Overview
What is People Against Leigh Syndrome?
People Against Leigh Syndrome is a nonprofit organization based in Houston, Texas. Their primary mission is to foster awareness about Leigh syndrome, a genetic neurometabolic disorder leading to the deterioration of the central nervous system. The organization's main objective is to support the medical community in their endeavor to discover effective treatments and ultimately, a cure for this condition. They achieve this by raising funds for this purpose, contributing to the ongoing research efforts in the field. The organization's location is specified as PO Box 7057, Houston, TX 77248-7057.
What are the reviews and ratings of this charity?
Charity Navigator Rating: 49%
People Against Leigh Syndrome has received a Zero-Star out of Four Star rating from Charity Navigator, primarily due to its low Accountability & Finance score of 49%. This rating indicates significant concerns regarding the organization's governance and transparency practices. Notably, only 33% of the board members are independent, raising questions about oversight and accountability.
Despite some strengths, such as having no material diversion of assets and a low liabilities to assets ratio, the organization lacks several key policies and transparency measures. For instance, it does not have a whistleblower policy or proper document retention and destruction practices, which are vital for maintaining organizational integrity. Additionally, the charity's website is missing essential documentation like its tax form and conflict of interest policy.
On a positive note, the program expense ratio is relatively healthy at 61.21%, reflecting a commitment to utilizing funds for its mission. However, the overall governance issues and missing documentation present a concerning picture for potential donors and supporters. Addressing these shortcomings would be crucial for improving trust and operational effectiveness.
This AI summary has been generated from information found on Charity Navigator.
Is People Against Leigh Syndrome legitimate?
People Against Leigh Syndrome is a legitimate nonprofit organization registered as a 501(c)(3) entity. People Against Leigh Syndrome submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $19,478
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
What is the mission statement of People Against Leigh Syndrome?
People Against Leigh Syndrome's mission is centered around raising awareness for Leigh syndrome, a genetic neurometabolic disorder that can lead to the deterioration of the central nervous system. Their primary objective is to support the medical community in their efforts to develop effective treatments and, ultimately, a cure for this condition. To achieve this, they fund various initiatives aimed at advancing research and care for individuals affected by Leigh syndrome.
Who is the CEO of People Against Leigh Syndrome?
Lori Martin is the Director And President of People Against Leigh Syndrome.
What is the revenue of People Against Leigh Syndrome?
People Against Leigh Syndrome's revenue in 2022 was $85,333.
Who are the executives of People Against Leigh Syndrome and what are their salaries?
Here are 6 key members and their salaries:
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- Compensation: $19,448
- Related: $0
- Other: $0
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- Other: $0
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Where can I find the form 990 for People Against Leigh Syndrome?
People Against Leigh Syndrome's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of People Against Leigh Syndrome
People Against Leigh Syndrome, abbreviated as PALS, is a nonprofit organization with a mission to increase awareness about Leigh syndrome, a genetic neurometabolic disorder that can lead to the deterioration of the central nervous system. The primary goal of PALS is to support the medical community in their pursuit of viable treatments and, ultimately, a cure for this condition. By raising funds, PALS aims to back the efforts of the medical field, providing essential resources to improve the care and living conditions of individuals diagnosed with Leigh syndrome.
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Impact
October, 2024
People Against Leigh Syndrome significantly impacts the landscape of awareness and advocacy surrounding Leigh syndrome, a genetic neurometabolic disorder characterized by the deterioration of the central nervous system. Through initiatives aimed at raising public consciousness, the organization educates individuals and families about the complexities of this disease, helping to foster a greater understanding of its challenges and implications.
In addition to awareness efforts, the organization plays a crucial role in funding research and supporting the medical community. By channeling resources into the quest for viable treatments and potential cures, they contribute to advancing medical knowledge and therapeutic options for those affected by Leigh syndrome. Their work not only provides hope but also aims to improve quality of life for patients and their families. Based in Houston, Texas, the organization serves as a vital hub for collaboration among researchers, clinicians, and the community, driving progress in the fight against this devastating condition.
This information is meant to be a general summary of People Against Leigh Syndrome. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $120,754
Assets and Liabilities:
- Total Assets: $201,833
- Total Liabilities: $1,043
- Net Assets: $200,790
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Organization Details
Founding Year
2013
Phone
(713) 248-8782Principal Officer
Lori Martin
Main Address
PO BOX 7057, HOUSTON, TX, 772487057
NTEE Category
Code: G40 - Disease
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