Overview
What is Indo Us Organization For Rare Diseases?
The Indo US Organization for Rare Diseases is a nonprofit organization situated in Herndon, Virginia. Their primary objective is to foster patient-oriented education, awareness, training, research, and engagement initiatives, in line with the FDA's Patient-Focused Drug Development (PFDD) initiative. Through their programs, they aim to support individuals affected by rare diseases, focusing on patient-centric strategies. This organization serves as a platform for collaboration and information exchange, contributing to the advancement of treatments and understanding in the field of rare diseases.
Is Indo Us Organization For Rare Diseases legitimate?
Indo Us Organization For Rare Diseases is a legitimate nonprofit organization registered as a 501(c)(3) entity. Indo Us Organization For Rare Diseases submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
What is the mission statement of Indo Us Organization For Rare Diseases?
The Indo US Organization for Rare Diseases is dedicated to establishing and maintaining patient-oriented education, awareness, training, research, and engagement initiatives. These programs aim to align with the FDA's patient-focused drug development (PFDD) initiative. The organization's primary goal is to improve the lives of individuals affected by rare diseases by fostering a patient-centric approach in their efforts.
Who is the CEO of Indo Us Organization For Rare Diseases?
Harsha Rajasimha is the President of Indo Us Organization For Rare Diseases.
What is the revenue of Indo Us Organization For Rare Diseases?
Indo Us Organization For Rare Diseases's revenue in 2022 was $118,231.
Who are the executives of Indo Us Organization For Rare Diseases and what are their salaries?
Here are 7 key members and their salaries:
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Where can I find the form 990EZ for Indo Us Organization For Rare Diseases?
Indo Us Organization For Rare Diseases's most recent form 990EZ was submitted in 2022 and can be accessed here.
Mission Statement of Indo Us Organization For Rare Diseases
The Indo US Organization for Rare Diseases is committed to establishing and maintaining education, awareness, training, research, and engagement initiatives that are centered around patients. This organization aligns its work with the Patient-Focused Drug Development (PFDD) initiative by the FDA. Its mission is to create a patient-centric environment, aiming to improve the lives of those affected by rare diseases. The organization focuses on raising awareness, providing training, and conducting research to advance the development of treatments for these often under-researched ailments.
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Impact
October, 2024
Indo US Organization For Rare Diseases significantly impacts the landscape of rare disease management by focusing on patient-centric education and advocacy. Through its programs, it enhances awareness about rare diseases, which are often overlooked and underfunded. The organization's initiatives align with the FDA's patient-focused drug development (PFDD) initiative, ensuring that the voices and needs of patients are prioritized in the drug development process.
By providing training and engagement opportunities, the organization empowers patients and caregivers with the knowledge required to navigate complex healthcare systems. Its research programs contribute to a deeper understanding of rare diseases, potentially leading to innovative treatments and improved health outcomes. Operating from Herndon, VA, the Indo US Organization serves as a vital link between patients, researchers, and regulatory authorities, fostering collaboration that is crucial for advancing the field of rare disease research and treatment.
This information is meant to be a general summary of Indo Us Organization For Rare Diseases. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $5
- Gross Receipts: $118,231
Assets and Liabilities:
- Total Assets: $43,078
- Total Liabilities: $6,914
- Net Assets: $36,164
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Organization Details
Phone
(540) 239-0465Principal Officer
Harsha Rajasimha
Main Address
13687 NEIL ARMSTRONG AVE, HERNDON, VA, 20171
NTEE Category
Code: E70 - Health
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