Overview
What is Pulmonary Fibrosis Foundation?
The Pulmonary Fibrosis Foundation is a dedicated nonprofit organization based in Chicago, Illinois. Their primary mission is to unite individuals and resources to offer access to superior care and spearhead research towards a cure for pulmonary fibrosis (PF) and interstitial lung diseases (ILD). They achieve this through their PFF Patient Registry program, a collaborative initiative involving patients, caregivers, family members, healthcare providers, and researchers. The registry aims to advance research and enhance the quality of life for PF and ILD patients by generating revenue from contributions, sponsorships, and program services. The organization, with a team of 41 employees, strives to improve the lifespan and well-being of people living with these conditions.
Official website here: www.pulmonaryfibrosis.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 98% (Four-Star out of Four Stars)
The Pulmonary Fibrosis Foundation has achieved an impressive Four-Star rating on Charity Navigator, reflecting a high level of accountability and transparency. With an Accountability & Finance score of 100%, the organization demonstrates strong financial health and governance practices, including a fully independent board and no reported diversions of assets. Their dedication to transparency is further underscored by comprehensive reporting practices, ensuring that stakeholders can easily access information on finances and operations.
Strengths of the organization include a strong commitment to program effectiveness, with a 73.72% program expense ratio indicating that a significant portion of their budget goes directly toward mission-related activities. Furthermore, the Foundation's constituent feedback measures have earned a perfect score, suggesting they are effectively collecting and utilizing input from the communities they serve. This positions the organization favorably in terms of responsiveness to the needs of pulmonary fibrosis patients and their families.
While user reviews from GreatNonprofits were not available, the organization’s high rating and robust accountability measures suggest a strong reputation among supporters and beneficiaries. However, potential limitations may be found in areas related to equity policies, where it has room for improvement. Overall, the Foundation appears well-positioned to continue its mission of advocating for patients and advancing research in pulmonary fibrosis.
This AI summary has been generated from information found on Charity Navigator.
Is Pulmonary Fibrosis Foundation legitimate?
Pulmonary Fibrosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pulmonary Fibrosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $887,126
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,801,204
For more financial information, click here
Official website here: www.pulmonaryfibrosis.org
What is the mission statement of Pulmonary Fibrosis Foundation?
The Pulmonary Fibrosis Foundation's mission is to encourage action and gather resources to ensure access to top-notch care and drive research towards a cure. This endeavor aims to improve the lives of individuals battling pulmonary fibrosis, enabling them to live longer and healthier. The organization operates a Patient Registry program, which generates revenue through contributions, sponsorships, and program services. This initiative brings together various stakeholders such as patients, caregivers, healthcare providers, and researchers, working collaboratively to advance research and enhance the quality of life for patients with pulmonary fibrosis and interstitial lung disease.
Official website here: www.pulmonaryfibrosis.org
Who is the CEO of Pulmonary Fibrosis Foundation?
Scott Staszak is the Director/President And Ceo of Pulmonary Fibrosis Foundation. The CEO's salary of Pulmonary Fibrosis Foundation is $421,968 and their total compensation is $434,761.
Official website here: www.pulmonaryfibrosis.org
What is the revenue of Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation's revenue in 2022 was $11,007,903.
Official website here: www.pulmonaryfibrosis.org
Who are the executives of Pulmonary Fibrosis Foundation and what are their salaries?
The average compensation at Pulmonary Fibrosis Foundation during 2022 was $89,959. There are 41 employees and 2234 volunteers at Pulmonary Fibrosis Foundation.
Here are 22 key members and their salaries (Pulmonary Fibrosis Foundation's CEO's salary is $421,968 and their total compensation is $434,761):
- Compensation: $421,968
- Related: $0
- Other: $12,793
- Compensation: $313,854
- Related: $0
- Other: $12,217
- Compensation: $189,524
- Related: $0
- Other: $28,935
- Compensation: $177,121
- Related: $0
- Other: $7,972
- Compensation: $164,480
- Related: $0
- Other: $6,573
- Compensation: $157,800
- Related: $0
- Other: $5,474
- Compensation: $133,437
- Related: $0
- Other: $23,807
- Compensation: $140,557
- Related: $0
- Other: $13,621
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.pulmonaryfibrosis.org
Where can I find the form 990 for Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pulmonaryfibrosis.org
Learn more at the official website: www.pulmonaryfibrosis.org
Mission Statement of Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation, a notable organization, is committed to mobilizing people and resources with the primary goal of providing access to top-notch medical care and leading research towards a cure. By doing so, the foundation aims to help individuals diagnosed with pulmonary fibrosis live longer and healthier lives. This mission is carried out by bringing together various stakeholders, such as patients, caregivers, family members, healthcare providers, and researchers. The organization's efforts in this regard aim to advance research and enhance the quality of life for patients suffering from pulmonary fibrosis and interstitial lung disease (ILD). The Pulmonary Fibrosis Foundation's registry program, a significant part of its mission, generated revenue of $2,558,493, primarily through contributions, sponsorships, and program service revenue. This research initiative connects multiple parties to collaborate and contribute towards finding a cure and improving the well-being of those affected by these lung diseases.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
The Pulmonary Fibrosis Foundation's impact is significant in mobilizing resources and people to provide access to high-quality care and lead research for a cure for pulmonary fibrosis. Through initiatives like the PFF Patient Registry, which has recognized total revenue of over $2.5 million, the foundation brings together various stakeholders such as patients, caregivers, healthcare providers, and researchers to advance research and improve the quality of life for individuals with pulmonary fibrosis and interstitial lung disease. Their mission is to ensure that people affected by pulmonary fibrosis can live longer and healthier lives.
This information is meant to be a general summary of Pulmonary Fibrosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $297,956
- Program Service Revenue: $2,545,747
- Gross Receipts: $12,668,878
Assets and Liabilities:
- Total Assets: $17,064,469
- Total Liabilities: $7,089,463
- Net Assets: $9,975,006
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
REGISTRY SPECIFIC
Revenue
$2,210,840
CORP PARTNERSHIPS
Revenue
$268,621
PFF SUMMIT
Revenue
$65,661
ADVOCACY LEGISLATIVE
Revenue
$625
Organization Details
Founding Year
2000
Phone
(312) 265-2182Principal Officer
Scott Staszak
Main Address
230 East Ohio Street Suite 500, Chicago, IL, 606113270
Website
www.pulmonaryfibrosis.orgNTEE Category
Code: G45 - Disease
If you are a representative of Pulmonary Fibrosis Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.