Overview
What is Shwachman-Diamond Syndrome Alliance Inc?
Shwachman-Diamond Syndrome Alliance Inc is a nonprofit organization situated in Woburn, Massachusetts. Their primary mission is to unite patient families, medical professionals, researchers, and other stakeholders in the pursuit of a better understanding, diagnosis, and treatment for Shwachman-Diamond Syndrome, a genetic disorder with potential for cancer development. With a small team of dedicated individuals, the alliance is committed to creating a world where SDS can be cured. They strive to accomplish this through collaborative efforts and initiatives.
Official website here: www.sdsalliance.org/
Is Shwachman-Diamond Syndrome Alliance Inc legitimate?
Shwachman-Diamond Syndrome Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Shwachman-Diamond Syndrome Alliance Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $80,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.sdsalliance.org/
What is the mission statement of Shwachman-Diamond Syndrome Alliance Inc?
The mission of Shwachman-Diamond Syndrome Alliance Inc, as stated, is focused on creating a world where Shwachman-Diamond Syndrome (SDS) can be cured. They achieve this goal by fostering collaboration between patient families, researchers, clinicians, and various stakeholders. The alliance's primary aim is to advance the understanding, diagnosis, and treatment of this genetic disorder that has devastating effects. By bringing together diverse groups, they are committed to making significant strides in finding a cure for SDS.
Official website here: www.sdsalliance.org/
Who is the CEO of Shwachman-Diamond Syndrome Alliance Inc?
Eszter Hars is the President of Shwachman-Diamond Syndrome Alliance Inc.
Official website here: www.sdsalliance.org/
What is the revenue of Shwachman-Diamond Syndrome Alliance Inc?
Shwachman-Diamond Syndrome Alliance Inc's revenue in 2022 was $336,751.
Official website here: www.sdsalliance.org/
Who are the executives of Shwachman-Diamond Syndrome Alliance Inc and what are their salaries?
The average compensation at Shwachman-Diamond Syndrome Alliance Inc during 2022 was $80,000. There is 1 employee and 5 volunteers at Shwachman-Diamond Syndrome Alliance Inc.
Here are 5 key members and their salaries:
- Compensation: $80,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.sdsalliance.org/
Where can I find the form 990 for Shwachman-Diamond Syndrome Alliance Inc?
Shwachman-Diamond Syndrome Alliance Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.sdsalliance.org/
Learn more at the official website: www.sdsalliance.org/
Mission Statement of Shwachman-Diamond Syndrome Alliance Inc
The Shwachman-Diamond Syndrome Alliance Inc is committed to creating a world where Shwachman-Diamond Syndrome (SDS), a severe genetic disorder that predisposes individuals to cancer, can be cured. To achieve this mission, the organization brings together various stakeholders, including patient families, researchers, clinicians, and other relevant entities. Their primary goal is to enhance understanding, diagnosis, and treatment of SDS, aiming to ultimately eradicate its impacts. By collaborating with these diverse groups, the Shwachman-Diamond Syndrome Alliance Inc seeks to advance progress in this field and improve the lives of those affected by this debilitating disorder.
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Impact
October, 2024
Shwachman-Diamond Syndrome Alliance Inc significantly impacts the lives of those affected by Shwachman-Diamond Syndrome (SDS) by fostering collaboration among patient families, researchers, and clinicians. By uniting diverse stakeholders, the alliance enhances the understanding, diagnosis, and treatment of this challenging genetic disorder known for its predisposition to cancer. Their efforts focus on advancing research and providing valuable resources, which ultimately aim to improve the quality of life for patients and work towards finding a cure for SDS. The community created through the alliance empowers families and increases awareness of the disorder, driving progress in both scientific research and clinical practices. In this way, the alliance plays a pivotal role in building hope for a future where SDS can be effectively treated and potentially cured.
This information is meant to be a general summary of Shwachman-Diamond Syndrome Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $336,751
Assets and Liabilities:
- Total Assets: $635,328
- Total Liabilities: $0
- Net Assets: $635,328
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Organization Details
Founding Year
2020
Principal Officer
Eszter Hars
Main Address
PO Box 2441, Woburn, MA, 01888
Website
www.sdsalliance.org/NTEE Category
Code: G20 - Disease
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