Neuroacanthocytosis Advocacy Usa Incorporated

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 843711526 ✦ Melbourne, FL ✦ Designated as a 501(c)(3)

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Overview

What is Neuroacanthocytosis Advocacy Usa Incorporated?

Neuroacanthocytosis Advocacy U.S.A. Incorporated is a charitable organization that actively supports research into Neuroacanthocytosis, a rare neurological disorder. They have awarded two grants to the Icahn School of Medicine at Mount Sinai for studying brain tissue of patients with this condition. The first grant, initiated in 2021, has been completed, and the second one, a six-month extension, is currently underway, with the remaining funds to be disbursed in 2023. The organization's mission is centered around funding scientific studies aimed at understanding and addressing Neuroacanthocytosis.

Is Neuroacanthocytosis Advocacy Usa Incorporated legitimate?

Neuroacanthocytosis Advocacy Usa Incorporated is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neuroacanthocytosis Advocacy Usa Incorporated submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

What is the mission statement of Neuroacanthocytosis Advocacy Usa Incorporated?

Neuroacanthocytosis Advocacy U.S.A. Incorporated is a charitable organization that supports research into neuroacanthocytosis, a rare neurological disorder. They have awarded grants to the Icahn School of Medicine at Mount Sinai for two separate projects related to the study of brain tissue from neuroacanthocytosis patients. The first grant was a one-year research grant, and a subsequent grant was extended for an additional six months, with the remaining balance to be paid in 2023. The organization's efforts aim to advance understanding and potential treatments for neuroacanthocytosis.

Who is the CEO of Neuroacanthocytosis Advocacy Usa Incorporated?

Susan Wager is the President of Neuroacanthocytosis Advocacy Usa Incorporated.

What is the revenue of Neuroacanthocytosis Advocacy Usa Incorporated?

Neuroacanthocytosis Advocacy Usa Incorporated's revenue in 2022 was $48,466.

Who are the executives of Neuroacanthocytosis Advocacy Usa Incorporated and what are their salaries?


Here are 7 key members and their salaries:


Susan Wager (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joyce Willard-Williford (Vp Secretary Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ginger Irvine (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ruth Walker (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Metzger (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Candi Dimarzio (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julie Kerner (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Where can I find the form 990EZ for Neuroacanthocytosis Advocacy Usa Incorporated?

Neuroacanthocytosis Advocacy Usa Incorporated's most recent form 990EZ was submitted in 2022 and can be accessed here.

Mission Statement of Neuroacanthocytosis Advocacy Usa Incorporated

Neuroacanthocytosis Advocacy USA Incorporated, a charitable organization, has been actively involved in supporting medical research. Specifically, it has awarded two grants to the Icahn School of Medicine at Mount Sinai for a project titled "Neuropathology of Neuroacanthocytosis." The first grant was a six-month extension of an existing research grant, while the second was a one-year grant, both aimed at studying brain tissue of patients with neuroacanthocytosis. The organization has successfully completed the initial grant, and the balance of the second grant is due to be paid in 2023. These grants contribute to the advancement of medical knowledge about neuroacanthocytosis, a rare neurological disorder, which can ultimately lead to improved treatments and understanding of the condition.

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Impact




August, 2024

Neuroacanthocytosis Advocacy Usa Incorporated's impact includes awarding research grants to the Icahn School of Medicine at Mount Sinai for the "Neuropathology of Neuroacanthocytosis" project. This funding supports the study of brain tissue from neuroacanthocytosis patients, contributing to advancements in understanding and potentially treating this rare disease. The organization's charitable work in this field highlights their commitment to supporting research and initiatives that aim to improve the lives of individuals affected by neuroacanthocytosis.




This information is meant to be a general summary of Neuroacanthocytosis Advocacy Usa Incorporated. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$48,466 (2022)
Expenses
$32,486 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $17
  • Gross Receipts: $48,466

Assets and Liabilities:

  • Total Assets: $44,924
  • Total Liabilities: $0
  • Net Assets: $44,924

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Organization Details

Principal Officer

Susan Wager

Main Address

2285 HARLOCK RD, MELBOURNE, FL, 329347666

NTEE Category

Code: G50 - Disease

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