Overview
What is Lissencephaly Foundation Inc Care Of Kara Jones?
Lissencephaly Foundation Inc Care Of Kara Jones is a nonprofit organization situated in Shasta Lake, California. Their primary mission is to educate new parents and communities about Lissencephaly, a rare neurological condition. They achieve this through various initiatives, such as providing care packages to eight families, condolence packages to four families, offering adaptive equipment grants to families, and facilitating the attendance of 21 individuals at parent retreats and conventions. Beyond direct assistance, the foundation strives to empower families and educate communities, aiming to support Lissencephaly families in numerous ways.
Official website here: www.lissfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 60% (Two-Star out of Four Star rating)
The Lissencephaly Foundation Inc has received a 60% rating from Charity Navigator, indicating a two-star status. This rating highlights some strengths in the organization's financial management, particularly a high program expense ratio of approximately 86%, suggesting that a significant portion of their funds is directed towards their programs. However, the overall rating reflects concerns regarding governance and transparency.
Key weaknesses noted in the evaluation include a lack of independent board members, as none of the ten board members are independent. Additionally, the organization lacks essential policies, including a conflict of interest policy and a whistleblower policy. These shortcomings could raise questions about the foundation's accountability and ethical governance practices.
While the foundation does not have any material diversion of assets, which is a positive aspect, the absence of publicly accessible board meeting minutes and the failure to post the tax form on their website further detracts from their transparency. Overall, prospective donors may want to consider these factors when evaluating their support for the Lissencephaly Foundation Inc.
This AI summary has been generated from information found on Charity Navigator.
Is Lissencephaly Foundation Inc Care Of Kara Jones legitimate?
Lissencephaly Foundation Inc Care Of Kara Jones is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lissencephaly Foundation Inc Care Of Kara Jones submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.lissfoundation.org
What is the mission statement of Lissencephaly Foundation Inc Care Of Kara Jones?
The Lissencephaly Foundation Inc's mission is centered around empowering families and educating communities to support those affected by Lissencephaly, a rare neurological condition. They strive to enlighten new parents and broader communities about this condition through various means. The foundation has demonstrated its commitment by providing care packages to several families, offering condolence packages to others, granting adaptive equipment to numerous families, and sponsoring individuals to attend parent retreats and conventions. Their ultimate goal is to create a supportive network for Lissencephaly families.
Official website here: www.lissfoundation.org
Who is the CEO of Lissencephaly Foundation Inc Care Of Kara Jones?
Misty Harlan is the Vice President of Lissencephaly Foundation Inc Care Of Kara Jones. The CEO's salary of Lissencephaly Foundation Inc Care Of Kara Jones is $0 and their total compensation is $0.
Official website here: www.lissfoundation.org
What is the revenue of Lissencephaly Foundation Inc Care Of Kara Jones?
Lissencephaly Foundation Inc Care Of Kara Jones's revenue in 2022 was $23,045.
Official website here: www.lissfoundation.org
Who are the executives of Lissencephaly Foundation Inc Care Of Kara Jones and what are their salaries?
There 6 volunteers at Lissencephaly Foundation Inc Care Of Kara Jones.
Here are 4 key members and their salaries (Lissencephaly Foundation Inc Care Of Kara Jones's CEO's salary is $0 and their total compensation is $0):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.lissfoundation.org
Where can I find the form 990 for Lissencephaly Foundation Inc Care Of Kara Jones?
Lissencephaly Foundation Inc Care Of Kara Jones's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.lissfoundation.org
Learn more at the official website: www.lissfoundation.org
Mission Statement of Lissencephaly Foundation Inc Care Of Kara Jones
Lissencephaly Foundation Inc. Care of Kara Jones, a dedicated organization, is committed to enlightening new parents and communities about the rare neurological condition known as lissencephaly. Their mission is multifaceted, aimed at empowering families and educating communities to support those affected by this condition in various ways.
The foundation provides resources and assistance to families struggling with lissencephaly. They have distributed care packages to eight families, offering them comfort and support during challenging times. In addition, they have extended condolence packages to four families who have lost a loved one to this condition. Beyond material support, the foundation offers financial assistance in the form of adaptive equipment grants to families in need, enabling them to better care for their loved ones with lissencephaly.
Furthermore, Lissencephaly Foundation Inc. Care of Kara Jones proactively involves individuals in parent retreats and conventions. By sending 21 individuals to these events, they foster a sense of community and shared experience among families affected by lissencephaly. This empowerment and education of families and communities are essential components of the foundation's mission, aiming to create a supportive environment for those navigating the challenges of lissencephaly.
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Impact
August, 2024
Lissencephaly Foundation Inc Care Of Kara Jones has made a significant impact by educating new parents and communities about the rare neurological condition lissencephaly. They have provided care packages to 8 families, condolence packages to 4 families, and adaptive equipment grants to 40 families. In addition, they have sent 21 individuals to parent retreats and conventions. This organization based in Shasta Lake, CA, is empowering families and educating communities to support lissencephaly families in a multitude of ways. Their efforts are invaluable in raising awareness and providing support to those affected by this condition.
This information is meant to be a general summary of Lissencephaly Foundation Inc Care Of Kara Jones. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $23,045
Assets and Liabilities:
- Total Assets: $28,155
- Total Liabilities: $0
- Net Assets: $28,155
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Organization Details
Founding Year
2019
Phone
(541) 220-9584Principal Officer
Misty Harlan
Main Address
PO BOX 698, Shasta Lake, CA, 96019
Website
www.lissfoundation.orgNTEE Category
Code: E01 - Health
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