Overview
What is Cacna1A Foundation?
The Cacna1A Foundation is a nonprofit organization situated in Norwalk, Connecticut, with an address at 31 Point Road. Their primary focus is on conducting research to discover targeted treatment options and potentially find a cure for individuals affected by CACNA1A-related conditions. This year, they have invested in three significant projects, including expanding their Natural History Study at the Chung Lab, collecting blood samples for iPSC line development, and establishing a comprehensive CACNA1A variant database. This database will serve as a valuable resource for researchers, offering educational materials and natural history study data related to CACNA1A variants.
Official website here: www.cacna1a.org
Is Cacna1A Foundation legitimate?
Cacna1A Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cacna1A Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.cacna1a.org
What is the mission statement of Cacna1A Foundation?
The Cacna1A Foundation's primary goal is to discover specific treatment options and ultimately cure conditions associated with CACNA1A, a gene mutation that affects various health aspects. To achieve this, the organization invests in research initiatives such as expanding their Natural History Study at the Chung Lab, collecting blood samples for the creation of iPSC lines, and developing a comprehensive CACNA1A variant database. This database includes detailed information about CACNA1A variants, educational resources, and data from their natural history study, aiming to advance research and understanding of the disease mechanism.
Official website here: www.cacna1a.org
Who is the CEO of Cacna1A Foundation?
Sunitha Malepati is the Director of Cacna1A Foundation.
Official website here: www.cacna1a.org
What is the revenue of Cacna1A Foundation?
Cacna1A Foundation's revenue in 2022 was $343,299.
Official website here: www.cacna1a.org
Who are the executives of Cacna1A Foundation and what are their salaries?
There 16 volunteers at Cacna1A Foundation.
Here are 6 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.cacna1a.org
Where can I find the form 990 for Cacna1A Foundation?
Cacna1A Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.cacna1a.org
Learn more at the official website: www.cacna1a.org
Mission Statement of Cacna1A Foundation
The Cacna1A Foundation is dedicated to pursuing specific treatment options and ultimately discovering a cure for individuals affected by CACNA1A. Their mission is multifaceted, encompassing three key areas this year. Firstly, they have been investing in expanding their Natural History Study at the Chung Lab. This initiative aims to gather a broader pool of participants, providing crucial data that can further the understanding of the condition. Secondly, the foundation has been collecting blood samples for the creation of iPSC lines. These lines serve as valuable resources for researchers, allowing them to study the underlying mechanisms of the disease more closely. Lastly, the Cacna1A Foundation has been developing a comprehensive CACNA1A variant database. This database includes detailed information on various CACNA1A variants, educational resources, and data from their natural history study. By providing such a database, they aim to facilitate research and advance our understanding of the disease, ultimately contributing to the discovery of a cure.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
October, 2024
The Cacna1A Foundation is making significant strides in advancing research and treatment options for individuals affected by CACNA1A-related conditions. One of the foundation’s key initiatives is the Natural History Study at the Chung Lab, which aims to better understand the progression of CACNA1A disorders by expanding participant enrollment. This study is crucial for developing tailored treatments as it gathers extensive data on patient experiences and outcomes.
Additionally, the foundation is focused on creating a biorepository that collects blood samples for the development of induced pluripotent stem cell (iPSC) lines. This resource will facilitate critical research into the underlying mechanisms of the disease, fostering a deeper understanding of how CACNA1A mutations affect patients at a cellular level.
Another important project is the establishment of a comprehensive variant database. This tool not only catalogs CACNA1A variants but also provides educational resources and integrates natural history study data. By centralizing this information, the foundation supports researchers in identifying potential treatment targets and increases awareness about CACNA1A-related disorders within the medical community.
Overall, the Cacna1A Foundation is dedicated to improving the lives of CACNA1A patients through innovative research, community engagement, and information sharing.
This information is meant to be a general summary of Cacna1A Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $343,299
Assets and Liabilities:
- Total Assets: $876,537
- Total Liabilities: $123,561
- Net Assets: $752,976
Want to help this charity, for free? You can click here to learn more about Give Freely
Organization Details
Founding Year
2020
Principal Officer
Sunitha Malepati
Main Address
31 Point Road, Norwalk, CT, 06854
Website
www.cacna1a.orgNTEE Category
Code: G20 - Disease
If you are a representative of Cacna1A Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.