Overview
What is Haystack Project Inc?
Haystack Project Inc is a nonprofit organization situated in Severna Park, Maryland. Their primary focus is on supporting individuals and stakeholders affected by rare and ultra-rare medical conditions. They facilitate education and self-advocacy efforts, aiming to influence public policies that recognize the distinctive challenges associated with these conditions, including diagnosis, treatment, and care. To achieve this, Haystack Project Inc hires consultants to draft reports that give patients a collective voice, enabling them to influence coverage decisions and formulary designations. They maintain a library of these reports, allowing members to learn from them and employ the insights to amplify their own advocacy efforts.
Official website here: www.haystackproject.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 93%, Four-Star out of Four Star Rating.
Haystack Project Inc has achieved a commendable Four-Star rating from Charity Navigator, with an overall score of 93%. This high rating reflects the organization’s strong commitment to accountability and finance, as it is based entirely on a single beacon score. The charity demonstrated excellence in various accountability metrics, showcasing a robust governance structure with a fully independent board and no material diversion of assets.
The organization scored full points in several key areas, including its conflict of interest and whistleblower policies, along with transparent documentation of board meeting minutes. Additionally, its financial health is notable, with a program expense ratio of 85.41%, indicating that a significant portion of its expenses is allocated directly to its programs rather than administrative costs.
While the data reflects strong financial stewardship and governance, further insights into the organization's programmatic impact and community outreach efforts would provide a more comprehensive understanding of its overall effectiveness. Nonetheless, the charity's transparent practices and solid financial ratios position it as a trustworthy organization in the nonprofit sector.
This AI summary has been generated from information found on Charity Navigator.
Is Haystack Project Inc legitimate?
Haystack Project Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Haystack Project Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $60,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.haystackproject.org
What is the mission statement of Haystack Project Inc?
The mission of Haystack Project Inc. is to unite individuals and stakeholders associated with rare and extremely rare medical conditions. Their primary objective is to educate these individuals and assist them in self-advocacy efforts. Moreover, Haystack Project Inc. advocates for public policies that acknowledge the distinct challenges associated with diagnosing, treating, and caring for individuals with such rare conditions. The organization employs consultants to draft reports on value, providing patients with a platform to amplify their voices and be heard by decision-making groups responsible for coverage decisions and formulary designations. These reports are compiled in a library, allowing members to learn and utilize them in their advocacy efforts.
Official website here: www.haystackproject.org
Who is the CEO of Haystack Project Inc?
Chevese Turner is the Ceo of Haystack Project Inc. The CEO's salary of Haystack Project Inc is $3,000 and their total compensation is $3,000.
Official website here: www.haystackproject.org
What is the revenue of Haystack Project Inc?
Haystack Project Inc's revenue in 2022 was $476,038.
Official website here: www.haystackproject.org
Who are the executives of Haystack Project Inc and what are their salaries?
Here are 8 key members and their salaries (Haystack Project Inc's CEO's salary is $3,000 and their total compensation is $3,000):
- Compensation: $3,000
- Related: $0
- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
Official website here: www.haystackproject.org
Where can I find the form 990 for Haystack Project Inc?
Haystack Project Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.haystackproject.org
Learn more at the official website: www.haystackproject.org
Mission Statement of Haystack Project Inc
Haystack Project, a nonprofit organization, focuses on uniting individuals and stakeholders who are affected by rare and ultra-rare medical conditions. Its mission is to educate and empower these individuals, equipping them with the necessary tools for self-advocacy. The organization aims to advocate for public policies that recognize the unique challenges associated with diagnosing, treating, and caring for individuals with extremely rare conditions. Haystack Project accomplishes this by providing its members with valuable insights into patients' perspectives and perceptions of value. This allows patients to amplify their voices, ensuring they are heard by decision-making groups and authorities that influence coverage decisions and formulary designations. The organization maintains a library of reports, enabling members to learn from one another, conduct their own research, and utilize these resources to strengthen their advocacy efforts.
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Impact
July, 2024
Haystack Project Inc is making a significant impact by bringing together stakeholders connected to rare and ultra rare medical conditions to educate them and assist with their self-advocacy efforts. The organization's efforts include hiring consultants to draft reports that provide payer and value framework developers with deeper insights into patients' perspectives and perceptions of value. By maintaining a library of these reports, members can learn from them, conduct their own research, and use them to amplify their voices in discussions with groups and authorities that make coverage decisions and formulary designations. Through their mission to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, Haystack Project Inc is empowering individuals to come together and have their voices heard in the healthcare decision-making process.
This information is meant to be a general summary of Haystack Project Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $476,038
Assets and Liabilities:
- Total Assets: $382,665
- Total Liabilities: $0
- Net Assets: $382,665
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Organization Details
Founding Year
2019
Phone
(202) 360-9985Principal Officer
Chevese Turner
Main Address
937 Emerson Dr, Severna Park, MD, 21146
Website
www.haystackproject.orgNTEE Category
Code: G01 - Disease
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