engage in international conferences and research forums, exchanging ideas with fellow researchers. Hunters Cmt4B3 Research Foundation Inc also maintains a website for patients, their families, and medical practitioners, offering resources such as research project updates, patient registration, and educational materials. The foundation is run by volunteers who work from home, and they retain accounting services.
Official website here: www.cmt4b3research.org
Is Hunters Cmt4B3 Research Foundation Inc legitimate?
Hunters Cmt4B3 Research Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hunters Cmt4B3 Research Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.cmt4b3research.org
What is the mission statement of Hunters Cmt4B3 Research Foundation Inc?
The Hunters CMT4B3 Research Foundation Inc's mission is centered around funding scientific research aimed at discovering, developing, and clinical applications for therapeutic treatments and cures for Charcot-Marie-Tooth Disease Type 4B3 (CMT 4B3). Their primary goal is to improve the quality of life for individuals living with this condition. They accomplish this by providing research fellowships and grants for CMT 4B3 studies, hosting bi-annual meetings for funded researchers to promote knowledge exchange, and carefully overseeing the selection of research funding recipients based on proposal merit. The foundation also maintains a website for patients, their families, and medical practitioners to aid in understanding and treating CMT 4B3, producing educational materials to raise awareness, and retains accounting services.
Official website here: www.cmt4b3research.org
What is the revenue of Hunters Cmt4B3 Research Foundation Inc?
Hunters Cmt4B3 Research Foundation Inc's revenue in 2024 was $500,835.
Official website here: www.cmt4b3research.org
Who are the executives of Hunters Cmt4B3 Research Foundation Inc and what are their salaries?
Here are 8 key members and their salaries:
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Official website here: www.cmt4b3research.org
Where can I find the form 990 for Hunters Cmt4B3 Research Foundation Inc?
Hunters Cmt4B3 Research Foundation Inc's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.cmt4b3research.org
Learn more at the official website: www.cmt4b3research.org
Mission Statement of Hunters Cmt4B3 Research Foundation Inc
Hunters CMT4B3 Research Foundation Inc is dedicated to funding scientific research aimed at discovering, developing, and clinically applying therapeutic treatments and cures for Charcot-Marie-Tooth Disease Type 4B3 (CMT 4B3). Their mission is to improve the quality of life for individuals affected by this condition. The foundation achieves this by awarding research fellowships and grants to researchers working on CMT 4B3. They also host bi-annual meetings for these researchers and their scientific advisory board to promote knowledge exchange and synergy. The foundation's scientific advisory board carefully reviews and selects the recipients of research funding, evaluating each proposal based on the excellence of the investigator, the work plan, and the proposal's potential to be translated into treatments for people with CMT4B3.
In addition to funding research, Hunters CMT4B3 Research Foundation Inc provides educational materials to raise awareness about CMT 4B3. These materials are disseminated at conferences and public events. The foundation also maintains a website for patients, their families, and medical practitioners to assist in understanding and treating CMT 4B3. The website contains links to research projects, a new patient portal for joining the neurogenetics registry, and the ability to join natural history studies. Hunters CMT4B3 Research Foundation Inc is composed of volunteers who work from home and do not take any salaries. They are committed to improving the lives of individuals with CMT 4B3 through their research and advocacy efforts.
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Impact
October, 2024
Hunters Cmt4B3 Research Foundation Inc significantly advances the understanding and treatment of Charcot-Marie-Tooth Disease Type 4B3 (CMT 4B3) through dedicated scientific research funding. By providing research fellowships and grants, the foundation fosters innovative studies aimed at discovering therapeutic treatments and potential cures. Its rigorous evaluation process ensures that only high-caliber research proposals, capable of translating into real-world solutions for patients, receive funding.
The foundation also facilitates vital knowledge exchange by hosting bi-annual meetings for researchers and its Scientific Advisory Board. This collaboration promotes synergies amongst scientists, enhancing the potential for breakthroughs in CMT 4B3 treatment.
Additionally, its comprehensive online platform offers resources for patients, families, and medical practitioners, contributing to better awareness and understanding of CMT 4B3. Through patient registries and natural history studies, the foundation gathers essential data that drives future research efforts.
By producing educational materials and participating in conferences, Hunters Cmt4B3 Research Foundation Inc raises crucial awareness and disseminates knowledge about the disease. All these initiatives impact the research landscape significantly, aiming to improve the quality of life for those affected by CMT 4B3.
This information is meant to be a general summary of Hunters Cmt4B3 Research Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $33,418
- Gross Receipts: $593,393
Assets and Liabilities:
- Total Assets: $692,726
- Total Liabilities: $19,202
- Net Assets: $673,524
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Organization Details
Founding Year
2020
Principal Officer
Iris Schultz
Website
www.cmt4b3research.orgNTEE Category
Code: H12 - Medical research
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