Overview
What is A Star For Ben Foundation?
A Star For Ben Foundation is a 501(c)3 nonprofit organization founded with a mission to support and advance treatments, research, education, awareness, and family networks for individuals affected by Salla disease. Based in Katonah, New York, this charitable organization is dedicated to accelerating medical advancements through collaborative scientific research. The foundation's unwavering belief is that no disease is too rare to fight, and with the right support, commitment, and determination, meaningful solutions can be created for those impacted by Salla disease. By backing research efforts, they aim to provide hope and improve the lives of those affected, fostering a supportive community for families and advocates.
What are the reviews and ratings of this charity?
Charity Navigator Rating: 61%, earning a Two-Star out of Four Star rating.
A Star For Ben Foundation has received a Two-Star rating from Charity Navigator, indicating significant room for improvement in its accountability and finance practices. The organization scored particularly low in areas such as board independence, where it has no independent board members, and transparency, with a missing website and tax form on its nonprofit’s website. These factors contribute to its overall lower rating, emphasizing a need for better governance and communication.
Despite these weaknesses, the foundation does demonstrate strengths in program expenses, with a high program expense ratio of 76.17%, indicating that a substantial portion of its finances directly support its mission. Additionally, the foundation has no material diversion of assets, ensuring that funds are managed without misappropriation. However, the lack of a whistleblower policy is a noted limitation that could affect its accountability.
Overall, while A Star For Ben Foundation shows a commitment to its programmatic goals, its governance structure and transparency practices require significant attention to build trust and improve its rating. Moving forward, strengthening board independence and enhancing reporting practices could help bolster its overall effectiveness and public perception.
This AI summary has been generated from information found on Charity Navigator.
Is A Star For Ben Foundation legitimate?
A Star For Ben Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. A Star For Ben Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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What is the mission statement of A Star For Ben Foundation?
The A Star For Ben Foundation's mission is centered around supporting and advancing treatments, research, education, awareness, and family networks for a specific disease known as Salla. This charitable organization is driven by the belief that no disease is too rare to fight, and with sufficient support, hope, and faith, a dedicated team of researchers, families, supporters, and advocates can create meaningful solutions for those impacted by this condition. The foundation supports collaborative scientific research to accelerate the prospects for effective medical treatments for individuals affected by Salla disease. It also focuses on raising awareness and providing educational resources to the public.
Who is the CEO of A Star For Ben Foundation?
Jessica Klein Foglio is the President of A Star For Ben Foundation.
What is the revenue of A Star For Ben Foundation?
A Star For Ben Foundation's revenue in 2022 was $66,946.
Who are the executives of A Star For Ben Foundation and what are their salaries?
Here are 4 key members and their salaries:
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- Other: $0
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Where can I find the form 990 for A Star For Ben Foundation?
A Star For Ben Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of A Star For Ben Foundation
A Star for Ben Foundation is a charitable organization with a mission to support and advance treatments, research, education, awareness, and family networks for individuals affected by Salla Disease. This foundation is driven by an unwavering belief that no disease is too rare to fight. They are committed to accelerating the prospects for effective medical treatments by funding collaborative scientific research. The organization operates with the hope and faith that a dedicated team of researchers, families, supporters, and advocates can create meaningful solutions for those impacted by this disease. Their mission is to make a significant impact on the lives of those affected by Salla Disease, ensuring they receive the necessary support and resources for their well-being.
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Impact
August, 2024
A Star For Ben Foundation has made a significant impact by supporting and advancing treatments, research, education, awareness, and family networks for Salla disease. The foundation's collaborative scientific research efforts are accelerating the prospects for effective medical treatments for those affected by Salla. With a strong belief that no disease is too rare to fight, the foundation is showing that a small team of dedicated researchers, families, supporters, and advocates can create meaningful solutions for those impacted by this disease.
This information is meant to be a general summary of A Star For Ben Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $7
- Gross Receipts: $66,946
Assets and Liabilities:
- Total Assets: $68,023
- Total Liabilities: $82,784
- Net Assets: -$14,761
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Organization Details
Founding Year
2018
Principal Officer
Jessica Klein Foglio
Main Address
145 TODD ROAD, KATONAH, NY, 10536
NTEE Category
Code: G20 - Disease
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