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Sara's Cure Clear Cell Sarcoma Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 825445706 ✦ Charleston, SC ✦ Designated as a 501(c)(3)

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Overview

What is Sara's Cure Clear Cell Sarcoma Foundation?

Sara's Cure Clear Cell Sarcoma Foundation is a charitable organization situated in Charleston, South Carolina, with a significant role in combating clear cell sarcoma. Established as the sole non-profit in the U.S. dedicated to this specific type of cancer as of 2019, their mission revolves around empowering patients and their caregivers through education and scientific research. Their activities include funding research, utilizing repurposed drugs, and screening them with more than 10 clear cell sarcoma cell lines and 60 approved drugs. The goal is to make clear cell sarcoma survivable, ensuring that all affected individuals have a platform to advocate for finding a cure.


Official website here: www.sarascure.org

Is Sara's Cure Clear Cell Sarcoma Foundation legitimate?

Sara's Cure Clear Cell Sarcoma Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Sara's Cure Clear Cell Sarcoma Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.sarascure.org

What is the mission statement of Sara's Cure Clear Cell Sarcoma Foundation?

Sara's Cure Clear Cell Sarcoma Foundation is a non-profit organization committed to making clear cell sarcoma a manageable condition through educational initiatives and scientific research. Their primary goal is to ensure that patients and their caregivers affected by the disease have a collective voice in the pursuit of a cure. In 2019, they funded a repurposed drug screen using various cell lines and approved drugs. The foundation operates with the aim of enhancing the understanding and treatment of clear cell sarcoma, ultimately striving towards a cure.


Official website here: www.sarascure.org

Who is the CEO of Sara's Cure Clear Cell Sarcoma Foundation?

Dawn Judd is the Treasurer of Sara's Cure Clear Cell Sarcoma Foundation.


Official website here: www.sarascure.org

What is the revenue of Sara's Cure Clear Cell Sarcoma Foundation?

Sara's Cure Clear Cell Sarcoma Foundation's revenue in 2021 was $81,170.


Official website here: www.sarascure.org

Who are the executives of Sara's Cure Clear Cell Sarcoma Foundation and what are their salaries?


Here are 9 key members and their salaries:


Lennie Woods (Executive Di)
  • Compensation: $19,500
  • Related: $0
  • Other: $0
Kelly Argraves Phd (Scientific D)
  • Compensation: $12,000
  • Related: $0
  • Other: $0
Jenae Heller (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dru Williams (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dawn Judd (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Denny Woods (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bruce Newby (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nanette Deturk (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Evan Barnes (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.sarascure.org

Where can I find the form 990EZ for Sara's Cure Clear Cell Sarcoma Foundation?

Sara's Cure Clear Cell Sarcoma Foundation's most recent form 990EZ was submitted in 2021 and can be accessed here.


Official website here: www.sarascure.org

Learn more at the official website: www.sarascure.org

Mission Statement of Sara's Cure Clear Cell Sarcoma Foundation

Sara's Cure Clear Cell Sarcoma Foundation is a dedicated non-profit organization, uniquely focused on making clear cell sarcoma a manageable condition through the promotion of education and scientific research. Their primary mission is to provide a platform for patients and their caregivers to collectively strive towards a cure for this rare disease. Established in the United States, Sara's Cure is currently the sole non-profit organization solely dedicated to clear cell sarcoma. In 2019, the foundation funded a comprehensive drug screen project, employing over 10 cell lines of clear cell sarcoma and 60 previously approved drugs, with the aim of repurposing existing treatments for this specific type of cancer.

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Impact




October, 2024

Sara's Cure Clear Cell Sarcoma Foundation significantly advances the fight against clear cell sarcoma (CCS) by focusing on two major areas: education and scientific research. The foundation aims to make CCS survivable, ensuring that patients and caregivers have a platform to voice their experiences and needs in the quest for a cure.

Since its establishment, the foundation has been a pioneering force in CCS research, being the only dedicated organization of its kind in the U.S. They have actively funded innovative research projects, such as a comprehensive drug screening initiative that tested over 60 previously approved medications on more than 10 different CCS cell lines. This critical work not only enhances the understanding of CCS but also aids in the discovery of potential treatment options, directly contributing to the ongoing quest for effective therapies.

By bridging the gap between patients, caregivers, and the research community, Sara's Cure plays a vital role in raising awareness about this rare cancer, promoting education to empower those affected, and facilitating the development of scientifically informed approaches toward treatment. Their efforts represent a hopeful stride toward improving outcomes for individuals diagnosed with clear cell sarcoma.




This information is meant to be a general summary of Sara's Cure Clear Cell Sarcoma Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$81,170 (2021)
Expenses
$107,983 (2021)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2021.

  • Investment Income: $2
  • Gross Receipts: $81,170

Assets and Liabilities:

  • Total Assets: $99,408
  • Total Liabilities: $3,168
  • Net Assets: $96,240

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Organization Details

Principal Officer

Dawn Judd

Main Address

783 STILES DRIVE, CHARLESTON, SC, 29412

NTEE Category

Code: H30 - Medical research

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