Overview
What is Superficial Siderosis Research Alliance?
The Superficial Siderosis Research Alliance is a dedicated nonprofit organization that champions the welfare of individuals affected by the rare disorder, Superficial Siderosis. They firmly believe in the importance of clinical research and education and actively support these endeavors. Their initiatives extend beyond mere advocacy, as they also offer patient research programs and provide financial assistance to the Superficial Siderosis Clinic and Research Laboratory. Additionally, the alliance focuses on education and fundraising, aiming to enhance public understanding and resource allocation for this specific medical condition.
Official website here: www.ssra.livingwithss.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: Not Available
The Superficial Siderosis Research Alliance (SSRA) has received positive feedback from users, particularly for its role in supporting families affected by Superficial Siderosis. Reviewers have highlighted the organization's commitment to providing crucial information and resources that help navigate the complexities of this rare and understudied condition. The transformational impact on families has been emphasized, showcasing the SSRA's importance within the community it serves.
Users have praised SSRA for its extensive and valuable information, which is deemed a fantastic resource for anyone dealing with this disease. Reviewers have noted that the organization has made significant strides in connecting those diagnosed with the latest research and developments, contributing to a well-informed support network.
While specific ratings from Charity Navigator are not available, the overwhelmingly positive reviews indicate that SSRA is making a meaningful difference in the lives of those affected by Superficial Siderosis. The organization appears to excel in providing support and information, although there may be limited quantitative assessments of its overall performance and impact.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Superficial Siderosis Research Alliance legitimate?
Superficial Siderosis Research Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Superficial Siderosis Research Alliance submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.ssra.livingwithss.com
What is the mission statement of Superficial Siderosis Research Alliance?
The Superficial Siderosis Research Alliance is dedicated to championing the interests of the rare disorder community affected by Superficial Siderosis. Their mission encompasses advocating for patient needs, promoting clinical research, and fostering education in this field. The alliance provides financial assistance to the Superficial Siderosis Clinic and Research Laboratory, and their initiatives include patient research programs, advocacy, education, and fundraising efforts.
Official website here: www.ssra.livingwithss.com
Who is the CEO of Superficial Siderosis Research Alliance?
Kyle Dempsey is the President of Superficial Siderosis Research Alliance.
Official website here: www.ssra.livingwithss.com
What is the revenue of Superficial Siderosis Research Alliance?
Superficial Siderosis Research Alliance's revenue in 2022 was $73,648.
Official website here: www.ssra.livingwithss.com
Who are the executives of Superficial Siderosis Research Alliance and what are their salaries?
Here are 4 key members and their salaries:
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
Official website here: www.ssra.livingwithss.com
Where can I find the form 990EZ for Superficial Siderosis Research Alliance?
Superficial Siderosis Research Alliance's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.ssra.livingwithss.com
Learn more at the official website: www.ssra.livingwithss.com
Mission Statement of Superficial Siderosis Research Alliance
The Superficial Siderosis Research Alliance is dedicated to advocating for the betterment of individuals affected by the rare disorder, Superficial Siderosis. Their mission encompasses supporting clinical research and education in this field. To accomplish this, they provide patient research programs and offer financial assistance to the Superficial Siderosis Clinic and Research Laboratory. Their efforts extend beyond just research and education, as they also engage in advocacy and fundraising activities to benefit the Superficial Siderosis community. The Alliance's programs aim to provide a comprehensive approach to supporting those affected by this rare disorder.
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Impact
August, 2024
The Superficial Siderosis Research Alliance has had a significant impact on advancing research and support for individuals affected by Superficial Siderosis, a rare disorder. Through their advocacy, education, and fundraising efforts, they have raised awareness about this condition and the need for further clinical research. The organization's programs offer valuable patient research opportunities and financial support to the Superficial Siderosis Clinic and Research Laboratory, contributing to the development of effective treatments and improved quality of life for those living with the disorder. Their unwavering dedication to advancing medical research in this field is commendable and has positively impacted the Superficial Siderosis community.
This information is meant to be a general summary of Superficial Siderosis Research Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $73,648
Assets and Liabilities:
- Total Assets: $87,162
- Total Liabilities: $0
- Net Assets: $87,162
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Organization Details
Principal Officer
Kyle Dempsey
Main Address
W238N1645 ROCKWOOD DR A, WAUKESHA, WI, 53188
Website
www.ssra.livingwithss.comNTEE Category
Code: H12 - Medical research
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