Overview
What is Slc6A1 Connect?
Slc6A1 Connect is a nonprofit organization committed to improving the lives of children and families impacted by the rare neurological disorder, SLC6A1. Based in Frisco, Texas, their primary focus is to raise awareness and fundraise for scientific research aimed at ultimately finding a cure. They operate as an advocacy group, striving to make a difference in the lives of those affected by this mutation. Their mission is multifaceted, encompassing efforts to promote understanding of the disorder, mobilize resources, and support groundbreaking research.
Official website here: www.slc6a1connect.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement (69%)
SLC6A1 Connect has received a two-star rating from Charity Navigator, indicating areas for improvement, particularly in accountability and financial transparency. While the organization boasts 100% independent board members and a strong program expense ratio of 84.11%, it lacks critical financial statements and several important policies, such as conflict of interest and whistleblower policies. These gaps have contributed to the overall score of 69%.
Despite the financial shortcomings highlighted by Charity Navigator, user feedback on platforms like Great Nonprofits paints a vastly more positive picture. Families and volunteers alike express deep gratitude for the support and community provided by SLC6A1 Connect, emphasizing its significant role in helping families navigate the challenges of a rare disease diagnosis. Users frequently highlight the organization's effectiveness in fundraising for research and the personal connections fostered among affected families.
Overall, while SLC6A1 Connect excels in community support and direct contributions to research, it faces challenges in financial transparency and governance practices. The heartfelt testimonials underscore its impact on the lives of many families, suggesting that addressing the financial concerns could enhance its credibility and effectiveness.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Slc6A1 Connect legitimate?
Slc6A1 Connect is a legitimate nonprofit organization registered as a 501(c)(3) entity. Slc6A1 Connect submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $99,999
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.slc6a1connect.org
What is the mission statement of Slc6A1 Connect?
Slc6A1 Connect is a patient advocacy group focused on improving the lives of children and families affected by the SLC6A1 mutation. Their primary objective is to raise awareness and fundraise to advance scientific research, with the ultimate goal of finding a cure for this rare neurological disease. The organization's mission is to support and empower affected individuals and their families, working tirelessly towards a future where SLC6A1 is no longer a debilitating condition.
Official website here: www.slc6a1connect.org
Who is the CEO of Slc6A1 Connect?
Amber Freed is the CEO of Slc6A1 Connect The CEO's salary of Slc6A1 Connect is $99,999 and their total compensation is $99,999.
Official website here: www.slc6a1connect.org
What is the revenue of Slc6A1 Connect?
Slc6A1 Connect's revenue in 2023 was $676,629.
Official website here: www.slc6a1connect.org
Who are the executives of Slc6A1 Connect and what are their salaries?
The average compensation at Slc6A1 Connect during 2023 was $99,999. There is 1 employee and 200 volunteers at Slc6A1 Connect.
Here are 8 key members and their salaries (Slc6A1 Connect's CEO's salary is $99,999 and their total compensation is $99,999):
- Compensation: $99,999
- Related: $0
- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.slc6a1connect.org
Where can I find the form 990 for Slc6A1 Connect?
Slc6A1 Connect's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.slc6a1connect.org
Learn more at the official website: www.slc6a1connect.org
Mission Statement of Slc6A1 Connect
Slc6A1 Connect, a patient advocacy group, is committed to enhancing the lives of children and families affected by the SLC6A1 mutation. Their primary focus lies in raising awareness and generating funds to accelerate scientific research. This research aims to ultimately discover a cure for the rare neurological disease, SLC6A1. By advancing research, Slc6A1 Connect strives to make a significant impact on the lives of those affected, providing hope and support throughout their journey.
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Impact
July, 2024
Slc6A1 Connect's impact lies in its dedication to improving the lives of children and families affected by the SLC6A1 mutation, a rare neurological disease. Through raising awareness and fundraising efforts, Slc6A1 Connect aims to advance scientific research towards finding a cure for this condition. Their work directly supports families facing the challenges of SLC6A1 mutation by providing hope for a future where effective treatments are available.
This information is meant to be a general summary of Slc6A1 Connect. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $83,242
- Program Service Revenue: $59,500
- Gross Receipts: $676,629
Assets and Liabilities:
- Total Assets: $2,802,564
- Total Liabilities: $120,000
- Net Assets: $2,682,564
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SYMPOSIUM REVENUE
Revenue
$59,500
Organization Details
Founding Year
2018
Principal Officer
Amber Freed
Website
www.slc6a1connect.orgNTEE Category
Code: H80 - Medical research
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