Overview
What is Don'T Forget Me?
"Don'T Forget Me," or the Don't Forget Morgan Foundation, is a charitable organization based in West Bloomfield, Michigan. Their primary mission is to fund research to discover a cure and provide therapy for children suffering from Beta-Propeller Protein-Associated Neurodegeneration (BPAN), a rare and progressive genetic disorder affecting the nervous system. With only around 500 known cases worldwide, BPAN research is severely underdeveloped. The foundation achieves its goal by granting funds to various medical and research facilities. Their dedication is aimed at improving the lives of children living with this debilitating condition, offering hope and a future free from the limitations of BPAN.
Official website here: www.dontforgetmorgan.org
Is Don'T Forget Me legitimate?
Don'T Forget Me is a legitimate nonprofit organization registered as a 501(c)(3) entity. Don'T Forget Me submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.dontforgetmorgan.org
What is the mission statement of Don'T Forget Me?
The organization Don't Forget Me is committed to raising funds for research aimed at discovering a cure and effective treatment for Beta-Propeller Protein-Associated Neurodegeneration (BPAN). This is a genetic disorder that negatively impacts the nervous system, primarily affecting children. With only around 500 known cases worldwide, research into BPAN is currently limited. The organization's mission is to contribute to expanding the body of knowledge and advancing potential therapies for this progressive disease.
Official website here: www.dontforgetmorgan.org
Who is the CEO of Don'T Forget Me?
Kelly Kozole is the Director of Don'T Forget Me.
Official website here: www.dontforgetmorgan.org
What is the revenue of Don'T Forget Me?
Don'T Forget Me's revenue in 2022 was $276,089.
Official website here: www.dontforgetmorgan.org
Who are the executives of Don'T Forget Me and what are their salaries?
Here are 4 key members and their salaries:
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- Other: $0
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Official website here: www.dontforgetmorgan.org
Where can I find the form 990 for Don'T Forget Me?
Don'T Forget Me's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.dontforgetmorgan.org
Learn more at the official website: www.dontforgetmorgan.org
Mission Statement of Don'T Forget Me
Don't Forget Me, a nonprofit organization, is dedicated to raising funds for research aimed at discovering a cure and therapeutic solutions for children suffering from Beta-Propeller Protein-Associated Neurodegeneration (BPAN). This genetic disorder adversely affects the nervous system, leading to progressive deterioration in children, who are among the 500 known cases worldwide. Regrettably, the research into BPAN is scarce, and Don't Forget Me steps in to fill this void. By funding scientific investigations, the organization seeks to advance our understanding of this rare and debilitating condition, ultimately paving the way for effective treatments and potentially, a cure.
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Impact
October, 2024
Don'T Forget Me plays a vital role in addressing the challenges posed by Beta-Propeller Protein-Associated Neurodegeneration (BPAN), a rare genetic disorder impacting the nervous system in children. With only 500 known cases worldwide, the need for focused research and funding is critical.
The organization’s efforts in fundraising are crucial for the advancement of medical and scientific understanding of BPAN. By awarding grants to various research facilities, Don'T Forget Me accelerates the discovery of potential therapies and ultimately a cure. Their commitment highlights the urgent need for increased attention and resources toward rare diseases, which often receive limited focus in the larger medical research landscape.
Through its work, Don'T Forget Me not only provides hope to families affected by BPAN but also fosters collaboration among researchers, raising awareness and encouraging further exploration into this debilitating condition. The organization’s impact extends beyond immediate research funding; it serves to unite a community, inspire advocates, and build momentum in the fight against BPAN.
This information is meant to be a general summary of Don'T Forget Me. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $276,089
Assets and Liabilities:
- Total Assets: $259,016
- Total Liabilities: $0
- Net Assets: $259,016
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Organization Details
Founding Year
2019
Phone
(313) 790-9619Principal Officer
Kelly Kozole
Main Address
2200 UPLONG DRIVE, WEST BLOOMFIELD, MI, 48324
Website
www.dontforgetmorgan.orgNTEE Category
Code: G80 - Disease
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