Overview
What is The American Porphyrias Expert Collaborative Inc?
The American Porphyrias Expert Collaborative Inc, based in Bethesda, Maryland, is a dedicated nonprofit organization. Their primary mission involves conducting research and promoting educational activities related to porphyrias and heme biosynthesis. Through their initiative named NEXTGEN, they provide grants to foster the development of future porphyria experts. Their work encompasses developing best practices, offering research support, and promoting education within the field, all aimed at advancing knowledge and understanding of porphyrias.
Official website here: www.apexcollaborative.com
Is The American Porphyrias Expert Collaborative Inc legitimate?
The American Porphyrias Expert Collaborative Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The American Porphyrias Expert Collaborative Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.apexcollaborative.com
What is the mission statement of The American Porphyrias Expert Collaborative Inc?
The American Porphyrias Expert Collaborative Inc is committed to promoting research and educational activities related to porphyrias and heme biosynthesis. Their mission involves developing best practices, providing research support, and fostering education in this field. Through initiatives like the NextGen program, they aim to educate and train the next generation of porphyria experts. The organization's activities are centered around promoting advancements in understanding and managing porphyrias, a group of rare genetic disorders.
Official website here: www.apexcollaborative.com
Who is the CEO of The American Porphyrias Expert Collaborative Inc?
Robert Desnick is the President of The American Porphyrias Expert Collaborative Inc.
Official website here: www.apexcollaborative.com
What is the revenue of The American Porphyrias Expert Collaborative Inc?
The American Porphyrias Expert Collaborative Inc's revenue in 2022 was $304,432.
Official website here: www.apexcollaborative.com
Who are the executives of The American Porphyrias Expert Collaborative Inc and what are their salaries?
Here are 9 key members and their salaries:
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Official website here: www.apexcollaborative.com
Where can I find the form 990 for The American Porphyrias Expert Collaborative Inc?
The American Porphyrias Expert Collaborative Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.apexcollaborative.com
Learn more at the official website: www.apexcollaborative.com
Mission Statement of The American Porphyrias Expert Collaborative Inc
The American Porphyrias Expert Collaborative Inc, abbreviated as APEX, is dedicated to promoting and advancing research and educational activities related to porphyrias and heme biosynthesis. Their mission is to develop and implement best practices, offer research support, and promote education in this field. By doing so, APEX aims to foster the growth of the next generation of porphyria experts through initiatives like the Next Generation (NEXTGEN) program, which focuses on education and training. This initiative serves to ensure that the field of porphyria research continues to progress and evolve, ultimately benefiting those affected by these complex and often misunderstood conditions.
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Impact
October, 2024
The American Porphyrias Expert Collaborative Inc significantly advances the understanding and treatment of porphyrias, rare metabolic disorders related to heme biosynthesis. Through its research initiatives and educational efforts, it fosters collaboration among experts in the field, driving innovations and best practices in the diagnosis and management of these conditions. The organization provides essential grants to support research, enhancing the visibility and integration of porphyria studies within the broader landscape of medical research.
Additionally, it plays a vital role in advocating for patients, ensuring they receive accurate information and access to quality care. By raising awareness and providing resources, The American Porphyrias Expert Collaborative Inc helps demystify these complex disorders for both healthcare professionals and patients, ultimately leading to improved outcomes and a better quality of life for those affected. Its holistic approach not only prioritizes scientific advancement but also champions the voices of individuals living with porphyrias, creating a more informed and supportive community.
This information is meant to be a general summary of The American Porphyrias Expert Collaborative Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $304,432
Assets and Liabilities:
- Total Assets: $226,583
- Total Liabilities: $0
- Net Assets: $226,583
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Organization Details
Founding Year
2020
Phone
(240) 488-6616Principal Officer
Robert Desnick
Main Address
4800 Hampden Boulevard Ste 200, BETHESDA, MD, 20817
Website
www.apexcollaborative.comNTEE Category
Code: H90 - Medical research
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