Gaucher Community Alliance

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 834696890 ✦ Pittsburgh, PA ✦ Designated as a 501(c)(3)

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Overview

What is Gaucher Community Alliance?

The Gaucher Community Alliance is a compassionate nonprofit organization based in Pittsburgh, Pennsylvania. Their primary focus is to support individuals and families affected by Gaucher disease, an inheritable condition. They achieve this through various initiatives, including peer-to-peer support, education, advocacy, and resource provision. By offering networking opportunities, they aim to ensure that no families feel isolated in their struggle against this disease. Their mission is to empower patients to live their lives to the fullest potential, providing them with the necessary tools and support.

Is Gaucher Community Alliance legitimate?

Gaucher Community Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Gaucher Community Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $85,068

For more financial information, click here

What is the mission statement of Gaucher Community Alliance?

The Gaucher Community Alliance, an organization dedicated to supporting individuals and families affected by Gaucher Disease, has a mission to help them live their fullest lives possible. They accomplish this by providing peer-to-peer support and education, advocating for their needs, offering patient and family resources, and fostering networking opportunities. The alliance aims to ensure no family feels isolated in their journey with this disease.

Who is the CEO of Gaucher Community Alliance?

Aviva Rosenberg is the Co-President of Gaucher Community Alliance.

What is the revenue of Gaucher Community Alliance?

Gaucher Community Alliance's revenue in 2022 was $224,219.

Who are the executives of Gaucher Community Alliance and what are their salaries?


Here are 14 key members and their salaries:


Cyndi Frank (Co-President)
  • Compensation: $36,000
  • Related: $0
  • Other: $0
Aviva Rosenberg (Co-President)
  • Compensation: $36,000
  • Related: $0
  • Other: $0
Ilaina Davidson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lauren Edwards (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stacey Feuer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marc Garelick (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christopher Heredia (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Diana Huang (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ken Lipowitz (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karen Shaw Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Wayne Rosenfield (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Steinman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Theresa Sweeny (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christine White (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Where can I find the form 990 for Gaucher Community Alliance?

Gaucher Community Alliance's most recent form 990 was submitted in 2022 and can be accessed here.

Mission Statement of Gaucher Community Alliance

The Gaucher Community Alliance is dedicated to aiding individuals and families impacted by Gaucher Disease. Their mission is to empower these individuals to live their fullest lives possible. They achieve this by providing various forms of support, including peer-to-peer interaction, education, advocacy, resources, and networking. The organization's ultimate goal is to ensure that no family feels isolated in their struggle with this disease. They strive to create a supportive environment where patients and their families can share experiences, learn about the condition, and advocate for improvements in treatment and care.

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Impact




October, 2024

The Gaucher Community Alliance significantly impacts individuals and families affected by Gaucher disease by fostering a supportive environment that emphasizes education, advocacy, and peer connections. Through peer-to-peer support mechanisms, patients find understanding and camaraderie among those facing similar challenges, which helps alleviate feelings of isolation.

The organization prioritizes comprehensive educational resources that empower patients and their families with knowledge about the disease, enabling them to make informed decisions regarding their health and treatment options. Advocacy efforts work to amplify the voices of those impacted, ensuring their needs and concerns are heard within the healthcare landscape.

By facilitating networking opportunities, the Gaucher Community Alliance cultivates a community where shared experiences can lead to mutual support and guidance. This holistic approach strives to enhance the quality of life for those dealing with Gaucher disease, ensuring that they do not navigate this journey alone.




This information is meant to be a general summary of Gaucher Community Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$224,219 (2022)
Expenses
$173,989 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $224,219

Assets and Liabilities:

  • Total Assets: $219,535
  • Total Liabilities: $1,036
  • Net Assets: $218,499

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Organization Details

Principal Officer

Aviva Rosenberg

Main Address

5255 FAIR OAKS ST, PITTSBURGH, PA, 15217

NTEE Category

Code: G20 - Disease

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