Overview
What is Smc1A Foundation?
Smc1A Foundation is a nonprofit organization with a mission to raise awareness, accelerate research, and seek a cure for SMC1A-related conditions. Their primary objective is to mobilize funds exclusively for research aimed at discovering effective treatments and potentially a cure. To facilitate this, they have established a Patient Registry for SMC1A Epilepsy, which is managed by Sanford CoRDS. The registry, labeled under SMC1A Truncated Mutations, serves as a valuable resource for ongoing research.
Official website here: www.smc1a-epilepsy.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Not Available
The Smc1A Foundation focuses on supporting families affected by the SMC1A mutation, which can lead to various health challenges. User feedback highlights the foundation’s strength in building a supportive community among families. One reviewer emphasized the importance of the connection with other families who share similar experiences, indicating the foundation's role in reducing isolation and providing a sense of belonging.
A recent review from Jackie N. rated the foundation 5 stars, expressing gratitude for the invaluable support during her daughter's long diagnostic journey. The foundation aims to not only connect families but also work towards treatment solutions, showing its commitment to research and advocacy for affected individuals.
While specific financial ratings or detailed organizational assessments were not available, the positive user experience suggests a dedicated and effective nonprofit that addresses the needs of its community. The foundation's focus on connection and support appears to be a significant strength, enhancing the lives of those affected by SMC1A mutations.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Smc1A Foundation legitimate?
Smc1A Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Smc1A Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.smc1a-epilepsy.org
What is the mission statement of Smc1A Foundation?
The Smc1A Foundation, being a non-profit organization, is driven by a vision to increase awareness, expedite research, and find a cure for SMC1A. Their primary goal is to collect funds, with a commitment to ensuring that 100% of the funds are channeled towards research aimed at developing effective treatments and potentially a cure. The foundation has established a Patient Registry for SMC1A Epilepsy, which is housed by Sanford CoRDS and cataloged under SMC1A Truncated Mutations. This registry serves as a crucial tool in advancing research related to SMC1A.
Official website here: www.smc1a-epilepsy.org
What is the revenue of Smc1A Foundation?
Smc1A Foundation's revenue in 2020 was $2,070.
Official website here: www.smc1a-epilepsy.org
Who are the executives of Smc1A Foundation and what are their salaries?
There is 1 key member and their salary:
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.smc1a-epilepsy.org
Where can I find the form 990EZ for Smc1A Foundation?
Smc1A Foundation's most recent form 990EZ was submitted in 2020 and can be accessed here.
Official website here: www.smc1a-epilepsy.org
Learn more at the official website: www.smc1a-epilepsy.org
Mission Statement of Smc1A Foundation
The Smc1A Foundation, a non-profit organization, is driven by a vision to increase awareness, accelerate research, and ultimately discover a cure for SMC1A. Their primary goal is to raise funds, with a commitment to ensuring that 100% of the collected funds are directed towards research aimed at developing effective treatments and potentially finding a cure for SMC1A-related conditions. The organization has taken significant strides towards this objective by establishing a Patient Registry for SMC1A Epilepsy. This registry, hosted by Sanford CoRDS, is an invaluable resource listed under SMC1A Truncated Mutations, contributing significantly to ongoing research efforts. The Smc1A Foundation's mission is to transform the lives of those affected by SMC1A, offering hope and advancement in the fight against this condition.
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Impact
August, 2024
Smc1A Foundation's impact is significant in the realm of SMC1A research and advocacy. The foundation has successfully created a Patient Registry for SMC1A Epilepsy, hosted by Sanford CoRDS and listed under SMC1A Truncated Mutations. This registry will play a crucial role in advancing research efforts and understanding the disease better. Additionally, the foundation's fundraising activities aim to support research that may lead to effective treatments and, ultimately, a cure for SMC1A. By focusing all funds collected towards this important cause, Smc1A Foundation is making a tangible difference in the lives of those affected by SMC1A and working towards transforming outcomes for individuals with this condition.
This information is meant to be a general summary of Smc1A Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2020.
- Gross Receipts: $2,070
Assets and Liabilities:
- Total Assets: $1,870
- Total Liabilities: $0
- Net Assets: $1,870
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Organization Details
Website
www.smc1a-epilepsy.orgNTEE Category
Code: G54 - Disease
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