Overview
What is The National Fragile X Foundation?
The National Fragile X Foundation is a dedicated nonprofit organization based in Washington D.C., specifically located at 1012 14TH ST NW 500. Their mission is to provide unwavering support to families affected by Fragile X, a genetic disorder, while relentlessly pursuing a cure. They offer personalized assistance, resources, and referrals on various issues, such as diagnosis, genetics, behavior, treatments, educational planning, employment, and adult issues. The foundation organizes educational events, webinars, virtual meetings, and conferences to educate families and professionals about Fragile X and associated conditions, aiming to provide hope and help families manage the daily challenges associated with the syndrome. With a team of 8 dedicated individuals, the National Fragile X Foundation serves as a beacon of support and hope within the Fragile X community.
Official website here: www.fragilex.org
What are the reviews and ratings of this charity?
Charity Navigator rating: Four-Star out of Four Stars (100%)
The National Fragile X Foundation has achieved an exceptional rating of 100%, reflecting strong accountability and financial management. The organization scored 90% in Accountability & Finance, demonstrating robust practices such as having a fully independent board and a solid financial oversight structure. Its program expense ratio of 77.16% indicates a clear commitment to channeling funds towards its mission-related activities.
Strengths of the foundation include its comprehensive governance policies, which cover conflict of interest, whistleblower protections, and document retention. The organization has successfully articulated strategic goals focused on research, education, and advocacy, highlighting its commitment to addressing the needs of the fragile X community. Furthermore, it has shown adaptability by effectively transitioning from in-person events to virtual formats, ensuring continued support and engagement.
While the foundation exhibits strong leadership and adaptability, ongoing monitoring of its impact and long-term effectiveness would be beneficial. Nevertheless, the organization's high scores across various metrics indicate a solid framework for fulfilling its mission and serving its constituents.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The National Fragile X Foundation?
94% of 70 reviewers on Facebook recommend The National Fragile X Foundation. Here’s a summary of their thoughts:
Many individuals express a deep sense of community and support related to the challenges of fragile X syndrome. Reviewers highlight the Foundation's role in providing resources and a network for families, emphasizing the importance of finding a cure and the invaluable support system it offers to those affected by fragile X.
The overall sentiment reflects gratitude and appreciation for the Foundation's mission and its positive impact on the lives of families dealing with fragile X. Participants convey a heartfelt commitment to the cause and a hopeful outlook towards future advancements in treatment.
This AI summary has been generated from reviews found on Facebook.
Is The National Fragile X Foundation legitimate?
The National Fragile X Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The National Fragile X Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $240,723
Professional Fundraising Fees: $0
Other Salaries and Wages: $420,585
For more financial information, click here
Official website here: www.fragilex.org
What is the mission statement of The National Fragile X Foundation?
The National Fragile X Foundation's mission is to provide unwavering support for families affected by Fragile X while relentlessly pursuing a cure. They achieve this by uniting the Fragile X community, offering educational and emotional support, promoting public and professional awareness, and advancing research towards improved treatments and a cure for Fragile X. The foundation provides personalized resources and referrals to individuals and families, addressing various issues such as diagnosis, genetics, behavior, treatments, educational planning, employment, and adult issues. They also organize educational content, including resources, webinars, virtual events, and conferences, to offer hope and help families overcome the daily challenges of living with Fragile X Syndrome and associated conditions.
Official website here: www.fragilex.org
Who is the CEO of The National Fragile X Foundation?
Hilary Rosselot is the Board President of The National Fragile X Foundation.
Official website here: www.fragilex.org
What is the revenue of The National Fragile X Foundation?
The National Fragile X Foundation's revenue in 2022 was $3,240,795.
Official website here: www.fragilex.org
Who are the executives of The National Fragile X Foundation and what are their salaries?
The average compensation at The National Fragile X Foundation during 2022 was $82,664. There are 8 employees at The National Fragile X Foundation.
Here are 17 key members and their salaries:
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- Other: $15,872
Official website here: www.fragilex.org
Where can I find the form 990 for The National Fragile X Foundation?
The National Fragile X Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fragilex.org
Learn more at the official website: www.fragilex.org
Mission Statement of The National Fragile X Foundation
The National Fragile X Foundation dedicates its efforts to providing unwavering support for every family impacted by Fragile X, while relentlessly pursuing a cure. This nonprofit organization unites the Fragile X community, aiming to enrich lives through educational and emotional support, promote public and professional awareness, and advance research towards improved treatments and a potential cure for Fragile X.
In line with its mission, The National Fragile X Foundation offers personalized support, resources, and referrals to families and individuals dealing with various challenges associated with Fragile X Syndrome. These issues range from diagnosis and genetics, to behavioral concerns, treatments, educational planning, employment, and adult-related matters. The foundation organizes educational content, such as resources, webinars, virtual events, and educational conferences, to provide families and professionals with hope and practical tools to navigate the daily challenges of living with Fragile X.
By providing educational resources and emotional support, The National Fragile X Foundation empowers families and individuals living with Fragile X Syndrome. Through its mission, the organization strives to create a supportive community where everyone affected by Fragile X can find the help they need to lead fulfilling lives, while working towards a future with improved treatments and, eventually, a cure.
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Impact
July, 2024
The National Fragile X Foundation's impact lies in providing unwavering support for every family affected by Fragile X while relentlessly pursuing a cure. Through personalized support, resources, and referrals, they assist individuals and families facing various challenges related to Fragile X, including diagnosis, genetics, behavior, treatments, educational planning, and employment. By organizing educational content such as resources, webinars, virtual events, and conferences for both families and professionals, the NFXF offers hope and helps families overcome the daily obstacles associated with living with Fragile X Syndrome. Additionally, by uniting the Fragile X community, promoting public and professional awareness, and advancing research towards improved treatments and a cure for Fragile X, The National Fragile X Foundation is making a significant impact in enriching lives and supporting families.
This information is meant to be a general summary of The National Fragile X Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,762
- Program Service Revenue: $665,887
- Gross Receipts: $3,240,795
Assets and Liabilities:
- Total Assets: $2,775,189
- Total Liabilities: $304,549
- Net Assets: $2,470,640
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCES AND MEETIN
Revenue
$635,847
SERVICE FEES
Revenue
$27,510
OTHER PROGRAM REVENUE
Revenue
$2,530
Organization Details
Founding Year
2001
Phone
(800) 688-8765Principal Officer
Hilary Rosselot
Main Address
1012 14TH ST NW 500, WASHINGTON, DC, 20005
Website
www.fragilex.orgNTEE Category
Code: H20 - Medical research
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