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Syngap Research Fund Incorporated

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 831200789 ✦ San diego, CA ✦ Designated as a 501(c)(3)

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Overview

What is Syngap Research Fund Incorporated?

Syngap Research Fund Incorporated is a nonprofit organization situated in San Diego, California, with the address 2856 Curie Pl. Their primary mission is to enhance the lives of individuals affected by SynGap-1, a specific condition. They accomplish this by supporting and funding new and ongoing research initiatives in collaboration with renowned institutions. The ultimate goal is to develop effective treatments, therapies, and support systems for these patients, thereby significantly improving their quality of life.


Official website here: www.syngapresearchfund.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 82% (Three-Star out of Four Stars)

The Syngap Research Fund (SRF) has earned a Three-Star rating from Charity Navigator, reflecting its solid performance in accountability and finance. The organization boasts complete independence among its board members and has no reported material diversion of assets. With a remarkable program expense ratio of 88.31% and an impressive fundraising efficiency ratio, SRF demonstrates a strong commitment to utilizing donations effectively to support its mission.

User feedback consistently highlights the organization's dedication to supporting families affected by Syngap1-related disorders. Many reviewers express gratitude for the resources and community connections that SRF provides, noting that it serves as a vital lifeline during challenging times. The organization is praised for its transparency, effective fundraising strategies, and the dedication of its volunteer-driven leadership, which fosters collaboration and hope among families.

While the feedback is overwhelmingly positive, there are no significant limitations or areas of concern mentioned by users. Overall, SRF appears to be a well-organized and impactful nonprofit focused on advancing research and providing essential support to families dealing with rare genetic conditions.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Syngap Research Fund Incorporated legitimate?

Syngap Research Fund Incorporated is a legitimate nonprofit organization registered as a 501(c)(3) entity. Syngap Research Fund Incorporated submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.syngapresearchfund.org

What is the mission statement of Syngap Research Fund Incorporated?

The mission of Syngap Research Fund Incorporated is centered around enhancing the lives of patients with SynGap-1. They accomplish this by engaging in extensive research and development of potential treatments and therapeutic methods, as well as support systems. The organization's primary goal is to improve the quality of life for these patients, striving to make a significant impact on their well-being. To achieve this, they invest in new and ongoing research initiatives, partnering with prominent academic institutions worldwide.


Official website here: www.syngapresearchfund.org

Who is the CEO of Syngap Research Fund Incorporated?

Stefanie Decker is the Managing Direct of Syngap Research Fund Incorporated.


Official website here: www.syngapresearchfund.org

What is the revenue of Syngap Research Fund Incorporated?

Syngap Research Fund Incorporated's revenue in 2022 was $2,189,895.


Official website here: www.syngapresearchfund.org

Who are the executives of Syngap Research Fund Incorporated and what are their salaries?

There 14 volunteers at Syngap Research Fund Incorporated.


Here are 14 key members and their salaries:


J Mike Graglia (Managing Direct)
  • Compensation: $0
  • Related: $0
  • Other: $0
Victoria Arteaga (Latin Am Direct)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rebecca Kohlhepp (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter Halliburton (Development Dir)
  • Compensation: $0
  • Related: $0
  • Other: $0
Aaron Harding (Dir At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Olga Bothe (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hans Schlecht (Science Direct)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marta Caceres Dahiya (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Pavel Gerovich (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Virginie Mcnamar (Dir At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Avery Robert (Marketing Dir)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sydney Stelmaszek (Patient Eng Dir)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nancy Leib Kessler (Dir At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stella Tavilla (Dir At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.syngapresearchfund.org

Where can I find the form 990 for Syngap Research Fund Incorporated?

Syngap Research Fund Incorporated's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.syngapresearchfund.org

Learn more at the official website: www.syngapresearchfund.org

Mission Statement of Syngap Research Fund Incorporated

Syngap Research Fund Incorporated is committed to enhancing the lives of patients suffering from SynGap-1, a specific condition. Their mission, in essence, revolves around driving advancements in the realm of research and development, aiming to create effective treatments and therapies for these patients. Additionally, the organization focuses on establishing supportive systems to cater to the unique needs of SynGap-1 patients. By funding new and ongoing research initiatives with renowned institutions, Syngap Research Fund Incorporated plays a vital role in the quest for improving the quality of life for individuals affected by SynGap-1.

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Impact




July, 2024

Syngap Research Fund Incorporated's impact lies in its dedication to improving the quality of life for SynGap-1 patients through research, development of treatments, therapies, and support systems. By funding new and ongoing research initiatives with leading institutions, the organization contributes directly to advancements in understanding and combating this rare disorder. This enables patients and their families to benefit from improved treatment options, enhanced support, and ultimately helps to pave the way for a better quality of life for those affected by SynGap-1.




This information is meant to be a general summary of Syngap Research Fund Incorporated. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,189,895 (2022)
Expenses
$1,192,705 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $4,889
  • Program Service Revenue: $40,778
  • Gross Receipts: $2,189,895

Assets and Liabilities:

  • Total Assets: $2,109,357
  • Total Liabilities: $0
  • Net Assets: $2,109,357

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

Events

Revenue

$33,865

Research Grant Refunds

Revenue

$6,913

Organization Details

Founding Year

2018

Principal Officer

Stefanie Decker

Main Address

2856 Curie Pl, San Diego, CA, 92122

NTEE Category

Code: T11 - Philanthropy

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