Overview
What is Rare Access Action Project Inc?
Rare Access Action Project Inc, situated in Washington D.C., is a nonprofit organization dedicated to addressing the complex challenges in access and coverage for rare disease patients. With a focus on policy solutions, they engage in research, public education, advocacy, and lobbying activities. By collaborating with various life sciences and patent stakeholders, RAAP aims to highlight the difficulties faced by those affected by rare diseases and propose practical, sensible solutions to improve their access to necessary care and treatments.
Official website here: www.rareaccessactionproject.com
Is Rare Access Action Project Inc legitimate?
Rare Access Action Project Inc is a legitimate nonprofit organization registered as a 501(c)(4) entity. Rare Access Action Project Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $351,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.rareaccessactionproject.com
What is the mission statement of Rare Access Action Project Inc?
The Rare Access Action Project Inc, a coalition of life sciences and patent stakeholders, focuses on exploring innovative policy solutions to address the structural challenges in access and coverage for rare disease patients. Their primary goal is to ensure these patients have the necessary care and treatments they require. To achieve this, RAAP engages in various activities such as research, public education, issue advocacy, and lobbying. By shedding light on the challenges facing rare disease patients and proposing practical solutions, RAAP aims to make a positive impact on their lives.
Official website here: www.rareaccessactionproject.com
Who is the CEO of Rare Access Action Project Inc?
Michael Eging is the Chairman of Rare Access Action Project Inc.
Official website here: www.rareaccessactionproject.com
What is the revenue of Rare Access Action Project Inc?
Rare Access Action Project Inc's revenue in 2022 was $2,445,165.
Official website here: www.rareaccessactionproject.com
Who are the executives of Rare Access Action Project Inc and what are their salaries?
Here are 4 key members and their salaries:
- Compensation: $195,000
- Related: $0
- Other: $0
- Compensation: $156,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.rareaccessactionproject.com
Where can I find the form 990 for Rare Access Action Project Inc?
Rare Access Action Project Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.rareaccessactionproject.com
Learn more at the official website: www.rareaccessactionproject.com
Mission Statement of Rare Access Action Project Inc
Rare Access Action Project (RAAP), a coalition of life sciences and patent stakeholders, is dedicated to investigating innovative policy solutions to tackle the structural challenges in access and coverage for rare disease patients. The organization's primary focus is to ensure that individuals affected by rare diseases have access to the necessary care and treatments they require. To achieve this goal, RAAP engages in a variety of activities such as research, public education, issue advocacy, and lobbying. Through these efforts, the coalition aims to shed light on the challenges faced by rare disease patients and propose practical, sensible solutions to overcome them.
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Impact
October, 2024
Rare Access Action Project Inc (RAAP) is making significant strides in improving access to healthcare for patients with rare diseases. By bringing together a coalition of life sciences and patent stakeholders, RAAP focuses on identifying and exploring innovative policy solutions that tackle the structural barriers impacting coverage and access to necessary treatments.
Through its commitment to research, public education, and issue advocacy, RAAP raises awareness of the unique challenges that rare disease patients face. The organization engages in lobbying activities to advocate for policies that promote equitable access to care, ensuring that these patients receive the treatments they need.
In an environment where access to healthcare can be complicated by regulatory and financial hurdles, RAAP serves as a vital advocate, working to shine a light on the importance of addressing these issues. By fostering collaborative discussions among stakeholders, RAAP aims to implement practical solutions that enhance the lives of those affected by rare conditions.
This information is meant to be a general summary of Rare Access Action Project Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $165
- Gross Receipts: $2,445,165
Assets and Liabilities:
- Total Assets: $860,661
- Total Liabilities: $0
- Net Assets: $860,661
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Organization Details
Founding Year
2018
Phone
(202) 731-1275Principal Officer
Michael Eging
Main Address
1012 14th St NW 500, Washington, DC, 20005
NTEE Category
Code: Z99 - Unknown
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