Overview
What is Rare Sisters Batten Foundation Inc?
The Rare Sisters Batten Foundation Inc, located in Arvada, Colorado, is a nonprofit organization dedicated to advocating for and raising awareness about Batten disease and other rare diseases. Their mission encompasses supporting medical research aimed at finding treatments and cures for CLN3 Batten disease, while also providing financial assistance to families with children diagnosed with the disease. This year, the foundation has granted funds to help families purchase accessible vehicles or complete home modifications, benefiting four families. Additionally, the Rare Sisters Batten Foundation has contributed to establishing the Batten and Neurodegenerative Clinic at Children's Hospital Colorado in collaboration with the Milas Miracle Foundation.
Is Rare Sisters Batten Foundation Inc legitimate?
Rare Sisters Batten Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rare Sisters Batten Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $24,769
Other Salaries and Wages: $0
For more financial information, click here
What is the mission statement of Rare Sisters Batten Foundation Inc?
The Rare Sisters Batten Foundation aims to drive advancements in medical research for treatments and potential cures for CLN3 Batten Disease. This non-profit organization also extends monetary aid to families with children diagnosed with Batten Disease. In addition to funding research, the foundation has been active in raising awareness for Batten Disease and other rare diseases through various events, reaching over 1500 individuals. This year, the foundation has provided grants to help Batten families purchase accessible vehicles and complete home modifications, benefiting four families. The Rare Sisters Batten Foundation has also contributed to establishing the Batten and Neurodegenerative Clinic at Children's Hospital Colorado in partnership with the Milas Miracle Foundation.
Who is the CEO of Rare Sisters Batten Foundation Inc?
Elizabeth Fries is the President of Rare Sisters Batten Foundation Inc.
What is the revenue of Rare Sisters Batten Foundation Inc?
Rare Sisters Batten Foundation Inc's revenue in 2022 was $227,631.
Who are the executives of Rare Sisters Batten Foundation Inc and what are their salaries?
There 75 volunteers at Rare Sisters Batten Foundation Inc.
Here are 7 key members and their salaries:
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Where can I find the form 990 for Rare Sisters Batten Foundation Inc?
Rare Sisters Batten Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of Rare Sisters Batten Foundation Inc
The Rare Sisters Batten Foundation Inc is dedicated to advancing medical research aimed at developing treatments and potentially curing CLN3 Batten Disease. This nonprofit organization also extends monetary assistance to families who have children diagnosed with Batten Disease. By doing so, it aims to alleviate some of the financial burdens that often accompany managing such rare diseases.
In addition to funding research and providing financial aid, the Rare Sisters Batten Foundation Inc has also been actively involved in raising awareness for Batten Disease and other rare diseases. They achieved this through organizing three events that reached over 1500 individuals. The foundation's efforts have also extended to helping families affected by Batten Disease. In 20XX, four families benefited from grants provided by the Rare Sisters Batten Foundation Inc, which they used to purchase accessible vehicles or complete home modifications.
Moreover, the Rare Sisters Batten Foundation Inc has collaborated with the Milas Miracle Foundation to fund the Batten and Neurodegenerative Clinic at Children's Hospital Colorado. This clinic is dedicated to supporting patients with Batten Disease and other neurodegenerative conditions. Through its initiatives, the Rare Sisters Batten Foundation Inc demonstrates its commitment to supporting families affected by Batten Disease and contributing to the development of potential treatments and cures for the disease.
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Impact
October, 2024
The Rare Sisters Batten Foundation Inc significantly advances the fight against CLN3 Batten disease by facilitating critical medical research and providing essential financial support to affected families. Through advocacy and awareness campaigns, the foundation has reached over 1,500 individuals, educating the public about Batten disease and other rare diseases.
Their impactful initiatives include grants that assist families in obtaining accessible vehicles and completing necessary home modifications, directly benefiting four families this year alone. Additionally, the foundation has played a crucial role in funding the Batten and Neurodegenerative Clinic at Children's Hospital Colorado, working collaboratively with Milas Miracle Foundation to enhance medical resources for those impacted by the disease. This holistic approach not only addresses immediate family needs but also promotes long-term advancements in treatment and care.
This information is meant to be a general summary of Rare Sisters Batten Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $228,210
Assets and Liabilities:
- Total Assets: $102,776
- Total Liabilities: $0
- Net Assets: $102,776
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Organization Details
Founding Year
2020
Principal Officer
Elizabeth Fries
Main Address
PO BOX 746561, ARVADA, CO, 80006
NTEE Category
Code: G80 - Disease
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