Ehlers-Danlos Research Foundation Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 844482546 ✦ Pikesville, MD ✦ Designated as a 501(c)(3)

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Overview

What is Ehlers-Danlos Research Foundation Inc?

Ehlers-Danlos Research Foundation Inc, situated in Pikesville, Maryland, is a small yet dedicated nonprofit organization. Their primary focus is to stimulate and amplify research into Ehlers-Danlos Syndromes, a group of inherited connective tissue disorders. With a team of just one individual, they are committed to advancing our understanding and treatment options for those affected by these complex conditions. Their mission is clear: to drive progress and make a meaningful difference in the lives of those impacted by Ehlers-Danlos Syndromes.


Official website here: www.edsrf.org

Is Ehlers-Danlos Research Foundation Inc legitimate?

Ehlers-Danlos Research Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ehlers-Danlos Research Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $29,914

For more financial information, click here


Official website here: www.edsrf.org

What is the mission statement of Ehlers-Danlos Research Foundation Inc?

The Ehlers-Danlos Research Foundation Inc is dedicated to promoting and enhancing research into the Ehlers-Danlos Syndromes. Their mission is centered around advancing our understanding of these conditions, with the ultimate goal of discovering new treatments and potential cures. By promoting research, the foundation aims to contribute to a broader knowledge base about these syndromes, leading to improved diagnoses and personalized healthcare for affected individuals. The foundation's activities primarily focus on supporting and driving research efforts in this field.


Official website here: www.edsrf.org

Who is the CEO of Ehlers-Danlos Research Foundation Inc?

Jayne Gavrity is the President of Ehlers-Danlos Research Foundation Inc.


Official website here: www.edsrf.org

What is the revenue of Ehlers-Danlos Research Foundation Inc?

Ehlers-Danlos Research Foundation Inc's revenue in 2022 was $213,055.


Official website here: www.edsrf.org

Who are the executives of Ehlers-Danlos Research Foundation Inc and what are their salaries?

The average compensation at Ehlers-Danlos Research Foundation Inc during 2022 was $29,914. There is 1 employee at Ehlers-Danlos Research Foundation Inc.


Here are 7 key members and their salaries:


Jennifer Spiegel Berman (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jayne Gavrity (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Alissa Zingman (Medical Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jessika Auerbach (Fundraising Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sharon Yoh (Donor Relations)
  • Compensation: $0
  • Related: $0
  • Other: $0
Misia Van Arsdale (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ilene Ruhoy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.edsrf.org

Where can I find the form 990 for Ehlers-Danlos Research Foundation Inc?

Ehlers-Danlos Research Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.edsrf.org

Learn more at the official website: www.edsrf.org

Mission Statement of Ehlers-Danlos Research Foundation Inc

Ehlers-Danlos Research Foundation Inc is committed to driving advancements in the field of Ehlers-Danlos Syndromes (EDS) research. Their mission, in simple terms, is to stimulate and amplify the exploration of EDS, an complex group of genetic disorders that affect connective tissues in the body. By promoting and boosting research, the foundation aims to uncover new insights, develop effective treatments, and ultimately improve the quality of life for individuals and families affected by these syndromes.

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Impact




October, 2024

Ehlers-Danlos Research Foundation Inc significantly advances the understanding of Ehlers-Danlos Syndromes (EDS) by promoting and increasing research efforts focused on this complex group of genetic connective tissue disorders. Based in Pikesville, MD, the organization addresses critical gaps in research, facilitating studies that explore the underlying mechanisms, symptoms, and treatments associated with EDS. By fostering collaboration among researchers, clinicians, and the patient community, the foundation enhances awareness and drives innovative approaches to diagnosis and care, ultimately aiming to improve the quality of life for those affected by EDS.




This information is meant to be a general summary of Ehlers-Danlos Research Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$213,055 (2022)
Expenses
$67,840 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $213,055

Assets and Liabilities:

  • Total Assets: $466,020
  • Total Liabilities: $0
  • Net Assets: $466,020

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Organization Details

Founding Year

2020

Principal Officer

Jayne Gavrity

Main Address

1829 REISTERSTOWN RD 100, PIKESVILLE, MD, 21208

NTEE Category

Code: H80 - Medical research

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