Overview
What is Kabuki Syndrome Foundation?
The Kabuki Syndrome Foundation is a nonprofit organization situated in Northbrook, Illinois. Their primary focus is on driving research efforts aimed at treating or curing Kabuki Syndrome, a genetic disorder. They achieve this mission through various means, including fundraising, knowledge sharing, and collaborating with researchers internationally. An essential aspect of their work is hosting a medical conference that brings together prominent Kabuki Syndrome researchers and families affected by the condition. By doing so, the foundation fosters a platform for knowledge exchange and supports ongoing research initiatives.
Official website here: www.kabukisyndromefoundation.org/
Is Kabuki Syndrome Foundation legitimate?
Kabuki Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Kabuki Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.kabukisyndromefoundation.org/
What is the mission statement of Kabuki Syndrome Foundation?
The Kabuki Syndrome Foundation's mission is centered around driving research efforts that hold promise for treating or curing Kabuki Syndrome. This is achieved through various means such as fundraising, knowledge sharing, and collaborating with researchers worldwide. The foundation plays a crucial role in bringing together leading Kabuki Syndrome researchers from around the globe, as well as individuals affected by the syndrome and their families, at their annual medical conference. This gathering serves as a platform for sharing the latest developments and fostering collaboration in the quest to unlock solutions for Kabuki Syndrome.
Official website here: www.kabukisyndromefoundation.org/
Who is the CEO of Kabuki Syndrome Foundation?
Jill Orum Dunbar is the Co-President of Kabuki Syndrome Foundation.
Official website here: www.kabukisyndromefoundation.org/
What is the revenue of Kabuki Syndrome Foundation?
Kabuki Syndrome Foundation's revenue in 2022 was $362,899.
Official website here: www.kabukisyndromefoundation.org/
Who are the executives of Kabuki Syndrome Foundation and what are their salaries?
There 6 volunteers at Kabuki Syndrome Foundation.
Here are 6 key members and their salaries:
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Official website here: www.kabukisyndromefoundation.org/
Where can I find the form 990 for Kabuki Syndrome Foundation?
Kabuki Syndrome Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.kabukisyndromefoundation.org/
Learn more at the official website: www.kabukisyndromefoundation.org/
Mission Statement of Kabuki Syndrome Foundation
The Kabuki Syndrome Foundation is committed to driving research efforts that show promise in treating or curing Kabuki Syndrome. Its mission is accomplished through various means, including fundraising, knowledge-sharing, and collaborating with researchers worldwide. The foundation's primary goal is to contribute to the scientific community's advancements in understanding and potentially eradicating Kabuki Syndrome, a genetic disorder that affects numerous individuals globally.
In pursuit of its mission, the Kabuki Syndrome Foundation organizes a medical conference that brings together some of the world's leading Kabuki Syndrome researchers. This gathering provides an opportunity for these experts to exchange ideas, share their latest findings, and collaborate on potential breakthroughs. Additionally, the conference offers a platform for individuals with Kabuki Syndrome and their families to connect with researchers and learn about the latest developments in the field. This interdisciplinary approach, which combines the perspectives of both medical professionals and affected individuals, is crucial in fostering a comprehensive understanding of Kabuki Syndrome and accelerating the search for effective treatments.
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Impact
October, 2024
The Kabuki Syndrome Foundation significantly advances research efforts aimed at treating or curing Kabuki syndrome. By organizing a medical conference that unites leading researchers in the field, the foundation fosters collaboration and knowledge-sharing, creating a platform where innovative ideas can flourish. Families and individuals affected by Kabuki syndrome are integral to this process, as their personal experiences help shape research priorities and initiatives. This collaborative environment not only accelerates the discovery of potential treatments but also builds a supportive community that raises awareness and enhances understanding of the condition. Through dedicated fundraising and strategic partnerships, the foundation drives impactful research that holds promise for improving the lives of those affected by Kabuki syndrome.
This information is meant to be a general summary of Kabuki Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Program Service Revenue: $4,970
- Gross Receipts: $362,899
Assets and Liabilities:
- Total Assets: $482,449
- Total Liabilities: $0
- Net Assets: $482,449
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE SPONSORSHIP
Revenue
$4,970
Organization Details
Founding Year
2018
Phone
(847) 226-8237Principal Officer
Jill Orum Dunbar
Main Address
PO BOX 214, NORTHBROOK, IL, 60065
NTEE Category
Code: G80 - Disease
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