Overview
What is Sophie's Hope Foundation Inc?
Sophie's Hope Foundation Inc, located in Hopkinton, Massachusetts, is a dedicated nonprofit organization that strives to combat Glycogen Storage Disease 1B (GSD 1B). Their primary goal is to contribute to finding a cure for this condition by funding research and fostering collaboration among patients, caregivers, medical professionals, researchers, and pharmaceutical companies. In 2022, the foundation awarded a grant to Duke University to support their retrospective natural history study. The organization's activities extend beyond funding, as they also aim to raise awareness about GSD 1B and critical funds for related organizations.
Official website here: www.sophieshopefoundation.org
Is Sophie's Hope Foundation Inc legitimate?
Sophie's Hope Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Sophie's Hope Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.sophieshopefoundation.org
What is the mission statement of Sophie's Hope Foundation Inc?
Sophie's Hope Foundation Inc's mission is centered around finding a cure for Glycogen Storage Disease 1B (GSD 1B). The organization believes in the power of collaboration, bringing together patients, caregivers, doctors, researchers, and drug companies to achieve this goal. They accomplish this by funding relevant research and coordinating these efforts. The foundation aims to spread awareness about GSD 1B and raise critical funds, which they distribute to organizations working towards a cure. In 2022, Sophie's Hope Foundation awarded a grant to Duke University to support its retrospective natural history study.
Official website here: www.sophieshopefoundation.org
Who is the CEO of Sophie's Hope Foundation Inc?
Jamas Lafreniere is the President of Sophie's Hope Foundation Inc.
Official website here: www.sophieshopefoundation.org
What is the revenue of Sophie's Hope Foundation Inc?
Sophie's Hope Foundation Inc's revenue in 2022 was $252,400.
Official website here: www.sophieshopefoundation.org
Who are the executives of Sophie's Hope Foundation Inc and what are their salaries?
There 15 volunteers at Sophie's Hope Foundation Inc.
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.sophieshopefoundation.org
Where can I find the form 990 for Sophie's Hope Foundation Inc?
Sophie's Hope Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.sophieshopefoundation.org
Learn more at the official website: www.sophieshopefoundation.org
Mission Statement of Sophie's Hope Foundation Inc
Sophie's Hope Foundation Inc is dedicated to finding a cure for Glycogen Storage Disease 1B (GSD 1B). The organization believes that by funding research and facilitating collaboration between patients, caregivers, doctors, researchers, and drug companies, they can achieve this goal. The foundation's mission is to spread awareness about GSD 1B and raise critical funds. These funds are then distributed to organizations working towards finding a cure for the disease. In 2022, Sophie's Hope Foundation Inc awarded a grant to Duke University to support its retrospective natural history study. The foundation's efforts are aimed at bringing together various stakeholders in the fight against GSD 1B, with the ultimate goal of finding a cure for this debilitating disease.
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Impact
October, 2024
Sophie's Hope Foundation Inc actively contributes to advancing the search for a cure for Glycogen Storage Disease Type 1B (GSD 1B) by funding critical research initiatives and fostering collaboration among key stakeholders such as patients, caregivers, medical professionals, researchers, and pharmaceutical companies. The organization works diligently to raise awareness about GSD 1B, ensuring that the condition receives the attention it deserves.
In 2022, a notable highlight of their impact was the grant awarded to Duke University, which supports a retrospective natural history study aimed at better understanding the disease's progression and effects on patients. This initiative exemplifies the foundation's commitment to direct financial support for research that holds the potential to unlock new treatments and, ultimately, a cure for GSD 1B.
By mobilizing resources and encouraging partnerships, Sophie's Hope Foundation Inc plays a pivotal role in the ongoing efforts to combat this rare disease, offering hope to patients and families affected by GSD 1B.
This information is meant to be a general summary of Sophie's Hope Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,951
- Gross Receipts: $305,846
Assets and Liabilities:
- Total Assets: $518,885
- Total Liabilities: $0
- Net Assets: $518,885
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Organization Details
Founding Year
2020
Phone
(508) 341-4027Principal Officer
Jamas Lafreniere
Main Address
23 BRIARCLIFF DRIVE, HOPKINTON, MA, 01748
NTEE Category
Code: H12 - Medical research
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